Health-Related Quality of Life in Persons Living With a Urostomy

Pazar, Berrin; Yava, Ayla; Başal, Şeref

doi:10.1097/won.0000000000000110

Cited by 12 publications

(37 citation statements)

References 22 publications

(16 reference statements)

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“…Growing evidence [11,[13][14][15][16][17] reported that neobladder and urostomy surgeries have different physical, functional and psychological consequences. Consistently, patients with neobladder reported problematic and urinary incontinence [14,15], requiring a significant change in lifestyle (e.g., setting alarms to go off during the night and day in order to guarantee regular voiding, wearing pads and changing underwear) [8] and habits [16,17]. Otherwise, patients with urostomy face complicated conduit options, such as stoma, catheters and related visual stigma [18,19].…”

mentioning

confidence: 99%

Quality of life and psycho-emotional wellbeing in bladder cancer patients and their caregivers: a comparative analysis between urostomy versus ileal orthotopic neobladder

Masiero¹,

Busacchio²,

Guiddi³

et al. 2021

ecancer

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mentioning

confidence: 99%

Quality of life and psycho-emotional wellbeing in bladder cancer patients and their caregivers: a comparative analysis between urostomy versus ileal orthotopic neobladder

Masiero¹,

Busacchio²,

Guiddi³

et al. 2021

ecancer

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“…All patients in this series described a subjective significant improvement in their quality of life by this repair technique. Taking the negative impact of a urostomy into account, one should always consider the reconstruction of a neourethra if possible in conjunction with a perineal VRAM flap reconstruction [20].…”

Section: Discussionmentioning

confidence: 99%

“…However, this often comes with complications such as ureteral strictures, pyelonephritis, difficulty in catheterization, or urinary stones [19]. Health-related quality of life is known to be negatively affected by a urostomy, leading to less participation in recreational activities and avoidance of social relationships [20].…”

Section: Introductionmentioning

confidence: 99%

Personalized Reconstruction of Genital Defects in Complicated Wounds with Vertical Rectus Abdominis Myocutaneous Flaps including Urethral Neo-Orifice

Horch

Ludolph

Arkudas

et al. 2021

JPM

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Non-healing extensive wounds in the perineal region can lead to severe soft tissue infections and disastrous complications, which are not manageable with conservative measures. Specifically in recurrent or advanced pelvic malignancies, irradiation often leads to extensive scarring and wound breakdown, resulting in significant soft tissue defects during surgical tumor excision. Among several surgical options to reconstruct the perineum, the transpelvic vertical rectus abdominis myocutaneous (VRAM) flap has proven to be one of the most reliable methods. Specific modifications of this flap allow an individualized procedure depending on the patient’s needs. We modified this technique to include the urethral orifice into the skin paddle of VRAM flaps in three patients as a novel option to circumvent urinary diversion and maintain an acceptable quality of life.

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“…People living with a urostomy have to cope with a number of challenges which impact on their quality of life: physical problems, psychology functioning, social concerns and lifestyle issues (Ayaz-Alkay, 2019;Pazar et al, 2015;Porter et al, 2005). By wearing a support garment, many respondents indicated they could overcome some of these difficulties.…”

Section: Discussionmentioning

confidence: 99%

Experiences of wearing support garments by people living with a urostomy

et al. 2019

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Background: support garments are commonly worn by people with a urostomy but there are no published data about their experiences of doing so. Aims: to identify the views of people living with a urostomy on the role of support garments. Methods: a cross-sectional survey of the stoma population's experiences of support garments was conducted in 2018. Recruitment was by social media. The free-text responses provided by a sub-sample of 58 people out of 103 respondents with a urostomy, were analysed. Findings: thematic analysis revealed four themes: physical self-management; psychosocial self-management; lifestyle; and healthcare advice and support. There were mixed feelings about the value of support garments. Many cited a sense of reassurance and confidence and being able to be more sociable and active; others reported discomfort and uncertainty about their value. Conclusion: these findings add new understanding of experiences of support garments and provide novel theoretical insights about life with a urostomy.

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Health-Related Quality of Life in Persons Living With a Urostomy

Abstract: Creation of a urostomy affected the patients' lifestyle and HRQOL negatively. Determining the patients' experiences, problems, and the change in HRQOL may provide assistance in designing appropriate nursing approaches to alleviate problems adapting to a urostomy.

Cited by 12 publications

References 22 publications

Quality of life and psycho-emotional wellbeing in bladder cancer patients and their caregivers: a comparative analysis between urostomy versus ileal orthotopic neobladder

Quality of life and psycho-emotional wellbeing in bladder cancer patients and their caregivers: a comparative analysis between urostomy versus ileal orthotopic neobladder

Personalized Reconstruction of Genital Defects in Complicated Wounds with Vertical Rectus Abdominis Myocutaneous Flaps including Urethral Neo-Orifice

Experiences of wearing support garments by people living with a urostomy

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