Nurses' Attitudes Toward Patients with Sickle Cell Disease: A Worksite Comparison

Jenerette, Coretta; Pierre-Louis, Bosny; Matthie, Nadine; Yasmeen, Girardeau,

doi:10.1016/j.pmn.2014.06.007

Cited by 38 publications

(28 citation statements)

References 23 publications

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“…Even young adults, in whom unpredictable painful crises may be the norm, may feel inadequate to navigate the healthcare environment and so avoid the healthcare system whenever possible [49] . Nurses in emergency departments, intensive care units and surgical wards are shown to have equally negative attitudes towards persons with SCD [50]. Canadian mothers of babies with SCD describe facing coping challenges as well as stigma experiences which they ascribe to racism and which contribute to their feelings of social isolation [51].…”

Section: Discussionmentioning

confidence: 99%

Stigma and illness uncertainty: adding to the burden of sickle cell disease

et al. 2017

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Section: Discussionmentioning

confidence: 99%

Stigma and illness uncertainty: adding to the burden of sickle cell disease

et al. 2017

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“…Therefore, patients with SCD are dependent on clinicians to believe their reports of pain as credible in order to receive appropriate and timely treatment. Nurses are often the first providers to interact with patients with SCD in emergency departments (ED) and in the inpatient setting (Jenerette, Pierre-Louis, Matthie, & Girardeau, 2015), but receive very little education about SCD in their curriculum.…”

Section: Introductionmentioning

confidence: 99%

“…Negative attitudes towards persons with SCD and the perception that persons with SCD are addicted to opioids are prevalent among healthcare providers (Jenerette et al, 2015; Shapiro, Benjamin, Payne, & Heidrich, 1997) and can result in health-related stigmatization (Jenerette & Brewer, 2010). However, Haywood and colleagues (2011) demonstrated a decrease in negative attitudes immediately after viewing a video of SCD patients describing negative experiences with healthcare providers (Haywood et al, 2011).…”

Section: Introductionmentioning

confidence: 99%

Does Attendance at a Sickle Cell Educational Conference Improve Clinician Knowledge and Attitude Toward Patients with Sickle Cell Disease?

Jenerette

Brewer²,

Silva

et al. 2016

Pain Management Nursing

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Background Sickle cell disease (SCD) is a genetic disease associated with both chronic pain and acute painful events referred to as vaso-occlusive crisis. Individuals suffer from a multitude of medical complications in addition to pain. Patients are often stigmatized as “drug-seeking” and receive inadequate pain management. Aim The purpose of this study was to compare clinicians’ SCD knowledge and attitudes towards patients with SCD, before attending a two-day conference on SCD (T1), to immediately post-conference (T2), and 2 months post-conference (T3). Design A prospective, descriptive survey design was used. Setting/Participants We administered surveys to assess SCD knowledge and clinicians’ attitudes towards patients with SCD at three time points: T1(N=59), T2 (N=38), and T3 (N=30). SCD knowledge was measured using a 20 item survey, and clinicians’ attitudes towards patients with SCD were measured with the General Perceptions about Sickle Cell Patients Scale which included items on four independent sub-scales: positive attitudes, negative attitudes, concern raising behaviors, and red-flag behaviors were administered. We compared changes in knowledge and attitudes scores between T1-T2 and T1-T3. Results and Conclusions Overall, knowledge scores were significantly improved (p<0.001), as well as significantly increased between T1-T2 (p<0.0001), and T1-T3 (p = 0.01). Negative attitudes trended lower over the three time points (p=0.07), but a significant decrease in the negative attitudes score was only noted between T1-T3 (Z=−2.16.17, p=0.03). We conclude attendance at an educational SCD conference was an effective means to improve knowledge and decrease negative attitudes among clinicians. These differences were maintained at 2 months post-conference.

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“…Management of pain in SCD is complicated by race relations in America: whereas SCD primarily affects persons who self-identify as African-American or Latino, groups that are socio-economically disadvantaged and subject to discrimination, health care professionals largely come from non-disadvantaged ethnic groups and backgrounds, and hospitals are powerful institutions. Decisions by those in power and patients' assessments of those decisions may be affected by racial bias and perceptions of racism [26][27][28][29][30][31].…”

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confidence: 99%

Utilization, financial outcomes and stakeholder perspectives of a re-organized adult sickle cell program

et al. 2020

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In 2011 Yale New Haven Hospital, in response to high utilization of acute care services and widespread patient and health care personnel dissatisfaction, set out to improve its care of adults living with sickle cell disease. Reorganization components included recruitment of additional personnel; relocating inpatients to a single nursing unit; reducing the number of involved providers; personalized care plans for pain management; setting limits upon access to parenteral opioids; and an emphasis upon clinic visits focused upon home management of pain as well as specialty and primary care. Outcomes included dramatic reductions in inpatient days (79%), emergency department visits (63%), and hospitalizations (53%); an increase in outpatient visits (31%); and a decrease in costs (49%). Providers and nurses viewed the reorganization and outcomes positively. Most patients reported improvements in pain control and life style; many patients thought the reorganization process was unfair. Their primary complaint was a lack of shared decision-making. We attribute the contrast in these perspectives to the inherent difficulties of managing recurrent acute and chronic pain with opioids, especially within the context of the imbalance in wellness, power, and privilege between persons living with sickle cell disease, predominantly persons of color and poor socioeconomic status, and health care organizations and their personnel.

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Nurses' Attitudes Toward Patients with Sickle Cell Disease: A Worksite Comparison

Cited by 38 publications

References 23 publications

Stigma and illness uncertainty: adding to the burden of sickle cell disease

Stigma and illness uncertainty: adding to the burden of sickle cell disease

Does Attendance at a Sickle Cell Educational Conference Improve Clinician Knowledge and Attitude Toward Patients with Sickle Cell Disease?

Utilization, financial outcomes and stakeholder perspectives of a re-organized adult sickle cell program

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