Haemoglobinopathies and health-care provision for ethnic minorities

Khattab, Ahmed; Rawlings, B Burford; Ali, Ibtisam S

doi:10.12968/bjon.2005.14.15.18601

Cited by 3 publications

(2 citation statements)

References 15 publications

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“…The comments provided by the nurses were illustrative of attitude scores and provide insight into potential foundations for stigmatizations of patients with SCD. Comments support the previously reported healthcare provider concerns about drug-seeking behaviors and addiction in patients with SCD (Khattab, Rawlings, & Ali, 2005; Lattimer et al, 2010). Nurses have a less negative attitude towards patients with SCD when they agree that the patients used pain medication appropriately.…”

Section: Discussionsupporting

confidence: 77%

“…On the contrary, patients with SCD report long delays in receiving pain meds, insufficient treatment of pain, allegations of being a drug seeker, and that providers lack an understanding of SCD (Lattimer et al, 2010). Nurses were reluctant to administer high doses of opioids to patients with SCD experiencing an acute pain crisis because they felt they were contributing to the patient's addiction (Khattab, Rawlings, & Ali, 2005). It is believed that patients with SCD become dependent on pain medications or that they should have a lower pain threshold.…”

Section: Background: Challenges Of Care-seeking For Scdmentioning

confidence: 99%

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Nurses' Attitudes Toward Patients with Sickle Cell Disease: A Worksite Comparison

Jenerette

Pierre-Louis

Matthie³

et al. 2015

Pain Management Nursing

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Background Individuals with sickle cell disease (SCD) have reported being stigmatized when they seek care for pain. Nurse attitudes contribute to stigmatization and may affect patients' response to sickle cell cues, care-seeking, and ultimately patient outcomes. Aim The purpose of this study was to determine if there are significant differences in nurse attitudes towards patients with SCD by worksite- medical-surgical units compared to emergency departments/intensive care units (ED/ICU). Design The study used a cross-sectional, descriptive comparative design. Setting/Participants The sample consisted of 77 nurses (36 nurses from the ED/ICU and 41 nurses from medical-surgical units) who completed an anonymous online survey. Results and Conclusions There were no significant differences in attitudes by worksite with both sites having high levels of negative attitudes towards patients with SCD. Findings suggest that nurses from both worksites need additional education about SCD and care of this vulnerable, patient population.

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Section: Discussionsupporting

confidence: 77%

Section: Background: Challenges Of Care-seeking For Scdmentioning

confidence: 99%

Nurses' Attitudes Toward Patients with Sickle Cell Disease: A Worksite Comparison

Jenerette

Pierre-Louis

Matthie³

et al. 2015

Pain Management Nursing

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Health care provider attitudes toward patients with acute vaso-occlusive crisis due to sickle cell disease: Development of a scale

Ratanawongsa

Haywood

Bediako

et al. 2009

Patient Education and Counseling

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Objective Patients with sickle cell disease (SCD) often perceive negative provider attitudes, which may affect the quality of patient–provider communication and care during vaso-occlusive crises (VOCs). This study investigated the validity and reliability of a scale to measure provider attitudes toward patients with acute VOC. Methods Using a cohort of adults with VOC (September 2006 to June 2007), we administered a 10-item provider questionnaire within 72 h of patient encounters. After factor analysis, we created a 7-item Positive Provider Attitudes toward Sickle Cell Patients Scale (PASS); higher scores indicate more positive attitudes. We assessed internal consistency and evidence of construct validity, exploring bivariate relationships between provider or patient characteristics and the PASS score using multilevel modeling. Results We collected 121 surveys from 84 health care providers for 47 patients. Patients averaged 30.3 years in age, and 60% were women. Among providers, 79% were nurses, and 70% worked in inpatient settings. PASS scores averaged 24.1 (S.D. 6.7), ranged 7–35, and had high internal consistency (Cronbach’s alpha = 0.91). As hypothesized, inpatient vs. emergency department providers (Δ = 4.65, p < 0.001) and nurses vs. other providers (Δ = 0.95, p < 0.001) had higher PASS scores. Higher patient educational attainment (Δ per year = 2.74, p < 0.001) and employment (Δ = 5.62, p = 0.001) were associated with higher PASS scores. More frequent hospitalizations (Δ per episode = −0.52, p < 0.001) and prior disputes with staff (Δ = −7.53, p = 0.002) were associated with lower PASS scores. Conclusion Our findings provide preliminary evidence for the reliability and construct validity of the PASS score in measuring provider attitudes toward patients with VOC. Practice implications Future studies should examine the validity of PASS in other cohorts of patients with SCD and their providers. With further evidence, PASS may prove useful for investigating the impact of provider attitudes on the quality of communication and care provided to these patients.

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Care of patients with haemoglobin abnormalities: history and biology

Khattab

Rawlings²,

Ali³

2006

Br J Nurs

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Haemoglobinopathies refer to a range of genetically inherited disorders of red blood cell haemoglobin and include sickle cell disorders and thalassaemias. They occur most commonly in populations whose ancestors come from Africa, Asia, Mediterranean Islands, and the Middle and Far East. Haemoglobin (Hb) abnormalities (or haemoglobinopathies) are caused by (i) abnormalities of the protein structure; (ii) imbalanced globin chain production owing to reduced rate of synthesis of normal a or b globin chains; or (iii) a combination of the two. This article will focus on the biological basis of sickle cell disorders and will discuss the history and pathology of the conditions.

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Haemoglobinopathies and health-care provision for ethnic minorities

Cited by 3 publications

References 15 publications

Nurses' Attitudes Toward Patients with Sickle Cell Disease: A Worksite Comparison

Nurses' Attitudes Toward Patients with Sickle Cell Disease: A Worksite Comparison

Health care provider attitudes toward patients with acute vaso-occlusive crisis due to sickle cell disease: Development of a scale

Care of patients with haemoglobin abnormalities: history and biology

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