Gastrostomies Preserve But Do Not Increase Quality of Life for Patients and Caregivers

Kurien, Matthew; Andrews, Rebecca E.; Tattersall, Rachel; McAlindon, Mark E.; Wong, E F; Johnston, Alex J.; Hoeroldt, Barbara; Dear, K L; Sanders, David S.

doi:10.1016/j.cgh.2016.10.032

Cited by 23 publications

(41 citation statements)

References 39 publications

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“…Care for PEG patients is a complicated process with many very important aspects that need to be taken into consideration. It is reported that PEG‐related training does not meet patients’ and caregivers’ information requirements . The nutrition support unit where the study was carried out educates PEG patients and their relatives about the PEG via PEG care booklets before discharge.…”

Section: Discussionmentioning

confidence: 99%

“…It is reported that PEG-related training does not meet patients' and caregivers' information requirements. 24 The nutrition support unit where the study was carried out educates PEG patients and their relatives about the PEG via PEG care booklets before discharge. In the study, caregivers stated that the PEG training offered by the hospital was inadequate and too short and that the training should be hands-on.…”

Section: Discussionmentioning

confidence: 99%

“…The inclusion criteria were having no communication and mental problems, having cared for a PEG patient for at least 3 months, and being above 18 years of age. Caregivers and PEG patients are accustomed to tube‐related applications and are able to identify problems that they encounter approximately 3 months after PEG tube insertion . Therefore, in accordance with the criteria of purposive sampling, patients who had been discharged from hospital at least 3 months earlier and their caregivers were included in the study.…”

Section: Methodsmentioning

confidence: 99%

“…Caregivers and PEG patients are accustomed to tube-related applications and are able to identify problems that they encounter approximately 3 months after PEG tube insertion. 24 Therefore, in accordance with the criteria of purposive sampling, patients who had been discharged from hospital at least 3 months earlier and their caregivers were included in the study. Caregivers were informed about the purpose, procedure, and confidentiality of the study prior to participation.…”

Section: Samplingmentioning

confidence: 99%

See 3 more Smart Citations

Home Percutaneous Endoscopic Gastrostomy Feeding: Difficulties and Needs of Caregivers, Qualitative Study

Sezer

Köken

Çelik

2019

J Parenter Enteral Nutr

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Background Percutaneous endoscopic gastrostomy (PEG) may cause complications when adequate and appropriate care is not provided. To avoid these complications, caregivers’ experiences and practices must be considered. Methods This study used the phenomenological qualitative research method. Twenty‐one caregivers underwent in‐depth interviews and were observed for PEG practices. Interview and observational data were analyzed using content analysis. Results This study revealed 8 themes and 24 subthemes under 3 categories of PEG management, social‐emotional change of the caregivers, and expectations, and it was observed that caregivers made errors in stoma care, tube feeding, and medication administration through the PEG tube. Conclusion Results indicated that comprehensive and practical discharge training, and home care and counseling services should be provided to effectively address the challenges faced by caregivers of patients with PEG.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Samplingmentioning

confidence: 99%

See 2 more Smart Citations

Home Percutaneous Endoscopic Gastrostomy Feeding: Difficulties and Needs of Caregivers, Qualitative Study

Sezer

Köken

Çelik

2019

J Parenter Enteral Nutr

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“…PEG tubes do not increase quality of life[4], and PEG placement is associated with procedure-related complications in up 17% of cases. Major life-threatening complications occur in up to 3%[5,6].…”

Section: Introductionmentioning

confidence: 99%

Race Differences in Gastrostomy Tube Placement After Stroke in Majority-White, Minority-Serving, and Racially Integrated US Hospitals

2018

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We sought to determine individual and system contributions to race disparities in percutaneous endoscopic gastrostomy (PEG) tube placement after stroke. Ischemic stroke admissions were identified from the Nationwide Inpatient Sample between 2007 and 2011. Hospitals were categorized based on the percentage of ethnic/racial minority stroke patients (< 25% ethnic/racial minorities ["majority-white hospitals"], 25-50% ethnic/racial minorities ["racially integrated hospitals"], or > 50% ethnic/racial minorities ["minority-serving hospitals"]). Logistic regression was used to evaluate the association between ethnicity/race and PEG utilization within and between the different hospital strata. Among 246,825 stroke admissions, patients receiving care in minority-serving hospitals had higher odds of PEG compared to patients in majority-white hospitals, regardless of individual patient race (adjusted odds ratio [OR] 1.24, 95% CI 1.12-1.38). Ethnic/racial minorities had higher odds of PEG than whites in any hospital strata; however, this discrepancy was largest in majority-white hospitals (OR 1.62, 95% CI 1.48-1.76), and smallest in minority-serving hospitals (OR 1.22, 95% CI 1.11-1.33; p for interaction < 0.001). Ethnic/racial minority patients had similar odds of PEG in any hospital strata, while white patients had increasing odds of PEG in racially integrated and minority-serving compared to majority-white hospitals (OR 1.28, 95% CI 1.15-1.43 in racially integrated, and OR 1.39, 95% CI 1.23-1.57 in minority-serving, compared to majority-white hospitals, p for trend < 0.001). The likelihood of PEG after ischemic stroke was increased in minority-serving compared to majority-white hospitals. White patients had higher odds of PEG in minority-serving compared to majority-white hospitals, indicating a systemic difference in PEG placement across hospitals.

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Predicting dysphagia in children undergoing surgery for posterior fossa tumors

et al. 2020

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Gastrostomies Preserve But Do Not Increase Quality of Life for Patients and Caregivers

Cited by 23 publications

References 39 publications

Home Percutaneous Endoscopic Gastrostomy Feeding: Difficulties and Needs of Caregivers, Qualitative Study

Home Percutaneous Endoscopic Gastrostomy Feeding: Difficulties and Needs of Caregivers, Qualitative Study

Race Differences in Gastrostomy Tube Placement After Stroke in Majority-White, Minority-Serving, and Racially Integrated US Hospitals

Predicting dysphagia in children undergoing surgery for posterior fossa tumors

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