Implementation of the International Classification of Functioning, Disability, and Health (ICF) Core Sets for Children and Youth with Cerebral Palsy: Global Initiatives Promoting Optimal Functioning

Schiariti, Verónica; Longo, Elson; Shoshmin, Alexander; Kozhushko, Ludmila Alexandrovna.; Besstrashnova, Yanina; Krol, M van Driel; Campos, Taynah Neri Correia; Ferreira, Haryelle Náryma Confessor; Verissimo, Cláudia; Shaba, Daniel; Mwale, Matilda; Amado, Sandra

doi:10.3390/ijerph15091899

Cited by 73 publications

(59 citation statements)

References 34 publications

(40 reference statements)

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“…On the other hand, Sciariti et.al. have proposed electronic implementation of International Classification of Functioning, Disability, and Health (ICF) Core Sets for children and youth with CP, arguing that ICF Core Sets for CP will be highly practicable in management of health services and in building profiles of functioning and disability for patients worldwide [60]. By recognising the needs of a child with CP and evaluating his/her functioning in the society it will be possible to facilitate management of services and to relieve the caregivers.…”

Section: Discussionmentioning

confidence: 99%

Assessment of Anxiety and Depression in Polish Primary Parental Caregivers of Children with Cerebral Palsy Compared to a Control Group, as well as Identification of Selected Predictors

Gugała

Penar-Zadarko

Pięciak-Kotlarz

et al. 2019

IJERPH

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Background: Taking care of a child with Cerebral Palsy (CP) may be linked with adverse effects in the parents’ physical and mental health. The causes of anxiety and depression symptoms associated with childcare are still not fully understood. Aim: To assess the intensity of anxiety and depression symptoms in parents of children with CP compared to a control group and to identify selected mental health predictors. Design and Methods: Data were collected from 301 respondents, including 190 parents of children with CP (study group) and 111 parents taking care of children developing normally (control group). Intensity of anxiety and depression was rated using the Hospital Anxiety and Depression Scale (HADS) scale. Gross Motor Function Classification System for Cerebral Palsy (GMFCS), Sense of Coherence Scale (SOC-29), Berlin Support Social Scales (BSSS) scales and a specially designed questionnaire were used to assess the predictors. The investigated variables included the children’s and the parents’ characteristics, as well as environmental factors. The analyses applied Spearman’s rank correlation coefficient, M(SD) as well as multiple regression. Results: The level of anxiety and depression was clearly higher in the parents of children with CP–the mean levels of anxiety and depression in the study group and the controls amounted to 8.1 vs. 4.7 and 6.8 vs. 3.7, respectively. The factors associated with intensity of anxiety and depression in the parents of children with CP included lack of social support, mainly perceived and received support, unsatisfying parental health status, poor economic status of the family, as well as difficult living conditions, sense of coherence, loneliness, the parent’s gender, and the child’s intellectual disability. Conclusions: Identification of significant anxiety and depression predictors, understood as modifiable factors, should be considered in determining and planning comprehensive support for a child with CP and his/her primary parental caregiver.

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Section: Discussionmentioning

confidence: 99%

Assessment of Anxiety and Depression in Polish Primary Parental Caregivers of Children with Cerebral Palsy Compared to a Control Group, as well as Identification of Selected Predictors

Gugała

Penar-Zadarko

Pięciak-Kotlarz

et al. 2019

IJERPH

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“…The World Health Organization (WHO) has two frameworks derived from the biopsychosocial model and related to comprehensive assessment of children's health and development: the International Classi cation of Functioning, Disability and Health for Children and Youth(ICF-CY) [15] and Nurturing Care [16]. The ICF-CY includes "health conditions," "body structures and functions," "activities and participation," "environmental (contextual)" and "personal" factors.The ICF-CY was a WHO approved "derived" classi cation but the two have now been merged and are referred to as ICF-CY to addressall aspects of functioning across the lifespan.Tools based on ICF-CY have involved children with disabilities [16], autism [17], cerebral palsy [18], and chronic illness [19]. The recently launched WHO Nurturing Care Framework [20] for young children includes "good health," "adequate nutrition," "responsive caregiving," "opportunities for early learning," and "security and safety."…”

Section: Introductionmentioning

confidence: 99%

WITHDRAWN: Applicability of a Tool for Comprehensive Assessments: the Expanded Guide for Monitoring Child Development

Pekcici¹

2020

Preprint

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Background: Pediatricians globally are in critical need of tools enabling comprehensive information about children and families while also saving face-to-face time. This study examined the applicability of the expanded version of the Guide for Monitoring Child Development (GMCD), a free-of-charge tool used in over 30 countries.The Expanded GMCD is a written tool incorporating the biopsychosocial model of healthcare delivery, bioecological theory of child development, and two World Health Organization frameworks: International Classification of Functioning, Disability and Health, and Nurturing Care. Methods: Parents of children attending Ankara University Developmental Pediatrics Division, Turkey, were given or digitally sent the Expanded GMCD to complete before their first assessment. The completeness of the responses to the four Expanded GMCD domains and factors associated with full completion were ascertained using multivariate analyses. Results: Of 480 children, 57% were boys, median age was 17.0 (IQR: 9.0-27.0) months. Completion rates were 78%, 87% and 92% for all four, at least three and at least two domains, respectively. All four domains “body structures and functioning,” “health conditions,” “activities and participation,” and “environmental factors” had completion rates >80%. The Expanded GMCD provided holistic information: 87% of children had developmental difficulties and special needs; 60% had chronic conditions requiring follow-up; over 20% of parents reported stigmatization and maternal depression; over 10% unemployment and financial difficulties, not getting enough support from friends and relatives, paternal depression; and 5% intra-family conflict. In the logistic regression analyses, parents of children ≤ 6 months more likely completed <4 domains compared to parents of older children (OR: 2.24; 95% CI: 1.25-3.72); maternal education less than high school (OR: 1.38; 95% CI: 0.87-2.20) and having multiple children (OR: 1.48; 95% CI: 0.94-2.35) were not significantly associated with the full completion of the Expanded GMCD.Conclusion:The applicability of the Expanded GMCD in this study in children with diverse health conditions and families with different educational levels implies its potential for applicability in other settings. Using the free-of-charge Expanded GMCD in healthcare delivery including telemedicine may address the gaps in the implementation of the theory, model and framework-based comprehensive tools for children and their families.

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“…Moreover, they have also shown that the curative effect of scalp acupuncture is correlated with the cerebral activating reaction in motor dysfunction in stroke patients [37,38] Based on the International Classification of Functioning, Disability, and Health (ICF), once the diagnosis of CP is ascertained or highly suspected, there are numerous tools to assess the impact of CP on different health-related domains, such as physical functioning, daily activities, quality of life, health-related quality of life, family well-being, education, and so on [43][44][45][46].Cerebral palsy rehabilitation evaluation plays an important role in the Cerebral Palsy rehabilitation clinical studies.…”

Section: Discussionmentioning

confidence: 99%

Acupuncture treatment on the motor area of the scalp for motor dysfunction in children with cerebral palsy: study protocol for a multicenter randomized controlled trial

Wang

Shi

Khiati

et al. 2019

Preprint

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Background: Scalp acupuncture has been widely used as treatment for motor dysfunction in children with cerebral palsy in China. Previous studies have failed to provide high quality evidence to demonstrate the effectiveness of this treatment in children with cerebral palsy. No high quality randomized controlled trials on scalp acupuncture have been published. The aim of this study is to evaluate the effectiveness of jiao’ scalp acupuncture when combined with routine rehabilitation treatment versus routine rehabilitation treatment alone for motor dysfunction in children with cerebral palsy. Methods/design: This is a four-centred randomized controlled trial. One hundred cerebral palsy patients with motor dysfunction were enrolled. Patients will be allocated in a 1:1 ratio into either an acupuncture treatment group or a control group. Cerebral palsy patients in the control group will receive conventional rehabilitation treatment, whereas patients in the acupuncture group will receive a combination of scalp acupuncture and conventional rehabilitation treatment. Thirty-six treatment sessions will be performed over a 12-week period. The Gross Motor Function Measure and the Fine Motor Function Measure Scale will be assessed as the primary outcome measure. The Pediatric Evaluation of Disability Inventory, and the Cerebral Palsy Quality of Life Questionnaire for Children will be selected as secondary outcome measures. All assessments will be conducted at baseline, week 4 (treatment 12), week 8 ( treatment 24 ), week 12 (treatment 36), and week 24 (follow-up). Discussion: This is the first trial evaluating the efficacy and safety of scalp acupuncture as a treatment for motor dysfunction in children with cerebral palsy. The results of this trial are expected to provide relevant evidence demonstrating that scalp acupuncture can be used as an effective rehabilitation treatment method for improving motor dysfunction in children with cerebral palsy.

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Implementation of the International Classification of Functioning, Disability, and Health (ICF) Core Sets for Children and Youth with Cerebral Palsy: Global Initiatives Promoting Optimal Functioning

Cited by 73 publications

References 34 publications

Assessment of Anxiety and Depression in Polish Primary Parental Caregivers of Children with Cerebral Palsy Compared to a Control Group, as well as Identification of Selected Predictors

Assessment of Anxiety and Depression in Polish Primary Parental Caregivers of Children with Cerebral Palsy Compared to a Control Group, as well as Identification of Selected Predictors

WITHDRAWN: Applicability of a Tool for Comprehensive Assessments: the Expanded Guide for Monitoring Child Development

Acupuncture treatment on the motor area of the scalp for motor dysfunction in children with cerebral palsy: study protocol for a multicenter randomized controlled trial

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