Health information privacy concerns, antecedents, and information disclosure intention in online health communities

Xing, Zhang; Liu, Shan; Xing, Chen; Wang, Lin; Gao, Baojun; Zhu, Qing

doi:10.1016/j.im.2017.11.003

Cited by 309 publications

(234 citation statements)

References 83 publications

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“…Culture not only influences individuals' perceptions of disease, but also has an effect on what individuals may choose to disclose or withhold, to whom to disclose, and their interaction patterns with others. Prior studies about user behaviors in Chinese OHC mainly focus on motivation [21] [22], to investigate why a user is involved in an OHC. The research methodologies depended more on studies such as surveys or interviews.…”

Section: Related Workmentioning

confidence: 99%

“…As such, the users may not have a strong sense of belonging towards this community and, therefore, are less likely to be willing to contribute to it [32]. Reciprocity, which requires informational exchange between the users, especially emphasizing on users' return of the favor specifically to those who have helped them [33], serves as a critical predictor for the users to offer follow-up social support [22], [34] . Therefore, to keep a community healthy, functional, lively, and dynamic, the improvement of the entire Chinese OHCs' environment is expected.…”

Section: Content Descriptionmentioning

confidence: 99%

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An investigation of Social Support Exchange and Communication Patterns among Chinese on Online Discussion Forum

Wang

Tong

Zhu

et al. 2020

Proceedings of the Annual Hawaii International Conference on System Sciences

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Online Health Communities (OHCs), frequently adopted as online discussion forums for online users to communicate on health issues, have been used worldwide. By analyzing a representative breastcancer-related OHC from mainland China-Baidu Discussion Forum, this study attempts to investigate social support exchange and communication patterns through user-generated content by data mining approaches. According to the outcomes, emotional support seeking and providing presents itself to be a more critical theme among Chinese users than other types of social support. In addition, almost half of the users on Baidu Discussion Forum have simple patterns of involvement, and a fairly small proportion of highly active Chinese users are quite influential in shaping the connections of the social support network. Meanwhile, the off-topic discussions which are not directly on health concerns are not frequently touched by Chinese people. This may impact the longevity of both users and threads, and undermine the foundation of OHCs in the long term. The findings have practical implications for researchers and health practitioners targeting on the Chinese population.

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Section: Related Workmentioning

confidence: 99%

Section: Content Descriptionmentioning

confidence: 99%

An investigation of Social Support Exchange and Communication Patterns among Chinese on Online Discussion Forum

Wang

Tong

Zhu

et al. 2020

Proceedings of the Annual Hawaii International Conference on System Sciences

View full text Add to dashboard Cite

show abstract

“…In addition, patients' typology identi cation was based on a set of characteristics [1] we used to assign patients to homogeneous groups [34,43]. Thus, we simultaneously analysed observable characteristics through the stages of the pathway, unobservable characteristics through the perceptions and the lived experiences, and situation-speci c variables through patients role -givers and/or seekers-of informational and/or emotional support on the forum [ 44,45] to identify the patients pro les.…”

Section: Data Collectionmentioning

confidence: 99%

“…This study aims to reach a deeper understanding of patient disparities along the healthcare experience to put forward a patient typology. Our study focuses on a particular category of patient and illness: patient touched by breast cancer and seeking social support on online communities [44,45].…”

Section: Introductionmentioning

confidence: 99%

Investigating the healthcare pathway through patient’s experience and profiles: implications for the breast cancer healthcare providers

Chérif¹,

Verdier

Rochette

2020

Preprint

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Background Healthcare systems are facing many changes. Particularly, patients are more engaged in the care process. The medical perspective of the process is insufficient to provide patients with high quality care and service personalisation. This research presents an attempt to complete this medical perspective through an experiential perspective, especially for chronic diseases such as cancer. We investigated patients’ experiences and profiles to reach a deeper understanding of their needs and expectations when they confront the disease.The objectives of this research were to model the key stages underling the patient pathway and to identify the challenging touch points of the interactions between patients and healthcare providers. Bringing together findings of patient experience, pathway, and profiles would help all the stakeholders involved to develop better practices for the healthcare process.Methods A qualitative observational nethnography on a French specialized forum for breast cancer patients “les Impatientes” was conducted. A total of 967 reviews were collected over a complete year period from all over France. Thematic and lexicometric content analysis were performed according to the experience dimensions, the pathway stages and touch points, as well as the patients’ profiles.Results Data analysis shows that the healthcare pathway experienced by the patients is built around three stages. The discovery stage is closely related to the emotional dimension regarding the patient and physician relationship. The examination stage is characterized by a more technical and informational needs for the types of treatments. The follow-up and survivorship stage illustrates the patients’ need to assess the treatments’ effectiveness and the quality of the follow-up. Moreover, three profiles of patients were identified. The newcomers, the altruists and the autonomous are characterized by different attitudes depending on the stage of the healthcare pathway they were living.Conclusions Our research presents an original modelling of the patient pathway and profiles beyond the medical process. It gives practical tracks to improve the healthcare pathway. Patients expect healthcare providers to integrate and strengthen several challenging touch points in order to create satisfactory patient experiences and high quality service.

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“…As both research streams try to explain antecedents of IS usage behavior, a junction of IS security and privacy research is necessary. Only very few scholars bridged those research streams, e.g., Zhang, et al [8], but further examination seems promising.…”

Section: Introductionmentioning

confidence: 99%

Having Two Conflicting Goals in Mind: The Tension Between IS Security and Privacy when Avoiding Threats

Olt¹,

Wagner²

2020

Proceedings of the Annual Hawaii International Conference on System Sciences

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Despite users of personal IT devices perceive high risks of losing their personal data if their devices get lost or damaged, many are reluctant to use userfriendly online services (i.e., online backups) to recover from such incidents. We suggest that the reason for this denial are information privacy concerns because users need to disclose their personal files to the safeguard provider. As safeguarding services promise to reduce the IS security threat of losing data, individuals are subsequently tensed between two goals: protecting their data against loss (IS security) and their information privacy. To shed light on this goal conflict, our work builds on the theory of goal-directed behavior. Based on a quantitative online survey among 446 participants, we show that privacy concerns impede threat avoidance to prevent data loss. Comparing current users and non-users of online backup services, our results confirm that provider-related privacy concerns are significantly higher for non-users.

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Health information privacy concerns, antecedents, and information disclosure intention in online health communities

Cited by 309 publications

References 83 publications

An investigation of Social Support Exchange and Communication Patterns among Chinese on Online Discussion Forum

An investigation of Social Support Exchange and Communication Patterns among Chinese on Online Discussion Forum

Investigating the healthcare pathway through patient’s experience and profiles: implications for the breast cancer healthcare providers

Having Two Conflicting Goals in Mind: The Tension Between IS Security and Privacy when Avoiding Threats

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