Health-Related Quality of Life in Children and Adolescents with Autism Spectrum Disorder

Kamp‐Becker, Inge; Schröder, Johanna; Muehlan, Holger; Remschmidt, Helmut; Becker, Katja; Bachmann, Christian

doi:10.1024/1422-4917/a000098

Cited by 84 publications

(128 citation statements)

References 35 publications

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“…In addition, Renty et al 26) found a link between the HRQOL of adults with high-functioning autism and social support. However, other reports have stated that this association could not be replicated 20) , and as of yet, no definitive conclusion has been reached.…”

Section: Discussionmentioning

confidence: 85%

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Is high job control a risk factor for poor quality of life in workers with high autism spectrum tendencies? A cross‐sectional survey at a factory in Japan

Hayakawa

Okada

Nomura

et al. 2015

Journal of Occupational Health

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Norika HAYAKAWA, et al.: Autism spectrum tendencies and occupational environment associated with poor physical HRQOL among others. Conclusions: Our results suggest that AS tendencies have a negative effect on workers' HRQOL and social support is a primary factor in maintaining HRQOL. Moreover, a structured work environment can maintain physical HRQOL in workers with high AS tendencies since higher job control will be stressful. (J Occup Health 2015; 57: 419-426)

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Section: Discussionmentioning

confidence: 85%

“…Previous studies have reported that the overall self-reported HRQOL of patients with high-functioning autism is lower than that of healthy individuals 20) . Although IQ is one of the prognostic predictors for AS 21,22) , a substantial number of people with IQs over 100 still have poor social adjustment 9) .…”

Section: Discussionmentioning

confidence: 89%

Is high job control a risk factor for poor quality of life in workers with high autism spectrum tendencies? A cross‐sectional survey at a factory in Japan

Hayakawa

Okada

Nomura

et al. 2015

Journal of Occupational Health

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“…Neste estudo, foi percebido que o domínio "relações sociais" foi o mais acometido na ótica do adolescente com deficiência, seguido do "meio ambiente". O mesmo ocorreu em estudo conduzido na Alemanha, que teve como objetivo verificar a qualidade de vida em 26 adolescentes com autismo, no qual foi encontrado um pior desempenho dos avaliados no domínio das relações sociais e o melhor desempenho foi para o domínio físico (15) . O relacionamento social é uma característica muito comum na adolescência, já que nessa fase existe a tendência grupal.…”

Section: Discussionunclassified

Qualidade de vida em adolescentes com necessidades especiais em um município de pernambuco

Marinho¹,

Vieira²

2015

RBPS

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RESUMOObjetivo: Avaliar a qualidade de vida (QV) e a associação desta com variáveis demográficas de adolescentes com necessidades especiais (física, visual e auditiva). Métodos: Tratou-se de um estudo descritivo, de corte transversal, com 72 adolescentes entre 10 e 19 anos, em instituições de ensino público estadual de Petrolina no estado de Pernambuco, Brasil, no período de agosto a outubro de 2012. Para avaliação da QV, foi utilizado o questionário World Health Organization Quality of Life, versão breve (WHOQOL-BREF). Para análise dos dados, foi utilizada a estatística descritiva e inferencial, aplicando-se os testes MannWhitney e Kruskal-Wallis, com p<0,05. Resultados: Observou-se uma menor percepção da QV global nos deficientes físicos (57,36 ±20,67). A QV foi melhor percebida pelos deficientes visuais (65,62 ± 22,49). No tocante aos domínios, entre os deficientes físicos (60,41 ± 7,30), visuais (55,84 ± 13,34) e auditivos (55,00 ± 20,33), os menores escores apresentados foram os de relação social, respectivamente. Os escolares inseridos em sala especial e os adolescentes mais novos obtiveram uma menor percepção da QV. Conclusão: A QV foi melhor percebida pelos deficientes visuais, e os adolescentes com deficiência física apresentaram-se como o grupo mais vulnerável na percepção da QV global e nos domínios físico e meio ambiente entre os escolares investigados. O grupo mais jovem e os estudantes de sala especial perceberam sua QV inferior quando comparada com os mais velhos e os alunos de sala regular.Descritores: Qualidade de Vida; Adolescente; Pessoa com Deficiência Física; Pessoas com Deficiência Visual; Deficiência Auditiva. (65.62 ± 22.49). As regards the domains, the lowest scores were obtained in the social relationship for those with physical disabilities (60.41 ± 7.30), visual (55.84 ± 13.34), and hearing (55.00 ± 20.33) ABSTRACT Objective: To evaluate the quality of life (QOL) and its association with demographic variables of adolescents with special needs (physical, visual, and hearing impairments

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“…4 Furthermore, recent studies confirm, that higher cognitive scores do not necessarily reflect better adaptive skill in children with ASD, thus leading to considerable impairment in everyday life. 5 Over one third of children with ASD have some comorbid ADHD (attention deficit hyperactivity disorder) symptoms, and that the presence of ADHD symptoms is related to greater problems in adaptive skills and poorer overall HRQoL. 6 Age-appropriateness and population specificity, multidimensionality are key issues to predict QoL reliably.…”

Section: Introductionmentioning

confidence: 99%

Cognitive Functions and Health Related Quality of Life of Institutional Autism Spectrum Disorder Children in Dhaka city

Jahan¹,

Karim

Rahman

et al. 2016

Bangladesh Med Res Counc Bull

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In Bangladesh, nearly 10.5 hundred thousand individuals may have autism. Recent figures released by the CDC (2012) show that autism spectrum disorders (ASDs) now affect 1 in 88 children. Cognitive impairment, limited adaptive skills, and severe social impairment as seen in Autism Spectrum Disorders (ASD) thought to be associated with poorer health related quality of life (HRQoL). The objective of the study was to measure HRQoL and cognitive functioning in a group of autism Spectrum Disorder (ASD) children and to relate HRQoL with their socio demographic characteristics and cognitive functioning from parents' perception.This cross sectional study was conducted among149 purposively selected parents who have institutionalized autistic children (2 to 18 years old) from January to June 2013. HRQoL was assessed by Pediatric Quality of Life Inventory 4.0 (Verni1998) and cognitive functioning was assessed with The PedsQL TM Cognitive Functioning Scale.Three fourth of the children were male (n=115, 77.2%) and the mean (SD) age of the children was 7.8(3.06) years. Symptoms of autism appeared at about their 2nd birthday 2.1 (.70) while the average (SD) age of diagnosis was around three years 2.9 (.98). The children were reported to go to school at an early age of 3(1.75) years. Out of 149 respondents, ten percent parents (n=14) had the history of consanguineous marriage.The sample data provides significant difference between the scores by the ability of verbal communication (p<.05), presence of autistic siblings (p<.05) and mother's occupation (p<.05). There found negative correlation between HRQoL and age of symptom appearance and cognitive functioning with age of diagnosis (r = -0.18; p=.03). Cognitive functioning was strongly correlated with total PedsQL score and its domains (r = 0.73; p=.00). i.e. Higher cognitive function leads to good health related quality of life. Linear regression was performed to study the relationship between HRQoL and independent variables found significant in univariate analysis. The results of the regression indicated the predictors in the model explained 57 % of the variance (R2=.57, F=23.05, p<.001). It was found that fathers who were doctors and engineers by profession (t=2.34, p= .02), child's ability to communicate with words (t= 2.73, p= .007), age of symptom appearance (t= -2.71, p=.008), and cognitive functioning (t =12.28, p <0.001) significantly predicted HRQol of ASD children.Father's occupational status, child's ability to communicate by word, age of symptom appearance, and Cognitive functioning of ASD children were found related to their quality of life.

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Health-Related Quality of Life in Children and Adolescents with Autism Spectrum Disorder

Abstract: HRQOL in children and adolescents with ASD seems to be better than in other psychiatric disorders, but lower than in healthy controls.

Cited by 84 publications

References 35 publications

Is high job control a risk factor for poor quality of life in workers with high autism spectrum tendencies? A cross‐sectional survey at a factory in Japan

Is high job control a risk factor for poor quality of life in workers with high autism spectrum tendencies? A cross‐sectional survey at a factory in Japan

Qualidade de vida em adolescentes com necessidades especiais em um município de pernambuco

Cognitive Functions and Health Related Quality of Life of Institutional Autism Spectrum Disorder Children in Dhaka city

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