From Routine to Revolt: Improving Routine Health Data Quality and Relevance by Making Them Public

Nguyen, Thanh Ngoc; Nielsen, Petter

doi:10.1007/978-3-319-59111-7_45

Cited by 5 publications

(6 citation statements)

References 23 publications

(25 reference statements)

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“…There were a couple of articles that showed content being produced for the general public. Nguyen and Nielsen [ 43 ] describe the publication of accident numbers during a particular festive period to raise awareness of the prevalence of accidents. Some articles included comments on making data more public [ 46 ], but exact details on how this was to be done were not described.…”

Section: Resultsmentioning

confidence: 99%

“…In relation to Nutley’s categories on the purpose of data use [ 4 ] there were only two examples of advocacy and policy development . As noted above Nguyen and Nielsen [ 43 ] described the strategy whereby ‘Accident and Emergency’ attendances at hospitals were reported publicly in order to increase awareness of the number of accidents during a particular festival period. This approach resulted in the triangulation of data from the Ministry of Public Security and the Ministry of Health.…”

Section: Resultsmentioning

confidence: 99%

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Routine use of DHIS2 data: a scoping review

Byrne

Sæbø

2022

BMC Health Serv Res

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Background In regard to health service planning and delivery, the use of information at different levels in the health system is vital, ranging from the influencing of policy to the programming of action to the ensuring of evidence-informed practices. However, neither ownership of, nor access to, good quality data guarantees actual use of these data. For information to be used, relevant data need to be collected, processed and analysed in an accessible format. This problem of underused data, and indeed the absence of data use entirely, is widespread and has been evident for decades. The DHIS2 software platform supports routine health management for an estimated 2.4 billion people, in over 70 countries worldwide. It is by far the largest and most widespread software for this purpose and adopts a holistic, socio-technical approach to development and implementation. Given this approach, and the rapid and extensive scaling of DHIS2, we questioned whether or not there has been a parallel increase in the scaling of improved information use. To date, there has been no rigorous review of the documentation on how exactly DHIS2 data is routinely being used for decision-making and subsequent programming of action. This scoping review addresses this review gap. Methods The five-stage approach of Arksey and O’Malley progressed by Levac et al. and Peters was followed. Three databases (PubMed, Web of Science and Embase) were searched, along with relevant conference proceedings and postgraduate theses. In total, over 500 documents were reviewed and data from 19 documents were extracted. Results Overall, DHIS2 data are being used but there are few detailed descriptions of this usage in peer reviewed or grey literature. We find that, commonly, there exists a centralised versus decentralised pattern of use in terms of access to data and the reporting of data ‘up’ in the system. We also find that the different conceptualisations of data use and how data use is conceptualised are not made explicit. Conclusions We conclude with some suggestions for a way forward, namely: i) the need to document in more detail and share how data are being used, ii) the need to investigate how data were created and who uses such data, iii) the need to design systems based on work practices, and in tandem develop and promote forums in which ‘conversations’ around data can take place.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Routine use of DHIS2 data: a scoping review

Byrne

Sæbø

2022

BMC Health Serv Res

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“…There was an interesting case reported of the presentation of accident and emergency data over a festive period to the public and through the public media this resulted in different ministerial departments setting up meetings to validate the published data (41). At other times there were comments on making the data more public ( 44), but exact details on how this was done is not described.…”

Section: Contentmentioning

confidence: 99%

“…In relation to Nutley's categories on the purpose of data use (4) there were only two examples of advocacy and policy development. Nguyen et al (41) described the situation where data on hospital Accident and Emergency were reported publicly to highlight awareness of the number of accidents during the festival period and to advocate for safer behaviour. This approach also resulted in triangulation of data from the Ministry of Public Security (MPS) and the Ministry of Health (MoH) and led to the process of querying differences in data.…”

Section: Purposementioning

confidence: 99%

Routine Use of DHIS2 Data: A Scoping Review

Byrne

Sæbø

2021

Preprint

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BACKGROUND:In terms of health service planning and delivery the use of information at different levels in the health system is vital, from influencing policy, to program action, and to evidence informed practices. However, having good data or access to good data does not necessarily imply data use. For information to be used relevant data needs to be collected, processed and analysed in an accessible format. The problem of little or no data use is widespread and has been evident for decades.The DHIS2 software platform supports routine health management for an estimated 2.4 billion people and is used in over 70 countries. DHIS2 is by far the largest and most widespread software for this purpose and adopts a holistic socio-technical approach to development and implementation. With this approach and the rapid and extensive scaling of DHIS2 we questioned whether this has been matched with the increased scaling of improved information use. To date there has been no rigorous review of the documentation on how DHIS2 data is routinely being used for action and decision-making. This scoping review addresses this gap. METHODS:The five stage approach of Arksey and O’Malley and progressed by Levac et al., was followed. Three databases (PubMed, Web of Science and Embase) were searched, along with relevant conferences and postgraduate thesis. In total approx. 300 documents were reviewed with 18 documents being fully reviewed. RESULTS:Overall DHIS2 data is being used but there are few detailed descriptions of this in peer reviewed or grey literature. We find that there is commonly a centralised versus decentralised pattern of use in terms of access to data and reporting data up in the system, and that the different conceptualisations of data use and how data use is conceptualised is not made explicit. CONCLUSIONS:We conclude with some suggestions on the way forward, namely: the need to document in more detail and share how data is being used, investigating how data was created and who uses the data, designing systems based on work practices and exploring and promoting forums in which we can have ‘conversations’ around data.

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“…Few incentives are available for local DHIS2 experts to explore directions not directly relevant to the international donors. There are examples where DHIS2 is appropriated and used in other domains than health such as road safety in Tanzania, the new year accident reporting system in Vietnam [25] and the civil registration and vital statistics system in Tajikistan [23]. While these innovations successfully support local needs, they remain isolated branches of DHIS2 that are not taken up elsewhere in the HISP network.…”

Section: Dhis2 From Software Product To Software Platform Ecosystemmentioning

confidence: 99%

Software Platforms for Inclusive Innovation

Sanner

Nielsen

2019

IFIP Advances in Information and Communication Technology

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Software platforms present novel opportunities for innovation across heterogeneous settings, users and areas of use. We report from the case of the Health Information System Programme (HISP) that started out in post-apartheid South Africa more than two decades ago. The programme centres on the development of an open source softwarecalled DHIS2primarily for decentralized public health management. Today, DHIS2 is a software platform with a significant global footprint. We contribute to literature on innovation for development, by identifying and examining processes of inclusive innovation pertaining to the longitudinal development of DHIS2. We find that a combination of long-term capacity building and knowledge sharing, consensus-based decision-making, and a modular platform architecture facilitates inclusive innovation. However, short term and project-oriented funding limits the sharing and scale-up of local innovations while the size of the venture and the heterogeneity of actors moderates inclusion in the development of core components of the platform.

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From Routine to Revolt: Improving Routine Health Data Quality and Relevance by Making Them Public

Cited by 5 publications

References 23 publications

Routine use of DHIS2 data: a scoping review

Routine use of DHIS2 data: a scoping review

Routine Use of DHIS2 Data: A Scoping Review

Software Platforms for Inclusive Innovation

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