Health-related quality of life in a group of Egyptian children and adolescents with type 1 diabetes: relationship to microvascular complications

Monir, Zeinab M.; El-Samahy, Mona H.; Eid, Ehab M.; Khalifa, Abla Galal; abd-ElMaksoud, Soheir abd-El Mawgood; Abbas, Mohammed Nooredeen; Ghaffar, Hend Helmy Abd El

doi:10.1186/s42269-019-0180-0

Cited by 5 publications

(3 citation statements)

References 77 publications

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“…Majority of the mean level of HbA1C from our study was more than 7%. In line with other studies conducted in Turkey, Egyptian as well as research in Khartoum also reported similar finding that was reflected that the most of the children that involved in the studies had poor glycemic control [18], [19], [20]. Low parental education levels, low economic income, and limitation of the health care service were postulated as the cause of poor glycemic control in children with T1DM [20].…”

Section: Discussionsupporting

confidence: 86%

The Relationship between Glycated Hemoglobin Levels and the Quality of Life among Type 1 Diabetes Mellitus in Children

Susilowati

Arto

Lubis

2021

Open Access Maced J Med Sci

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BACKGROUND: Diabetes mellitus is a group of metabolic diseases characterized by hyperglycemia that occurs due to impaired both in insulin secretion and insulin action. Children with type 1 diabetes mellitus should be targeted to achieve a glycated hemoglobin (HbA1C) level ≤7.0% to reduce the risk of complications and improve quality of life. The majority of children with type 1 diabetes mellitus exhibit poor self-care and Health-related Quality of life behavior. AIM: The objective of the study was to determine the relationship between HbA1C level and the quality of life among type 1 diabetes mellitus in children. METHODS: A cross-sectional study was conducted among 30 children with type 1 diabetes mellitus who attended at pediatric endocrine clinic Haji Adam Malik general hospital and Universitas Sumatera Utara hospital Medan. Sampling was carried out in April 2020–July 2020. HbA1C level and self-administered questionnaire were used to assess the quality of life. Spearman correlation test was conducted to assess the correlation between HbA1C levels and the quality of life. RESULTS: The mean of HbA1C level was 10.35 ± 2.68. No significant correlation between HbA1C level and the quality of life of children with type 1 diabetes mellitus (r = 0.264, p > 0.05) CONCLUSIONS: There was no significant correlation between HbA1C levels and the quality of life of children with type 1 diabetes mellitus.

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Section: Discussionsupporting

confidence: 86%

The Relationship between Glycated Hemoglobin Levels and the Quality of Life among Type 1 Diabetes Mellitus in Children

Susilowati

Arto

Lubis

2021

Open Access Maced J Med Sci

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“…Individuals experiencing complications may fear judgment from their healthcare team and may experience shame and self-criticism, which may contribute to overall coping as well as delays in seeking treatment and routine screenings [114]. Studies have found that the experience of neuropathy contributes to greater levels of distress, depression, and diminished quality of life [115,116]. In a piece in the journal PLAID: People Living with And Inspired by Diabetes, writers Chris Aldred and Renza Scibilia advocate for increased open, nonjudgmental communication about complications and state: "If people felt comfortable sharing stories about complications, it would reduce feelings of isolation.…”

Section: Discussionmentioning

confidence: 99%

The Promising Role of Self-Compassion in Managing Type 1 Diabetes

Kaelberer

Tanenbaum

2023

Endocrines

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Given the demanding daily regimen for type 1 diabetes (T1D) and emphasis on personal responsibility for self-management, people with T1D can experience self-criticism and diabetes distress. How an individual responds to and copes with diabetes-related feedback may influence self-care, health outcomes, and overall well-being. Self-compassion in the context of diabetes has limited but promising research on its ability to alleviate distress in people with T1D. This narrative review captures relevant, existing literature on self-compassion, compassion-based interventions, and T1D and describes four topic areas where diabetes-specific self-compassion and compassion-based interventions may be particularly relevant: (1) diabetes technology use; (2) relationship with eating and body image; (3) social interactions; and (4) healthcare interactions. Compassion-based interventions have the potential to enhance positive coping skills and to alleviate diabetes distress; more research is needed to understand the role of diabetes-specific self-compassion and to develop high-quality evidence-based interventions.

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“…Other studies found no difference between children with T1D and their healthy peers [ 4 ]. Studies suggest that male gender, longer diabetes duration, better glycemic control and higher socioeconomic status are associated with better HRQoL [ 5 – 7 ]. Less favorable HRQoL was associated with youths' perceptions that diabetes is upsetting, difficult to manage, and stressful, as well as fear of hypoglycemia [ 8 , 9 ].…”

Section: Introductionmentioning

confidence: 99%

Psychosocial aspects of continuous subcutaneous insulin infusion in children with type 1 diabetes in Egypt; a limited resources country perspective

El-Samahy

Salah

Abdeen

et al. 2022

Diabetol Metab Syndr

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Background Novel innovations continue to emerge in type-1 diabetes (T1D) management aiming to improve glycemic control. Assessing the psychosocial outcomes of different treatment modalities is specifically crucial among children with T1D and differs from one population to another. Objectives To compare the health related quality of life (HRQoL) and confidence in diabetes self-management (CIDS) among children with T1D on continuous subcutaneous insulin infusion (CSII) versus multiple daily injections (MDI) and to correlate them with the efficacy of glycemic control, Mini-International Neuropsychiatric Interview for Children and Adolescents(MINI-KID) depression module and socioeconomic-standard scale. Methods This real life study (ClinicalTrials.gov number NCT04756011) included 60 children with T1D (30 on CSII and 30 on MDI), aged 6–18 years. Disease duration, insulin therapy, average self-monitoring of blood glucose (SMBG) and HbA1C were assessed. CIDS, socioeconomic-standard, MINI-KID depression and HRQoL scales were applied. Results Children with T1D on CSII have significantly higher HRQoL and CIDS than those on MDI (P < 0.001). A significant negative correlation is found between HRQoL and insulin daily dose(P = 0.022), HbA1C(P < 0.001), average SMBG(P < 0.001) and MINI-KID depression scale(P < 0.001). A significant positive correlation is found between HRQoL and CIDS(P < 0.001) and health care, home sanitation, family possessions and occupation socioeconomic scores(P = 0.033, P = 0.001, P < 0.001 and P = 0.006, respectively). Multivariate regression analysis revealed that HRQoL is most associated with MINI-KID depression scale (P = 0.004) and annual total cost(P < 0.001). Conclusion Children with T1D on CSII have significantly better HRQoL, CIDS and HbA1C with less depression than those on MDI.

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Health-related quality of life in a group of Egyptian children and adolescents with type 1 diabetes: relationship to microvascular complications

Cited by 5 publications

References 77 publications

The Relationship between Glycated Hemoglobin Levels and the Quality of Life among Type 1 Diabetes Mellitus in Children

The Relationship between Glycated Hemoglobin Levels and the Quality of Life among Type 1 Diabetes Mellitus in Children

The Promising Role of Self-Compassion in Managing Type 1 Diabetes

Psychosocial aspects of continuous subcutaneous insulin infusion in children with type 1 diabetes in Egypt; a limited resources country perspective

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