Health-related quality of life of family caregivers—Evidence from Hesse

Rösler-Schidlack, Birgit; Stummer, Harald; Ostermann, Herwig

doi:10.1007/s10389-010-0369-z

Cited by 22 publications

(15 citation statements)

References 68 publications

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“…Our results show that the scores in the physical function and social function dimensions are consistent with those in previous studies, and a higher impact on scores resulted from physical and emotional dimensions. Rösler-Shidlack et al 16 evaluated the Qol of family caregivers in a district in Germany and also found lower scores in all the eight dimensions of the SF-36, especially in daily and social activities.…”

Section: Discussionmentioning

confidence: 99%

Burden and quality of life among caregivers of children and adolescents with meningomyelocele: measuring the relationship to anxiety and depression

et al. 2012

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Objectives: This study aimed to assess the burden and quality of life (Qol) of primary caregivers of children/adolescents with meningomyelocele, taking into account the relationship to anxiety and depression symptoms. Methods: A cross-sectional approach was taken to analyze the health-related Qol and burden using the Short Form-36 Survey (SF-36) and the Caregiver Burden Scale (CBS), respectively. Depressive and anxiety symptoms were investigated using the Beck Inventories. The Heckman two-step method was used to deal with the selection bias problem. Results: A total of 43 primary caregivers were enrolled in the study. Most of the caregivers were mothers with preliminary education, living in consensual union. Lower scores in general health and vitality were reported in the SF-36. The mean global CBS score was 2.2. Majority of the volunteers (55.8%) were considered non-depressive. There were both positive and negative correlations between the scores of both Beck Inventories and most dimensions of the CBS and SF-36. The Heckman method showed a higher burden among caregivers who had children with fecal incontinence, were living together with a partner, were unemployed and had lower income (Po0.05). Conclusion: The primary caregivers of children and adolescents with myelomeningocele reported burden and a lower Qol. There were more anxiety and depression symptoms in subjects with higher burden and impaired Qol. Caregivers had a higher burden if they were living together with a partner, were unemployed, had low income and had care recipients with fecal incontinence.

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Section: Discussionmentioning

confidence: 99%

Burden and quality of life among caregivers of children and adolescents with meningomyelocele: measuring the relationship to anxiety and depression

et al. 2012

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“…Due to care giving, they frequently lack sleep and feel tired and exhausted [ 7 ], and may suffer from anxiety and depression [ 8 ]. Family caregivers, especially in midlife, report lower health-related quality of life than the average population [ 9 ]. Trustful and reliable relationships within their familiar and social systems are important resources for patients in palliative situations [ 10 ].…”

Section: Introductionmentioning

confidence: 99%

Correlation between patient quality of life in palliative care and burden of their family caregivers: a prospective observational cohort study

et al. 2016

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BackgroundFamily caregivers play a key role in palliative care at home, and understanding the interdependencies in the constellation of patient, family caregivers and service providers is important. As few longitudinal studies have examined the influence of patient quality of life (QoL) in palliative care on burden of family caregivers, the aim of this study was to identify correlations between changing patient QoL and changing burden of family caregivers that need consideration in patient management.MethodsPalliative patients with cancer in primary care evaluated their QoL (Quality of Life Questionnaire Core 15 Palliative Care, QLQ-C15-PAL). They were assessed monthly for an interval of 6 months or until death of the patient. Family caregivers reported the burden they perceived while supporting the patient (Short form of the Burden Scale for Family Caregivers, BSFC). Longitudinal data were analysed for all patients with at least 3 available assessments, considering the most recent data for participants with more than 3 assessments. Changes in patient QoL were analysed using the Friedman test. In a stepwise regression analysis, influences of change in patient QoL on changing caregiver burden were investigated.ResultsOne hundred patients (63 men, 37 women; average age: 68 years) were enrolled in the study. The most common primary diagnoses were colon, lung or breast cancer. In 58 cases, assessments were available from both patients and caregivers. Patients reported overall quality of life increasing towards end of life, although reporting that physical functioning deteriorated. Symptoms of pain and fatigue bothered patients most. Caregiver burden was moderate and on average did not change over time. In a stepwise regression model, the difference in emotional functioning and the difference in dyspnoea showed an influence on the development of caregiver burden (explained variance of 19.3 %).ConclusionsPatients’ dyspnoea, feelings of depression and anxiety impacted on the perceived burden of family caregivers, but are manageable symptoms. Our results corroborate the need of regular assessment of patients’ needs taking into account caregiver burden. In this way, general practice teams can intervene early and may more likely meet patients’ needs in the end of life care process.Trial registrationCurrent Controlled Trials ISRCTN78021852, assigned on 04/04/2007

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“…Informal support also tends to differ in terms of location. Co-residential care is more frequent in Southern countries, whilst extra-residential help/care is more common in Northern countries (Hank 2011;Rodrigues et al 2012). Factors such as living arrangements-higher levels of coresidence in Southern countries and a higher number of people living alone in Northern countries-and the lack of formal care services at home in Southern countries can help one explain the differences.…”

Section: Introductionmentioning

confidence: 99%

Informal support in Portugal by individuals aged 50+

Barbosa

Matos

2014

Eur J Ageing

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In Portugal, individuals aged 50? have an important role in the provision of co-residential care. This study aimed to rank Portugal relative to 15 European countries with regard to the prevalence of co-residential care (daily or almost daily personal care), and extra-residential help/care (household help and/or personal care) provided by individuals aged 50?, and determine the factors associated with the provision of these types of support in the Portuguese context. The study used data from the SHARE wave 4 project (2010)(2011) and was based on an analysis of variance and logistic regression models. Portugal differs from other European countries, as it has the highest rate of coresidential care (12.4 %) and the lowest rate of provision of extra-residential help/care (10.8 %). It is concluded that the quality of life (QoL) of Portuguese co-residential carers is lower than the QoL of non-carers, but extra-residential help/ care provided once a month or less has a positive impact on the QoL of the providers. Co-residential care and the provision of frequent extra-residential help/care (daily or weekly) were associated with a higher number of depressive symptoms. The results further showed that, in Portugal, coresidential carers and extra-residential helpers/carers have different socio-demographic, economic and health characteristics. This study demonstrates that it is important for scientific research to differentiate the type and frequency of informal support, since this can help us design policies to meet the specific needs of the various types of informal carers aged 50?.

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Health-related quality of life of family caregivers—Evidence from Hesse

Cited by 22 publications

References 68 publications

Burden and quality of life among caregivers of children and adolescents with meningomyelocele: measuring the relationship to anxiety and depression

Burden and quality of life among caregivers of children and adolescents with meningomyelocele: measuring the relationship to anxiety and depression

Correlation between patient quality of life in palliative care and burden of their family caregivers: a prospective observational cohort study

Informal support in Portugal by individuals aged 50+

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