German Version of the Pediatric Incontinence Questionnaire for Urinary Incontinence Health Related Quality of Life

Abstract

The German version of the Pediatric Incontinence Questionnaire is a valid and reliable outcome measure to assess health related quality of life in children and adolescents with urinary incontinence.

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“…Patients' HRQOL, as measured with the PEMQOL‐SF child impact scale, did not show significant associations with age, gender, diagnostic subgroup, symptom severity, comorbid constipation or fecal incontinence. This result is in contrast to recent studies on HRQOL in children with urinary incontinence, which showed impaired HRQOL in older children, children with comorbid bowel problems, children with increased frequency of daytime incontinence episodes and children with combined daytime/nighttime incontinence 19,20. The above‐mentioned findings also do not match the findings of Petersen et al,29 who found a significant association between increased symptom severity and reduced patients' HRQOL.…”

“…Concerning the psychometric properties of the PinQ, BOWER et al reported a two‐factored structure with a 5‐item intrinsic scale (Cronbach's alpha α = 0.91) and the 16‐item extrinsic scale (Cronbach's alpha α = 0.72) 15. This structure could not be replicated in a study of BACHMANN et al who found a factorial model with only one scale 19…”

“…Although the PinQ has been evaluated in some studies,15,16,18,19 to date only one study on psychometric properties of the PEMQOL‐SF has been published,17 and data on the relationship between PEMQOL‐SF scores and clinical symptoms (e.g., frequency of incontinence, type of incontinence) are still scarce. This lack of data is regrettable, as HRQOL evaluation can provide clinically highly relevant information in diagnostic assessment, decision‐making and appraisal of therapeutic interventions20 and thus should be included in diagnostic assessments of pediatric patients with urinary incontinence 21…”

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“…This result is in contrast to recent studies on HRQOL in children with urinary incontinence, which showed impaired HRQOL in older children, children with comorbid bowel problems, children with increased frequency of daytime incontinence episodes and children with combined daytime/nighttime incontinence. 19,20 The above-mentioned findings also do not match the findings of Petersen et al, 29 who found a significant association between increased symptom severity and reduced patients' HRQOL. Additionally, the lack of association between HRQOL and clinical symptoms highly challenges the validity of the PEMQOL-SF for clinical use, as it is desirable that HRQOL instruments used in clinical practice reflect different clinical situations through dissimilar HRQOL scores, as, for example, in the study of Natale et al, 14 who found differing levels of HRQOL between children with overactive bladder and voiding postponement.…”

“…15 This structure could not be replicated in a study of BACHMANN et al who found a factorial model with only one scale. 19 DISABKIDS DCGM-10/-12 Questionnaire…”