Having a baby: some disabled women's reproductive experiences

Thomas, Carol; Curtis, Penny

doi:10.1016/s0266-6138(97)80007-1

Cited by 43 publications

(41 citation statements)

References 4 publications

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“…This deficit has been identified by other authors (such as Begley et al, 2009;Kaiser, Reid & Boschen, 2012;Mitton, Treharne, Hale, Williams & Kitas, 2007;Thomas & Curtis, 1997) and may hamper the opportunity for disabled women to be given appropriate care. It is clear that midwives cannot be specialists in all the kinds of impairment that may affect pregnancy, and so it is important that in such situations they liaise and work with other health professionals to ensure that the woman receives care tailored to her needs.…”

Section: Discussionmentioning

confidence: 76%

“…For first time mothers particularly, lack of experience and knowledge may limit their ability to anticipate, plan and prepare for what is ahead. Therefore the relationship between the mother and her maternity service provider and other health providers needs to be carefully negotiated and discussed, with the providers recognising that disabled women want to receive care that is centred on their needs and allows them to have control, supported by the expertise of the 'practitioner partner/s' (Clarke, 2009;Curtis, 1997;Kaiser A, Reid D, Boschen, 2012, Mitton, Treharne, Hale, Williams & Kitas, 2007Thomas &). This can contribute to mothers having better quality of care and a positive birth experience (Kayes, McPherson, 2012;McPherson, Headrick & Moss, 2001;Smeltzer, 2007;Walsh Gallagher, Sinclair, Conkey, 2012).…”

Section: Discussionmentioning

confidence: 99%

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Taking It Into Account: Caring for Disabled Mothers During Pregnancy and Birth

Payne¹,

B²,

Roy³

et al. 2014

Int J Childbirth

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BackgroundAlthough more disabled women are pursuing motherhood over time, little is known about their needs and experiences in achieving this goal. MethodsA three-phase study was designed with the aim of identifying ways for services to be more responsive for women living with physical or sensory impairment during and after pregnancy. This paper draws on the qualitative phases of a three-part mixed method study, which involved individual and focus group interviews with the women and maternity and child health practitioners ResultsSixty-two mothers with either a physical or a sensory impairment, and 28 health practitioners participated in the study. Three themes were identified in relation to the current approaches to service provision: that the women were often responsible for educating the practitioners about their impairment; they often encountered disabling environments and; it was not uncommon for them to also encounter disabling attitudes from others. Strategies suggested by our participants to improve the provision of maternity services were for women's impairments to be taken into account in the structure and process of service provision, and for practitioners to problem solve and think ahead of how to meet the needs of disabled mothers. ConclusionThe need to take the woman's impairment into account was an overarching issue and strategy identified by both women and practitioners. This consideration has relevance not just at the practitioner/women interaction level but also for educational, structural service provision and policy levels.2

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Section: Discussionmentioning

confidence: 76%

Section: Discussionmentioning

confidence: 99%

Taking It Into Account: Caring for Disabled Mothers During Pregnancy and Birth

Payne¹,

B²,

Roy³

et al. 2014

Int J Childbirth

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“…Thomas ve arkadaşlarının 1997 yılında yaptığı çalışmada engelli kadınların doğum hizmetlerine erişimlerinin yetersiz olduğu, bilgi ihtiyaçlarının karşılanmadığı ve sağlık profesyonelleri ve sosyal hizmet çalışanlarından yetersiz veya uygunsuz 'yardım' alma deneyimi yaşadıkları tespit edilmiştir (Thomas & Curtis, 1997). Gibson ve arkadaşlarının yaptığı çalışmaya göre engellilerin sağlık hizmetlerine ulaşımını engelleyen temaların birincisi sağlık hizmet sistemi, ikincisi varsayım, tutum, ve ayrımcı uygulamalar, üçüncüsü cinsel sağlık ve üreme sağlığı için yetersiz hizmetlerdir (Gibson & Mykitiuk, 2012).…”

Section: Discussionunclassified

“…Ayrıca tüm bu sorunların yanında, engelli kadınların cinsel sağlık ve üreme sağlığı alanında yetersiz hizmetlerden dolayı sağlık hizmetlerine erişimde zorlandıkları belirtilmektedir (Patage et al, 2015;Gibson & Mykitiuk, 2012;Thomas & Curtis, 1997;Morrison et al, 2015).…”

Section: Introductionunclassified

Experiences of midwifery students, about to give care for women with disability<p>Ebelik öğrencilerinin engelli kadınlara bakım verme deneyimleri

2018

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The research was conducted in order to determine opinion of midwifery students about to feel sufficient and ready for care to women with disabilities and experiences of midwifery students about care for women with disability. Research environment consisted of Manisa Celal Bayar University, Health High School, Department of Midwifery students (n=326). Research sample composed of 223 students can be reached 2nd, 3rd and 4th year (n = 237) with the choice of purposeful sample. İn research, data collection form which was created by researchers was used for collect of data of the research. In the analysis of the data, ıt was used number, percentage and mean values. It was determined that 46.8% of students who met with the disabled woman can not communicate with women with disabilities, 39.4% of communicating students experienced difficulty in establishing communication. It was determined that 96.9% of students did not take courses about disabled women's reproductive health problems, 35.9% of students have information about disabled women's reproductive health problems but 68.8% of students who have information obtained this information from the internet, 86.5% of students was the need for to get information Özet Araştırma ebelik öğrencilerinin engelli kadınlara bakım vermede kendilerini yeterli ve hazır hissetmelerine ilişkin düşüncelerini ve engelli kadınlara bakım verme deneyimlerini belirlemek amacıyla yapılmıştır. Araştırmanın evrenini Celal Bayar Üniversitesi Manisa Sağlık Yüksekokulu Ebelik Bölümü öğrencileri (N=326) oluşturmuştur. Araştırmanın örneklemi ise amaca yönelik örneklem seçimiyle Ebelik Bölümü 2., 3. ve 4. Sınıf öğrencileri (n=237) oluşturmuştur. Araştırmada veri toplama formu, ilgili literatür doğrultusunda araştırmacılar tarafından oluşturulmuştur. Verilerin analizinde sayı, yüzde ve ortalama değerleri kullanılmıştır. Engelli kadın ile karşılaşan öğrencilerin %46.8'inin engelli kadınlar ile iletişim kuramadıkları, iletişim kuranların %39.4'ünün de iletişim kurmakta güçlük yaşadıkları belirlenmiştir. Engelli kadınlar ile karşılaşan öğrencilerin %38.7'sinin bu kadınlara bakım verdikleri ve %45.8'inin bakım verirken güçlük yaşadığı belirlenmiştir. Öğrencilerin %96.9'unun engelli kadınların üreme sağlığı sorunları hakkında ders almadığı, %35.9'unun üreme sağlığı sorunları hakkında bilgisinin olduğu fakat bilgisi olanların %68.8'inin bu bilgiyi internetten edindiği, %86.5'inin bu konuda bilgi alma gereksiniminde olduğu, %91.0'inin eğitim almak

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“…Thomas and Curtis (1997) posit that these barriers infiltrate many layers of society: they are 'attitudinal, institutional and environmental'. Further, Frohmader (2009) explains that these barriers pervade every stage of parenthood, at least for women: 'when they think about having a child, become pregnant, come into contact with maternity and related services and when they become parents'.…”

Section: The Social Modelmentioning

confidence: 99%

Some Parents Are More Equal than Others: Discrimination against People with Disabilities under Adoption Law

Connell

2017

Laws

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Article 23 of the Convention on the Rights of Persons with Disabilities (CRPD) explicitly includes 'the adoption of children' as a right to which people with disabilities are equally entitled. Despite the CRPD having been in force for over nine years, research is yet to consider whether CRPD signatory states have brought their respective adoption regimes in line with their obligations under art 23 of the CRPD. Using the laws of the Australian state of Victoria by way of case study, this article aims to shed light on the difficulties people with disabilities still face when attempting to adopt children. In terms of methodology, this article conducts an interpretive critique of Victoria's adoption law against art 23 of the CRPD, which it interprets mainly through the lens of the social model of disability. Ultimately, this article finds that Victoria's adoption framework closely resembles the adoption regimes of many other CRPD signatories, yet it clearly fails to uphold Australia's obligations under the CRPD. This is both as a result of the words of the legislation as well as their implementation in practice. This article proposes a suite of changes, both legislative and cultural, to bring Victoria's adoption framework in line with art 23, which it hopes will serve as a catalyst for change in other CRPD signatory states.

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Having a baby: some disabled women's reproductive experiences

Cited by 43 publications

References 4 publications

Taking It Into Account: Caring for Disabled Mothers During Pregnancy and Birth

Taking It Into Account: Caring for Disabled Mothers During Pregnancy and Birth

Experiences of midwifery students, about to give care for women with disability<p>Ebelik öğrencilerinin engelli kadınlara bakım verme deneyimleri

Some Parents Are More Equal than Others: Discrimination against People with Disabilities under Adoption Law

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