Health Literacy of Parents/Caregivers of Paediatric Surgical Patients

Καμπούρογλου, Γεώργιος; Velonaki, Venetia-Sofia; Pavlopoulou, Ioanna; Kosmopoulos, Marinos; Kouvas, Nikos; Drakou, Eleni; Skoutelis, Nikolaos; Spinos, Dimitrios; Tsagkaris, Stavros; Tsoumakas, Konstantinos

doi:10.4103/ajps.ajps_42_20

Cited by 8 publications

(3 citation statements)

References 15 publications

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“…Regarding age and education, in the geriatric and less educated population, Portugal sees a higher risk of presenting a low health literacy general index [ 22 , 37 ]. Furthermore, a study designed to measure HL levels of parents/guardians of paediatric surgery patients found that high scores of HL were positively associated with the educational level of the parent ( p <0.01) [ 41 ]. Since Lisbon has a growing ageing rate and only about 37% of the population goes higher [ 42 ], the majority of the caregiving population, which is, on average, aged 80 years old, may not have the resources to increase their health literacy.…”

Section: Discussionmentioning

confidence: 99%

Informal Caregivers’ Health Literacy in Lisbon, Portugal: A Profile for Health Promotion Prioritization

et al. 2022

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Health literacy (HL) allows people to access, understand and evaluate health information. Informal caregivers’ levels of HL may impact long-term care outcomes. ‘Informal caregivers’ profile in Lisbon county: a health community approach’ is a nurse-led research project aiming to assess informal caregivers’ health literacy and associated factors in Lisbon county, as well as to foster the development of a local-specific health literacy strategy. A survey to identify a health/social caregiver profile, including questions about HL (HLS-EU-PT), was submitted to a representative sample of carers. Descriptive and bivariate inferential analysis was developed. Informal caregivers’ level of HL was mostly sufficient (n = 99, 38%). More than 60% of caregivers have limited HL regarding health promotion. ‘Access’, ‘Appraisal’ and ‘Use’ are the information processing stages with lower mean scores of HL. Carers with low HL levels appear to be older and to have less education, low knowledge of community resources and decreased wellbeing (p < 0.05). A strategy focused on health promotion-related HL through primary care resources can potentially improve caregivers’ knowledge, competencies and motivation, as well as health system sustainability. Reported HLS-EU-PT scores deserve special attention. Future work should emphasize the role of HL-associated factors and health outcomes for caregivers and cared-for persons.

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Section: Discussionmentioning

confidence: 99%

Informal Caregivers’ Health Literacy in Lisbon, Portugal: A Profile for Health Promotion Prioritization

et al. 2022

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“…However, as the given information is often reported to be overwhelming and inconsistently presented, an improvement in the quality of self-management information has been suggested [ 5 ]. Although the purpose of the information is to support the parents’ use of their health literacy, a study from Greece found that half of the parents showed insufficient levels of health literacy in postoperative care [ 6 ]. Health literacy encompasses a wide-ranging concept that involves an individual’s capacity to access, comprehend, process, and apply health-related information [ 7 ].…”

Section: Introductionmentioning

confidence: 99%

Parental Access to Healthcare following Paediatric Surgery—The Precarious Role of Parents as Providers of Care in the Home

Nilsson,

Hylén,

Kristensson-Hallström

et al. 2023

Children

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Access to healthcare can facilitate parents’ self-management of their children’s care. Healthcare access can be described as consisting of six dimensions: approachability, acceptability, affordability, availability, appropriateness, and aperture. The aim of this study was to analyse these dimensions of healthcare access experienced by parents caring for their children at home following paediatric surgery. The method-directed content analysis, conducted with the six-dimensional framework of access to healthcare as a guide, was used to analyse twenty-two interviews with parents of children treated with paediatric surgery. All six dimensions were represented in the results. Acceptability was the most frequent dimension, followed by appropriateness and approachability. Affordability, availability, and aperture were less represented. Although access to healthcare after paediatric surgery is generally appropriate and approachable, parents may experience insecurity in performing the self-management needed. Complementary forms of information provision, e.g., telemedicine, can be valuable in this regard.

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“…When it comes to the development of HL over time the lack of empirical studies is striking. Previous studies with parents focused on mostly sociodemographic predictors ( Brandstetter, Atzendorf et al, 2020 ; de Buhr & Tannen, 2020 ; Kampouroglou et al, 2021 ) and health outcomes of HL ( DeWalt & Hink, 2009 ; Firmino et al, 2018 ) or tested interventions which foster HL ( Khan et al, 2018 ; Morrison et al, 2013 ; Peyton et al, 2019 ). Therefore, it is important to discover the underlying processes of HL development in parents and what factors can positively influence these changes.…”

mentioning

confidence: 99%

Development of Mothers' Health Literacy: Findings From the KUNO-Kids Study

Pawellek¹,

Köninger²,

Melter³

et al. 2023

HLRP: Health Literacy Research and Practice

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Background and Objective: The aim of this study was to analyze the longitudinal development of health literacy (HL) in a large cohort of new mothers in Germany and to investigate which determinants are associated with the initial HL level and with change over time. Methods: Longitudinal data from 1,363 mothers participating with their child in the KUNO-Kids Health Study was used; data were collected at birth of the child (baseline), after 6 and 12 months, using interviews and self-report questionnaires. The HL of mothers was assessed with the health care scale of the European Health Literacy Survey Questionnaire, which has 16 items on accessing, understanding, appraising, and applying health information in the health care setting. Latent growth curve models were used to analyze average trajectories and predictors of HL in the total sample and in the subgroup of first-time mothers. Key Results: HL values increased from baseline ( M = 35.46, standard deviation [ SD ] = 7.34) over 6 months ( M = 37.31, SD = 7.31) to 12 months ( M = 38.01, SD = 7.41). The increase was statistically significant in the total sample (1.188, standard error [SE] = 0.087, p < .001) and in the subgroup of first-time mothers (1.357, SE = 0.113, p <. 001), with a steeper trajectory for mothers with lower HL at baseline. Several personal and situational variables were associated with HL at baseline (e.g., education, child health) and with its development (e.g., number of children). Conclusion: Overall, new mothers became slightly more health literate during their child's first year of life. However, some groups of mothers could benefit from support in developing HL skills even before childbirth. [ HLRP: Health Literacy Research and Practice . 2023;7(1):e39–e51. ] Plain Language Summary: We investigated how health literacy (that is the ability to find, understand, and apply health information) develops in new mothers in Germany. Mothers told us that this ability slightly improved during the child's first year of life. Some mothers still have difficulties in dealing with health information; these mothers should be supported even before childbirth.

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Health Literacy of Parents/Caregivers of Paediatric Surgical Patients

Cited by 8 publications

References 15 publications

Informal Caregivers’ Health Literacy in Lisbon, Portugal: A Profile for Health Promotion Prioritization

Informal Caregivers’ Health Literacy in Lisbon, Portugal: A Profile for Health Promotion Prioritization

Parental Access to Healthcare following Paediatric Surgery—The Precarious Role of Parents as Providers of Care in the Home

Development of Mothers' Health Literacy: Findings From the KUNO-Kids Study

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