Guillain-Barre syndrome—patients' and nurses' perspectives

Uprichard, E.; Evans, Sian

doi:10.1016/0266-612x(87)90105-2

Cited by 6 publications

(4 citation statements)

References 8 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Although the sample was small, our findings provide a useful insight into those experiences and nursing knowledge. Our findings are similar to the descriptions presented in autobiographies and case studies (Collins, 1983; Hamill, 1997; Uprichard et al, 1987; Villaire, 1995). For example, McMahon‐Parkes and Cornock (1997) found that patients faced many physical changes and that the duration of the illness can be a traumatic experience.…”

Section: Discussionsupporting

confidence: 91%

“…It is estimated that the worldwide incidence of GBS ranges from 0.6‐1.4 people per 100,000 population annually (Fumihito, 1999). GBS tends to have a higher incidence among males (Anderson, 1992; Farkkila & Penttila, 1992; McMahon‐Parkes & Cornock, 1997; Uprichard, Martin, & Evans, 1987; Wright, 1996; Yarnin & Gordon, 1988).…”

Section: Introductionmentioning

confidence: 99%

“…Many published articles (Farkkila & Penttila, 1992; McMahon‐Parkes & Cornock, 1997; Norrie, 1992; Uprichard, et al, 1987; Villaire, 1995; Wright, 1996; Yarnin & Gordon, 1988) have predominately focused on the medical and nursing interventions that are made in the initial and plateau phases. Steinberg (1997) stated that rehabilitation is the most important type of treatment for GBS patients.…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

The Recovery Phase in Guillain-Barré Syndrome: Moving From Dependency to Independence

Cooke

Orb²

2003

Rehabilitation Nursing

View full text Add to dashboard Cite

In this study, we examined the perspectives of patients with Guillain‐Barré syndrome during their recovery phase. We used a grounded theory approach. Five patients discharged from a major teaching hospital were interviewed; the format was semi‐structured. Data were analyzed through a constant comparative method. We describe the central theme of moving from dependency to independence. There are five phases in the recovery process: experiencing dependency, encountering helplessness, wanting to know more about GBS, discovering inner strength, and regaining independence. Moving from dependency to independence was facilitated by the patients' discovery of their inner strengths. Regaining their independence was facilitated by their strong desire to walk out of the hospital. Patients realized that they had little knowledge about their illness and prognosis; further research in this area would be beneficial.

show abstract

Section: Discussionsupporting

confidence: 91%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

The Recovery Phase in Guillain-Barré Syndrome: Moving From Dependency to Independence

Cooke

Orb²

2003

Rehabilitation Nursing

View full text Add to dashboard Cite

show abstract

“…Our findings also showed that participants felt that their needs were not being met, mainly due to fractured care, lack of continuity and of personalised care. Uprichard and colleagues [22] also highlighted the importance of, and need for, an individualised approach to care for patients with GBS and how such care is essential for reducing the traumatic experience of recovery from such a severe illness.…”

Section: Discussionmentioning

confidence: 99%

Patients’ experiences and perceptions of Guillain-Barré syndrome: A systematic review and meta-synthesis of qualitative research

et al. 2021

View full text Add to dashboard Cite

Background Guillain-Barré syndrome (GBS) is an immune-mediated polyradiculoneuropathy, with an incidence of 1-2/100,000 per year. Its severity is variable, ranging from very mild cases with brief weakness to severe paralysis, leading to inability to breathe independently, or even death. Currently there is limited evidence exploring the experiences of GBS patients. The aim of this study was to review patients’ experiences and perceptions of GBS and its variants at diagnosis, discharge and during recovery, by conducting a systematic review and thematic meta-synthesis of qualitative studies of patients’ experiences of GBS (and its variants). Methods We searched twelve electronic databases, supplemented with internet searches and forward and backward citation tracking from the included studies and review articles. Data were synthesised thematically following the Thomas and Harden approach. The CASP Qualitative Checklist was used to assess the quality of the included studies of this review. Results Our search strategy identified a total of 5,282 citations and after removing duplicates and excluding citations based on title and abstract, and full-text screening, five studies were included in the review and meta-synthesis; all included studies were considered of acceptable quality. Through constant discussions and an iterative approach, we developed six analytical themes following a patient’s journey from suspecting that they had a health problem, through to being hospitalised, experiencing ongoing difficulties, slowly recovering from GBS, adjusting to their new circumstances, and re-evaluating their lives. Conclusions Despite the variety of experiences, it was evident from all included studies that being diagnosed with and surviving GBS was a life-changing experience for all participants. Trial registration Protocol was registered (CRD42019122199) on the International Prospective Register of Systematic Reviews (http://www.crd.york.ac.uk/PROSPERO).

show abstract

What the patients say

Heath

1989

Intensive Care Nursing

View full text Add to dashboard Cite

Guillain-Barre syndrome—patients' and nurses' perspectives

Cited by 6 publications

References 8 publications

The Recovery Phase in Guillain-Barré Syndrome: Moving From Dependency to Independence

The Recovery Phase in Guillain-Barré Syndrome: Moving From Dependency to Independence

Patients’ experiences and perceptions of Guillain-Barré syndrome: A systematic review and meta-synthesis of qualitative research

What the patients say

Contact Info

Product

Resources

About