Health Among Caregivers of Children With Health Problems: Findings From a Canadian Population-Based Study

Brehaut, Jamie; Kohen, Dafna; Garner, Rochelle; Miller, Anton R.; Lach, Lucyna; Klassen, Anne F.; Rosenbaum, Peter

doi:10.2105/ajph.2007.129817

Cited by 203 publications

(183 citation statements)

References 43 publications

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“…Provision of care for a child with a disability is a challenging experience for the caregivers (Raina et al, 2005, Brehaut et al, 2009. The role of social support is identified as an important factor in preventing negative consequences of caregiving (Ha et al, 2011).…”

Section: Discussionmentioning

confidence: 99%

“…Cerebral palsy is a permanent disorder of movement and posture and the commonest cause of physical disability in children in many countries (Kriggler 2006, Werner 2006, Rosenbaum 2009). It is caused by non-progressive disturbances to one or more specific areas of the brain, usually occurring during fetal development; before, during, or shortly after birth; or during infancy.…”

Section: Introductionmentioning

confidence: 99%

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A Profile of Children With Cerebral Palsy: Identifying Unmet Needs in Health and Social Care

Fernando¹,

Wannakukoralage²,

Athukorala³

et al. 2016

World Disability &Amp; Rehabilitation Conference

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Provision of care to a child with Cerebral Palsy (CP) requires individualized assessment and management of all associated problems. They need special education and their families need social support to face day-to-day demands of caregiving. We reviewed the characteristics of 375 children with CP attending Teaching Hospital, Karapitiya to identify their health problems and current level of health and social care utilization. Data were collected through questionnaire-based interviews with caregivers or extracted from child's medical records. The results revealed that approximately 2/3 rd of the children had spastic quadriplegic CP and 54% had some co-morbidity. The majority (30.9%) had 3-4 functional problems. Problems with mobility (77.6%), social activities of daily living (69.3%), bladder/bowel function (70.4%) and speech (57.9%) were the common functional problems. Learning difficulties were reported in 29.3%. Nearly 17% had behavioural and emotional problems. Approximately 98% of the children received physiotherapy. Despite higher numbers having problems with speech and activities of daily living, only 48% received speech therapy and less than 10% received occupational therapy. Among pre-school and school age children, over 70% had never attended school. Only 17.2% of school attendees received special education. Although nearly 70% was from rural, low socio-economic backgrounds, only 12.8% received any form of external financial support. We conclude that children with CP and their families have many unmet needs in the areas of therapy, special education and social support. These needs should be addressed adequately in developing long-term care plans for children with CP, in order to achieve better outcomes.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

A Profile of Children With Cerebral Palsy: Identifying Unmet Needs in Health and Social Care

Fernando¹,

Wannakukoralage²,

Athukorala³

et al. 2016

World Disability &Amp; Rehabilitation Conference

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“…Long-term morbidities include cerebral palsy, cognitive defects, and social and behavioral problems [5], in addition to the economic burden on the family and the country.…”

Section: Incidence Of Preterm Labormentioning

confidence: 99%

Twin and Preterm Labor: Prediction and Treatment

Aboulghar

Islam

2013

Curr Obstet Gynecol Rep

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Twin pregnancies are increasing. Preterm birth is a major health problem with high incidence all over the world. It is known to have a higher incidence in twin pregnancies as well as being higher in IVF/ICSI pregnancies. Prediction of preterm birth in twins through transvaginal cervical length measurement and vaginal fetal fibronectin measurement are good and well-documented methods. However, this could not be applied to IVF pregnancies. Prevention of preterm birth by administration of vaginal natural progesterone or IM synthetic progesterone injections is not effective in twins. The situation was similar with administration of progesterone to IVF twin pregnancies. Prophylactic cerclage for prevention of preterm birth in twins resulted in an increase of the incidence of preterm birth. Tocolytics also are ineffective, although nifedipine may have a role in treatment of threatened preterm birth in twins.

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“…The long-term care of children with complex needs places a strain on their families. It is not uncommon to find high levels of stress in the caregivers and other family members which results in depression, poor physical health (Brehaut et al, 2009), social isolation, increased financial strain (Kuhlthau et al, 2005), uncertainty about the future, and fatigue (Sullivan-Bolyai, Knafl, Sadler, & Gillis, 2003).…”

Section: Families With Children With Special Health Care Needsmentioning

confidence: 99%

“…Eighty-five percent of CSHCN experience one or more functional limitations in daily living and 28% of CSHCN have 4 or more functional limitations (HHS, 2007). Caring for special needs children increases family stress, including physical and psychological changes (Brehaut, Kohen, Garner, Miller, Lach, Klassen, & Rosenbaum, 2009), financial difficulties (Kuhlthau, Hill, Yucel, & Perrin, 2005), unmet needs (Inkelas, Raghawavan, Larson, Kuo, & Ortega 2007), and concerns for their child's future due to their child's medical needs.…”

Section: Introductionmentioning

confidence: 99%

Children with Special Health Care Needs: Comparison of the Effects of Home Care Setting, Prescribed Pediatric Extended Care Setting, and Long-Term Care Setting on Child and Family Health Outcomes and Health Care Service Use

Caicedo¹

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Health Among Caregivers of Children With Health Problems: Findings From a Canadian Population-Based Study

Cited by 203 publications

References 43 publications

A Profile of Children With Cerebral Palsy: Identifying Unmet Needs in Health and Social Care

A Profile of Children With Cerebral Palsy: Identifying Unmet Needs in Health and Social Care

Twin and Preterm Labor: Prediction and Treatment

Children with Special Health Care Needs: Comparison of the Effects of Home Care Setting, Prescribed Pediatric Extended Care Setting, and Long-Term Care Setting on Child and Family Health Outcomes and Health Care Service Use

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