Health-Related Quality of Life of Mothers of Children With Phenylketonuria

Mortazavi, Zahra; Tapak, Leili; Mortazavi, Saideh Sadat; Golchin, Minoo Dabiri

doi:10.32598/cjns.6.22.4

Cited by 4 publications

(3 citation statements)

References 20 publications

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“…With such a high stress and difficulties arising from caring children with PKU, it not only affects the psychological state of the caregivers, but it greatly affects the HRQOL of caregivers most importantly mothers, as they are the primary caretakers. 39 The overall PHRQOL was poor in caregivers of children and adolescents with PKU. It was reported that lowest level of QOL was found in "self-development" domain.…”

Section: Discussionmentioning

confidence: 99%

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Health Related Quality of Life of Caregivers of Children and Adolescents With Phenylketonuria: A Systematic Review

Thomas

Divya

Arulappan

2021

Global Pediatric Health

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Introduction. Caregivers of children with chronic illness are at risk of having impairment in their quality of life (QOL). We systematically reviewed the available literature related to the Health Related Quality Of Life (HRQOL) of caregivers of children with Phenylketonuria (PKU). Methods. We comprehensively searched in electronic databases including Scopus, Science Direct, CINAHL, Medline, PubMed, Google scholar, and ProQuest. The search criteria included studies with samples more than one, children suffering from PKU, exploring parents or primary caregiver’s HRQOL, published from 2010 to 2020, full article available for download and published in English. Eight studies including 5 cross sectional studies, 1 open label trial, and 2 surveys were systematically reviewed. Results. Seven out of 8 studies have established a negative correlation between PKU and parent’s HRQOL in at least 1 of the domains. In one study, the HRQOL of parents is higher than their population norms. Conclusion. Most of the caregivers had poor to moderate HRQOL. More studies are required to explore HRQOL of caregivers of children with PKU using similar tools and outcome measures addressing all the domains of HRQOL in order to have more clarity on the impact of PKU on caregiver’s HRQOL. Interventional studies might help in improving the HRQOL of caregivers.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Health Related Quality of Life of Caregivers of Children and Adolescents With Phenylketonuria: A Systematic Review

Thomas

Divya

Arulappan

2021

Global Pediatric Health

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“…Moreover, the psychometric assessment of the questionnaire (validity and reliability) confirmed other studies. In Mortazavi and colleagues' study (24), the content validity rate, intraclass correlation coefficient, and Cronbach's alpha values were calculated to be 0.93, 0.97, and 0.84, respectively.…”

Section: Women's Social Participation Factors Questionnairementioning

confidence: 99%

Social Participation and Related Factors in Older Adult Women

Mortazavi

Foroughan

Haghgoo

et al. 2022

J Educ Community Health

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Background: Social participation is one of the most important factors in the health of the elderly and also the main goal of health-related interventions. The purpose of this study was to assess social participation and its related factors in the elderly women population. Methods: This cross-sectional study was conducted on 300 women aged 60 and older in Hamadan, Iran, in 2020. The samples were selected by a simple random sampling method and according to inclusion and exclusion criteria. A demographic questionnaire, Women’s Social Participation Factors Questionnaire, and mini-mental state examination were completed, and data were obtained from the participants by trained questionnaires. Results: The mean social participation score was 70.8±10.7, and scores ranged from 0 to 120. The level of social participation was moderate in 82% of the participants, weak and insufficient in 16.3%, and strong in 1.7% of participants. The obtained results indicated that 39% of the participants were employed before the elderly, and 22.67% had regular employment in old age. There were different types of occupation among this group: 30.33% had paid jobs, 23.67% voluntary jobs, 62% religious activities, and 76% were jobless. Moreover, a significant difference was observed between social participation and elderly employment history (P<0.01), level of education (P=0.01), and regular physical activity (P=0.03). Conclusion: The social participation of elderly women was found to be mostly moderate in this study, and people with higher education, regular physical activity, and a vocational history before old age had better social participation.

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