Haitian, Chinese, Somali, Ethiopian, and Asian/Pacific Islander Perspectives on Research

Foley, Susan M.; Raphael, Renald; Adolphe, Martin; Wu, Joseph H; Tamene, Binyam; Rubin, Carolyn Leung; Yusuf, Abdirahman

doi:10.1542/peds.2010-1466g

Cited by 3 publications

(2 citation statements)

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“…The insights of the community and family members are summarized and presented in 2 response perspectives by community and family members. 4,5 These reflections help frame the experience of communities and families as they express their hopes and fears about research, model development, and community-based investigation. The community leaders share their experiences of dealing with professionals and public-authority representatives.…”

Section: Research Findings and Challengesmentioning

confidence: 99%

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Viewing Services for Children and Youth With Special Health Care Needs Through a Community Lens

Palfrey

Huntington

Yusuf³

et al. 2010

Pediatrics

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Children and youth with disabilities and special health care needs (CYSHCN) represent 13% to 15% of the US population. Their concerns are physical, intellectual, emotional, and social. Frequently, these children and youth contend with multiple, compounded problems. Although the medical, educational, and social systems address the concerns of CYSHCN as high priorities, CYSHCN from traditionally underserved groups continue to face significant barriers to community inclusion. They often do not enjoy the fruits of the new types of health, educational, and social services afforded to other CYSHCN. In this supplement to Pediatrics, we present a compilation of articles from researchers, clinicians, policy makers, medical educators, community-based organizations, and parents. Collectively, these authors ask the question, "How can we break through the persistent barriers that keep CYSHCN from underserved groups from benefiting from community inclusion and community-based services?"Pediatricians and other child-helping professionals are increasingly aware that new approaches including parent-professional partnerships and community-based participatory research can help break down barriers faced by children and families from underserved communities. In the community, new integrated models offer a potential path for improving the health and life experiences of CYSHCN from traditionally underserved communities. In this supplement to Pediatrics, we explore some of the new ways that research projects and service-delivery programs are bringing families, communities, and providers together to review data, question assumptions, follow trends, query results, and suggest modifications in direction. BACKGROUNDIn 1999, the Olmstead decision of the US Supreme Court (Olmstead v L. C. and E. W.) spotlighted the fact that well after the passage of the Americans With Disabilities Act, people with disabilities were encountering persistent barriers to community integration. Although the Olmstead decision related primarily to the concerns of adults with disabilities, it had important implications for children and adolescents, particularly for traditionally marginalized and minority populations. As a direct response to the Olmstead decision, the National Institute on Disability and Rehabilitation Research (NIDRR) identified "children and youth with disabilities and special health care needs from traditionally underserved communities" as a group that had been largely bypassed by many disability service reforms and community-inclusion initiatives. In 2005, to study this issue and to stimulate corrective action, the NIDRR released a request for proposals for a national rehabilitation research and training center focused on issues pertinent to these children and youth.

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Section: Research Findings and Challengesmentioning

confidence: 99%

“…Both of these perspective pieces 4,5 speak to a gradual transformation in which researchers, communities, and families are finding ways that each can contribute to work that is mutually reinforcing and that provides information that can inform practice, teaching, and policy.…”

Section: Research Findings and Challengesmentioning

confidence: 99%

Viewing Services for Children and Youth With Special Health Care Needs Through a Community Lens

Palfrey

Huntington

Yusuf³

et al. 2010

Pediatrics

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A proposed framework for sustainable international partnerships: lessons learned in rural Uganda

Chen

Cruz

Goltz³

et al. 2019

Journal of Global Health Reports

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Back Background ground International non-governmental organizations (NGOs) have widespread experience building health-related programs; however, few studies have examined local stakeholder perceptions of their collaboration and sustainability. Objec Objectiv tive e To describe attitudes and beliefs of five stakeholder groups concerning the building of a healthcare facility in rural Uganda by an international NGO, with the goal of developing a potential framework. Methods Methods A qualitative study was conducted using focus groups, semi-structured interviews, and open-ended questionnaires. The five participating stakeholder groups included: community members, community leaders, healthcare workers, NGO leaders, and representatives from the Ugandan Ministry of Health.

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Facilitating Research and Collaborative Learning in a Somali Community

Clark¹,

Missal²

2017

JCES

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Due to an increasingly diverse world, healthcare researchers should consider collaborative research within a cultural community in order to provide holistic care for all patients. One of the key steps in cultural research is establishing relationships with leaders within that cultural community. Because the Somali group is such a large cultural group in the state of Minnesota, two Caucasian nurse researchers from an academic institution used several methods to connect and build trust within the Somali community in preparation for a study designed to discover and understand the birth experience of immigrant Somali new mothers. Through the process of conducting research within the Somali community, several lessons were learned and a number of surprises were revealed. Following the research, a continued relationship with the community resulted in collaborative learning opportunities. This collaboration is of mutual benefit to healthcare providers and the cultural community.

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Haitian, Chinese, Somali, Ethiopian, and Asian/Pacific Islander Perspectives on Research

Cited by 3 publications

References 0 publications

Viewing Services for Children and Youth With Special Health Care Needs Through a Community Lens

Viewing Services for Children and Youth With Special Health Care Needs Through a Community Lens

A proposed framework for sustainable international partnerships: lessons learned in rural Uganda

Facilitating Research and Collaborative Learning in a Somali Community

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