Functioning and Disability Profile of Children with Microcephaly Associated with Congenital Zika Virus Infection

Ferreira, Haryelle Náryma Confessor; Schiariti, Verónica; Regalado, Isabelly Cristina Rodrigues; Sousa, Klayton Galante; Pereira, Silvana Alves; Fechine, Carla Patrícia Novaes dos Santos; Longo, Elson

doi:10.3390/ijerph15061107

Cited by 61 publications

(83 citation statements)

References 39 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…However, six months after, the number of mothers who interrupted breast milk supply to infants was expressive. A previous study has shown that 47.1% of children with microcephaly associated with congenital zika virus infection were exclusively breastfed [21]; a result higher than 36.6% identified in the present investigation. erefore, the hypothesis adopted in this study that children affected by this condition will present changes in the exclusive breastfeeding pattern was confirmed.…”

Section: Discussioncontrasting

confidence: 69%

Breastfeeding Behavior in Brazilian Children with Congenital Zika Syndrome

Cavalcanti

Aguiar

Melo

et al. 2020

International Journal of Dentistry

View full text Add to dashboard Cite

Congenital Zika Syndrome (CZS) is a condition that has emerged only recently, bringing together multiple changes, including significant changes in the stomatognathic system, which may compromise sucking behavior and consequently the breastfeeding practice. e aim of this study was to investigate the breastfeeding behaviors in children with CZS. A longitudinal study was carried out in two reference centers in Northeastern Brazil. e nonprobabilistic sample consisted of 79 children diagnosed with physical, neurological, and behavioral alterations compatible with CZS. Information regarding the child, nutritive, and nonnutritive sucking behavior and changes related to the sucking reflex was collected. Data were presented through descriptive and inferential statistics. In the bivariate analyses, the chi-squared test was used and 5% significance level was adopted. e majority of children had severe microcephaly (59.7%). Breastfeeding was performed at birth in most of CZS children (89.9%) but only 36.6% of them presented exclusive breastfeeding in the six months of life. Bottle feeding and pacifier were used in 89.9% and 55.7%, respectively. Sucking and swallowing difficulties and occurrence of gastroesophageal reflux were observed in 27.8%, 48.0%, and 29.2% of children, respectively. Early weaning was associated with bottle feeding (p � 0.005) and pacifier sucking (p � 0.003). Although breastfeeding practice at birth constitutes a behavior adopted by most of mothers, adherence to this exclusive habit until the first six months of life was low since the children presenting a large number of comorbidities with direct interference in the suction reflex, sucking, and swallowing difficulty.

show abstract

Section: Discussioncontrasting

confidence: 69%

Breastfeeding Behavior in Brazilian Children with Congenital Zika Syndrome

Cavalcanti

Aguiar

Melo

et al. 2020

International Journal of Dentistry

View full text Add to dashboard Cite

show abstract

“…Translating clinical information into ICF qualifiers in Brazil: The qualifiers to obtain the functional profile were generated through sensitive, reliable and validated instruments in Brazil [ 34 ], such as: Pediatric Evaluation of Disability Inventory (PEDI); Gross Motor Function Measure (GMFM—88); Visual Analog Scale (EVA); Infant Sleep Questionnaire (ISQ); Modified Ashworth Scale and Goniometry. Most of these measures are recommended in the ICF-based toolbox of measures aligning with the content of the CP core sets [ 35 ].…”

Section: Methodsmentioning

confidence: 99%

Implementation of the International Classification of Functioning, Disability, and Health (ICF) Core Sets for Children and Youth with Cerebral Palsy: Global Initiatives Promoting Optimal Functioning

Schiariti

Longo

Shoshmin

et al. 2018

IJERPH

Self Cite

View full text Add to dashboard Cite

Background: The International Classification of Functioning, Disability, and Health (ICF) Core Sets for children and youth with cerebral palsy (CP) offer service providers and stakeholders a specific framework to explore functioning and disability for assessment, treatment, evaluation, and policy purposes in a global context. Objective: Describe global initiatives applying the ICF Core Sets for children and youth with CP, with a focus on contributions to clinical practice and challenges in their implementation. Methods: This is a descriptive cross-sectional study. Ongoing initiatives applying the ICF Core Sets for CP in Russia, Poland, Malawi, and Brazil are included. Results: The main contributions of applying the ICF Core Sets for children and youth with CP include: (1) an objective description of abilities and limitations in everyday activities; (2) a consistent identification of facilitators and barriers influencing functioning; (3) a practical communication tool promoting client-centered care and multidisciplinary teamwork; and, (4) a useful guideline for measurement selection. The main challenges of adopting the ICF Core Sets are related to lack of ICF knowledge requiring intense training and translating results from standardized measures into the ICF qualifiers in a consistent way. Conclusions: Global initiatives include research and clinical applications at the program, service and system levels. The ICF Core Sets for CP are useful tools to guide service provision and build profiles of functioning and disability. Global interprofessional collaboration, capacity training, and informatics (e-records) will maximize their applications and accelerate adoption.

show abstract

“…In addition, several podcasts have been prepared in Spanish and Portuguese (https://www.youtube.com/playlist?list=PLyMdWRhymqKDjyWzdfkVimSKmBt0jcMrE) commenting on key topics highlighted in DMCN Virtual Issues such as participation, activity and exercise therapies, and the transition to adulthood. Our members reported that having scientific material accessible in their own language helps in overcoming ‘environmental barriers’ in scientific publishing; (2) ALDID members are leading several projects in the region, applying ICF‐based tools for childhood‐onset disabilities such as cerebral palsy, autism spectrum disorder, and attention‐deficit/hyperactivity disorder, as well as ongoing work describing profiles of functioning and disability of children affected by congenital Zika virus in northern Brazil; and (3) Guided by the ICF, ALDID colleagues in Uruguay are creating care pathways to provide standardized evidence‐based services and interventions for young children in the region (the project is endorsed by UNICEF, Pan American Health Organization, and the Ministry of Health in Uruguay).…”

mentioning

confidence: 99%