Health-related Quality of Life in Behçet Patients with Ocular Involvement

Tanrıverdi, Nilgün; Taşkıntuna,; Dürü, Çağay; Özdal, Pınar; Ortaç, Serap; Firat, Esin

doi:10.1016/s0021-5155(02)00647-0

Cited by 52 publications

(34 citation statements)

References 19 publications

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“…20,21 The high rate of depression among the patients with BD has been mentioned in the previous studies. 22,23 There are several mechanisms that can explain depressive symptoms in BD. First, functional disability and stressful events resulting from the disease process may cause depression.…”

Section: Discussionmentioning

confidence: 99%

Disease Activity in Turkish Patients with Behçet's Disease: Association with Fatigue, Psychological Status and Quality of Life

Güler¹,

Aslan²,

Garip³

et al. 2017

Turkiye Klinikleri J Med Sci

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Section: Discussionmentioning

confidence: 99%

Disease Activity in Turkish Patients with Behçet's Disease: Association with Fatigue, Psychological Status and Quality of Life

Güler¹,

Aslan²,

Garip³

et al. 2017

Turkiye Klinikleri J Med Sci

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“…In addition, results from studies of patient cohorts with the following significant chronic diseases in the same age group were selected for comparison: Uveitis, 18 to compare the MFS group with a group with a risk of permanently reduced visual acuity; hypertrophic cardiomyopathy (HCM) 19 without angina, to compare the impact of anxiety concerning early cardiovascular death; and cystic fibrosis (CF) 20 and Behçet syndrome (BS) 21 (an autoimunologic disorder affecting uvea, joints, spine, and sacrum and giving oral and genital ulcera), to compare with two other well-defined multiorgan diseases with chronic disability and reduced life span.…”

Section: Methodsmentioning

confidence: 99%

Health-related quality of life in Marfan syndrome: A cross-sectional study of Short Form 36 in 84 adults with a verified diagnosis

Rand‐Hendriksen

Johansen

Semb

et al. 2010

Genetics in Medicine

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M arfan syndrome (MFS) is an autosomal dominant connective tissue disorder, with variable pathologic features and symptoms from different organ systems. MFS is diagnosed on the basis of the Ghent criteria, 1 defining "involved organ systems" and "major criteria fulfilled." To be given the diagnosis, a person has to fulfill a major criterion in two different organ systems and have a third organ system involved. Approximately 30% of the cases are the first in their family to have MFS, interpreted as caused by new mutations.The impact of MFS on the individual patient may vary considerably both between families and within a family. As aortic disease may result in early death, some patients will have to cope with an impending life-threatening condition. Lens dislocation can give reduced visual acuity, and lens dislocation increases the risk for retinal detachment that can result in blindness. The consequences of dural ectasia are still unclear 2 ; orthostatic headache due to cerebrospinal hypotension has been found 3,4 ; problems with spinal and epidural anesthesia have been reported. 5 Skeletal abnormalities may include a long, slender body shape, chest deformities, scoliosis, and joint hypermobility and may result in a peculiar appearance that invites unwanted attention. Children with MFS often look older than their chronological age and are often treated in accordance with their appearance, rather than their actual age. Individuals with MFS have been bullied and stigmatized at school, in the local environment, and in their occupational life. 6 Moreover, persons with MFS often report musculoskeletal pain, fatigue, and reduced physical endurance. 7,8 In the clinic, persons with MFS usually report few, if any, physical limitations deriving from their cardiovascular system. On the other hand, physicians often advise abstinence from strenuous exercise and prescribe beta-blockers to reduce the aortic dP/dt, heart rate, blood pressure, and left ventricular afterload, with the intention to delay aortic dilatation and lower the risk of aortic dissection. Some patients undergo prophylactic elective graft operations for enlarged aortas. Through such measures, the median life expectancy of persons with MFS has been prolonged considerably. 9 To reduce the risk of aortic dissection, lens dislocation, and retinal detachment, the patients are advised not to participate in contact sports and to wear glasses during sports with small balls. It is our clinical experience that the advised restrictions have often resulted in passivity; a sedentary life with an increasing body size.Given the broad range of symptoms and characteristics among individuals with MFS, as mentioned earlier, one would expect a reduced health-related quality of life (HRQOL). Judging from the MFS literature, where the main focus is on aortic pathology, the severity of aortic disease could potentially be the most important predictor for the degree of reduction. There are, however, few studies of HRQOL in the literature on MFS. In a study of 174 adults with MFS, Pe...

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“…Behçet hastalarında özellikle hastalığın aktif olduğu dönemde yaşam kalitesinin düşük, depresyon eğiliminin yüksek olmasının, cinsel disfonksiyona katkıda bulunduğu düşünülmek-tedir. [17][18][19][20] Çalışmamızda ölçek puanına göre hastaların büyük kısmında cinsel disfonksiyon bulunmasına karşın, açık uçlu soruya hastaların daha azı cinsel yaşantı-larının olumsuz etkilendiği şeklinde yanıt vermiştir. Bu durumun, hastaların cinsellik ile ilgili yaşadığı problemi açıkça ifade edememesinden ya da sorunu hastalığın doğal süreci olarak algılamasından kaynaklandığı düşü-nülmektedir.…”

Section: Discussionunclassified

The Evaluation Of Sexual Problems And Influencing Factors In Behcet's Disease

Özdemir¹,

Kalyoncu²,

Akdemir³

2009

TUTFD

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Objectives:The prevalence of sexual dysfunction in Behçet patients, patients' practices toward sexual problems, pre-disease sexual life and distribution of postdisease sexual problems were evaluated. Patients and Methods:Sexually active 96 patients were included to the study. The data were collected with the "Sexual Problems in Behçet Patients Data Collection Form" and "Arizona Sexual Experience Scale (ASES)". The scale's score interval is 5-30; 11-above scores indicate sexual dysfunction. Results:Of the patients, 51 (53.1%) were 40-yearold and above, 49 (51%) were women; the most frequent symptoms were oral aphtosis (58.3%), genital ulcers (31.2%), and erythema nodosum (28.1%). Mean ASES score was 14.2±5.8 66 patients (68.7%) had sexual dysfunction. The most prevalent problems were decreased frequency of intercourse (n=32, 86.5%), painful sexual relation (n=18, 48.6%) and unwillingness (n=9, 24.3%). Most of the patients (n=15, 40.5%) who expressed sexual problems were not using any practice for the solution. None of the patients received any information about sexual problem and the most preferenced source of information would be the doctors (n=83, 86.4%) in case having this opportunity. Female gender and the belief about the impact of Behçet's disease on sexual life determined ASES score (43%). Conclusion:Sexual dysfunction in Behçet's disease was seen in a significant proportion.Key words: Behçet's disease; sexuality; sexual dysfunction;, gender.Amaç: Bu çalışmada Behçet hastalarında cinsel disfonksiyon görülme oranı, cinsel sorunlara yönelik hasta uygulamaları, hastalık öncesi cinsel yaşantı ve hastalık sonrası cinsel sorunların dağılımı değerlendirilmiştir. Hastalar ve Yöntemler:Çalışma kapsamına cinsel açıdan aktif olan 96 hasta alınmıştır. Veriler "Behçet Hastalarında Cinsel Sorunlar Veri Toplama Formu" ve "Arizona Cinsel Yaşantılar Ölçeği" (ACYÖ) ile toplanmıştır. Ölçeğin puan aralığı 5-30 olup, 11 ve üzeri puan cinsel disfonksiyonu gös-termektedir. Bulgular:Hastaların 51'inin (%53.1) 40 yaş ve üzerinde, 49'unun (%51) kadın, sık görülen semptomlarının oral aftlar (%58.3), genital ülserler (%31.2) ve eritema nodozum (%28.1) olduğu bulunmuştur. Arizona Cinsel Yaşantılar Ölçeği puan ortalamalarının 14.2±5.8 olduğu 66 hastada (%68.7) cinsel disfonksiyon bulunduğu saptanmıştır. Hastalarda en çok görülen cinsel sorunların cinsel ilişki sıklığında azalma (n=32, %86.5), ağrılı cinsel ilişki (n=18, %48.6) ve cinsel isteksizlik (n=9, %24.3) olduğu bulunmuştur. Cinsel sorunu olduğunu ifade eden hastaların çoğunluğunun (n=15, %40.5) sorunun çözümü için hiçbir uygulamada bulunmadığı belirlenmiştir. Hastaların hiçbirinin cinsel sorunu ile ilgili sağlık çalışanların-dan bilgi almadığı ve bilgi alma olanağı olması durumda en çok doktorların (n=83, %86.4) tercih edileceği saptanmıştır. Çalışmamızda kadın cinsiyetin ve Behçet hastalığı nedeniyle cinsel yaşamın etkilendiği düşüncesinin, ACYÖ puanını önemli oranda (%43) belirlediği bulunmuştur.Sonuç: Bulgular doğrultusunda Behçet hastalığında cinsel disfonksiyonun önemli ora...

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Health-related Quality of Life in Behçet Patients with Ocular Involvement

Cited by 52 publications

References 19 publications

Disease Activity in Turkish Patients with Behçet's Disease: Association with Fatigue, Psychological Status and Quality of Life

Disease Activity in Turkish Patients with Behçet's Disease: Association with Fatigue, Psychological Status and Quality of Life

Health-related quality of life in Marfan syndrome: A cross-sectional study of Short Form 36 in 84 adults with a verified diagnosis

The Evaluation Of Sexual Problems And Influencing Factors In Behcet's Disease

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