Clinical evaluation of the short‐form pediatric enuresis module to assess quality of life

Abstract

The psychometric properties of the PEMQOL-SF were good for the family impact scale, but poor for the child impact scale. In its present form, the PEMQOL-SF cannot be recommended for routine clinical use. Nevertheless, a reduction of questionnaire items could lead to better psychometric properties.

Applying a developmental approach to quality of life assessment in children and adolescents with psychological disorders: challenges and guidelines

“…As shown in Table 2, studies examining the QL of children with the following diagnoses of mental disorder were included: attention deficit hyperactivity disorder (ADHD; n = 27) [18; 32-57]; autism spectrum disorder (n = 10) [58][59][60][61][62][63][64][65][66][67]; Gilles de la Tourette syndrome or other tic disorder (n = 6) [68][69][70][71][72][73]; bipolar spectrum disorders (n = 5) [74][75][76][77][78]; enuresis (n = 3) [79][80][81]; separation anxiety disorder and anxiety disorders (n = 3) [82][83][84]; eating disorders (n = 2) [85][86]; major depressive disorder (n = 2) [87][88]; conduct disorder (n = 1) [89]; obsessive-compulsive disorder (n = 1) [24]; and learning disabilities (n = 1) [90]. Five studies included diverse diagnoses of a mental disorder [13-14, 23, 91-92].…”

“…The reviewed studies were conducted in several countries, including the US (n = 26) [24, 32-33, 37, 43, 45-47, 51, 53, 59-60, 63-64, 67-68, 72-74, 76-78, 86-87, 89, 91]; Germany (n = 6) [40,44,48,54,79,92]; Switzerland (n = 3) [23, 82,84]; the Netherlands (n = 4) [13,38,52,66]; Australia (n = 3) [14,[49][50]; Turkey (n = 3) [41,61,80]; Brazil (n = 2) [39,83]; Spain (n = 2) [36,85]; Italy (n = 2) [70,71]; Taiwan (n = 2) [55][56]; Iran (n = 1) [42]; UK (n = 1) [69]; Norway (n = 1) [35]; Hungary (n = 1) [88]; France (n = 1) [58]; Canada (n = 1) [18]; Japan (n = 1) [81]; Greece (n = 1) [90]; and Mexico (n = 1) [57]. Four studies were conducted in two or more countries [34,62,65,75].…”

A randomised, double-blind, placebo-controlled clinical trial assessing the efficacy of bedtime buddy® for the treatment of nocturnal enuresis in children

“…The PinQ is a tool used to measure urinary incontinence Quality of Life in children with voiding dysfunction. It has been reliably tested and validated in numerous trials since its conception [2, 14, 39]. Permission has been granted from the author for its use in this trial.…”

“…The PinQ will be completed by both parent and child on separate data collection forms as it has been shown that there has been inconsistencies in proxy and child answers when filling in the questionnaire [13]. It is completed by both parent and child as prior research has highlighted differences in reporting with proxy and self-reporting in the same questionnaire [14]. Children as young as 5 years old have been shown to reliably and validly self-report on their health-related quality of life in questionnaires when given the opportunity with an age-appropriate instrument [40].…”

“…A diagnosis of NE can be socially disruptive and psychologically stressful for a child [2, 10]. Quality of life indicators have been explored in the past to determine the impact of NE on the life of children [9, 13, 14]. The psychological impact of bladder dysfunction has been understood to be due to the urinary symptoms themselves [13].…”