Health-Related Quality of Life after 5-12 Years of Continent Ileal Urostomy (Kock Reservoir) in Children and Adolescents

Abd-el-Gawad, G.; Abrahamsson, Kate; Al, Hellström; Hjälmås, K; Hanson, E.

doi:10.1080/003655902317259355

Cited by 8 publications

(4 citation statements)

References 16 publications

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“…Resilience was operationalized and defined in the study as the child's high scores on the 'I think I Am' (ITIA) questionnaire and as the child's low score [ 31 ] on the sub-scales of the Strengths and Difficulties Questionnaire (SDQ) apart from the sub-scale ' prosocial behavior,' on which a high score is positive.…”

Section: Methodsmentioning

confidence: 99%

Resilience and vulnerability among refugee children of traumatized and non-traumatized parents

Daud

Klinteberg

Rydelius

2008

Child Adolesc Psychiatry Ment Health

116

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BackgroundThe aim of the study was to explore resilience among refugee children whose parents had been traumatized and were suffering from Post-Traumatic Stress Disorder (PTSD).MethodsThe study comprised 80 refugee children (40 boys and 40 girls, age range 6–17 yrs), divided into two groups. The test group consisted of 40 refugee children whose parents had been tortured in Iraq before coming to Sweden. In accordance with DSM-IV criteria, these children were further divided in two sub-groups, those who were assessed as having PTSD-related symptoms (n = 31) and those who did not have PTSD-related symptoms (n = 9). The comparison group consisted of 40 children from Egypt, Syria and Morocco whose parents had not been tortured. Wechsler Intelligence Scale for Children, 3rd edn. (WISC-III), Diagnostic Interview for Children and Adolescents- Revised (DICA-R), Post-Traumatic Stress Symptoms checklist (PTSS), "I Think I am" (ITIA) and Strengths and Difficulties Questionnaire (SDQ) were used to assess IQ; PTSD-related symptoms; self-esteem; possible resilience and vulnerability.ResultsChildren without PTSD/PTSS in the traumatized parents group had more favorable values (ITIA and SDQ) with respect to total scores, emotionality, relation to family, peer relations and prosocial behavior than the children in the same group with PTSD/PTSS and these values were similar to those the children in the comparison group (the non-traumatized parents group). The children in the non-traumatized parents group scored significantly higher on the IQ test than the children with traumatized parents, both the children with PTSD-related symptoms and those without PTSD-related symptoms.ConclusionAdequate emotional expression, supportive family relations, good peer relations, and prosociality constituted the main indicators of resilience. Further investigation is needed to explore the possible effects of these factors and the effects of IQ. The findings of this study are useful for treatment design in a holistic perspective, especially in planning the treatment for refugee children, adolescents and their families.

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Section: Methodsmentioning

confidence: 99%

Resilience and vulnerability among refugee children of traumatized and non-traumatized parents

Daud

Klinteberg

Rydelius

2008

Child Adolesc Psychiatry Ment Health

116

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“…The validity and reliability of the scale has been tested and the instrument has been used in earlier studies performed in Sweden, regarding psychosocial and psychological reactions in children with somatic illness [19,20].…”

Section: Study Populationmentioning

confidence: 99%

Long-term relationships between symptoms of Attention Deficit Hyperactivity Disorder and self-esteem in a prospective longitudinal study of twins

Edbom¹,

Lichtenstein²,

Granlund³

et al. 2006

Acta Paediatrica

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“…The reconstruction of anatomic defects and the placement of continent stomas can improve QoL for patients with urinary tract malformations, promoting the participation of the child/adolescent in social activities, as suggested by the studies of Abd-el-Gawad et al and Merenda et al, with adolescents after continent ileostomy and after Mitrofanoff procedure, respectively [13,14].…”

Section: Discussionmentioning

confidence: 96%

“…Question number 2 evaluates the changes in health condition that occurred in the previous year. It needs to be analyzed separately as it does not belong to any specific domain [12,13].…”

Section: Sf-36mentioning

confidence: 99%

Quality of life of pediatric patients with lower urinary tract dysfunction and their caregivers

Lopes¹,

Ferraro²,

Filho³

et al. 2011

Pediatr Nephrol

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The interest in quality of life (QoL) studies has increased as they are useful instruments to evaluate and compare medical care delivery and the impact of health interventions. The perception of QoL differs among individuals. Its characterization is especially difficult in the pediatric age group as each developmental stage presents specific demands. The prevalence of congenital lower urinary dysfunction is high and their management changes the daily routine of the patients and their families. In a cross-sectional study, we evaluated the QoL of 28 children and adolescents with urinary malformations and their caregivers using the Autoquestionnaire Qualité de Vie Enfant Imagé (AUQUEI) and Short-Form 36 (SF-36), respectively, and compared the results with 38 healthy control age-paired children/caregivers. Four questions were added to patients' questionnaire to evaluate issues related to their urological management. Our results show lower AUQUEI total scoring in the patients' group (p<0.0213, Fisher's exact test), who also present problems in dealing with social aspects, such as being at classroom, manifest negative feelings in relation to diurnal urinary losses but seem to be well adapted to intermittent urethral catheterization. A tendency for worse QoL scores in the patients' group caregivers was detected in the SF-36 pain and physical limitation domains.

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Health-Related Quality of Life after 5-12 Years of Continent Ileal Urostomy (Kock Reservoir) in Children and Adolescents

Cited by 8 publications

References 16 publications

Resilience and vulnerability among refugee children of traumatized and non-traumatized parents

Resilience and vulnerability among refugee children of traumatized and non-traumatized parents

Long-term relationships between symptoms of Attention Deficit Hyperactivity Disorder and self-esteem in a prospective longitudinal study of twins

Quality of life of pediatric patients with lower urinary tract dysfunction and their caregivers

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