Health-Related Quality of Life in Children with Cancer

Almomani, Tha'er Ghandi

doi:10.21007/etd.cghs.2015.0010

Cited by 1 publication

(2 citation statements)

References 107 publications

(244 reference statements)

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“…The symptoms can affect the children's health‐related quality of life (HRQoL) and extend to other areas of their life (Alelayan, Wen, et al, 2022; Erickson et al, 2011), such as physical activity, social and mental well‐being, and the challenges of facing symptoms during their illness. HRQoL is an important metric in children with chronic conditions and disabilities, including cancer (Almomani, 2015). It is commonly recognized as a leading patient‐reported outcome (PRO) and is essential to understanding well‐being and disorder trajectories, treatment effects, and concerns about nonadherence in children with special healthcare needs (Riley et al, 2004).…”

Section: Introductionmentioning

confidence: 99%

“…HRQoL is an important metric in children with chronic conditions and disabilities, including cancer (Almomani, 2015). It is commonly recognized as a leading patient-reported outcome (PRO) and is essential to understanding well-being and disorder trajectories, treatment effects, and concerns about nonadherence in children with special healthcare needs (Riley et al, 2004).…”

Section: Introductionmentioning

confidence: 99%

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Translation and linguistic validation of the DISABKIDS chronic generic module into simplified Chinese (DCGM‐37) for use among children with cancer

Alelayan

Liang

Rui

et al. 2022

Specialist Pediatric Nursing

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Purpose: To develop a simplified Chinese version of the DISABKIDS chronic generic module-37 (DCGM-37), and to test the translated measures in children with cancer by employing a cognitive interviewing technique. Design and Methods:The English version of DCGM-37 was translated forward and backward into simplified Chinese by bilingual translators, following the guidelines from its copyright holders, which also involved a cultural adaptation component.Twelve Chinese children aged 8-18 years and eight parents were cognitively interviewed. Results:The findings support the relevance, comprehensibility, and efficacy of the Chinese version. Consideration was given, and improvements were made, to the language, cultural concerns, and content, which improved functionality and increased validation. The patients/caregivers understood the instructions, questions, and answer choices. Some revisions, however, were made to address patient/ caregiver feedback obtained through cognitive interviews. Conceptually and semantically, the simplified Chinese version of the DCGM-37 version was identical to the original. Conclusions The simplified Chinese version of the DCGM-37 was semantically and conceptually equivalent to the English version. Chinese children aged 8 to 18 years were able to comprehend this instrument. Conclusions:The simplified Chinese version of the DCGM-37 was semantically and conceptually equivalent to the English version. Chinese children aged 8 to 18 years were able to comprehend this instrument and express their experiences and feelings about their life.Practice Implications: The simplified Chinese version of the DCGM-37 was translated, and cross-cultural adaptation and validation were performed. Chinese children found the tool easy to use and were able to express their experiences and feelings about their health-related quality of life.

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