From contagious to chronic: a life course experience with leprosy in Taiwanese women

Shieh, Carol; Wang, Hsiu‐Hung; Lin, Ching Feng

doi:10.47276/lr.77.2.99

Cited by 8 publications

(14 citation statements)

References 14 publications

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“…The most frequently absent detail in the included studies was the information on the influence of the researcher on the research (question 7, S5 Appendix); only five studies reported this item. [34,45,58,62,73] Seventeen studies [12,19,43,44,47,59,63,65,[69][70][71][75][76][77]79,80,83] had no obvious statement locating the researcher culturally or theoretically.…”

Section: Quality Of Included Studiesmentioning

confidence: 99%

“…The social impact consisted of four categories and 74 findings and was meta-aggregated from 38 studies. [12,14,16,18,34,43,45,47,[52][53][54][55][56][57][58][61][62][63][64][65][66][67][69][70][71][72][73][74][75][76][77][78][80][81][82][83][84]87] This synthesised finding captured the interactions and relationships of the leprosy-affected people with others. The included studies showed they were isolated and excluded from society; hence their social problems were multifaceted.…”

Section: '[ ] a Scabies-like Rash On My Whole Body And It Was Itchin...mentioning

confidence: 99%

“…[12,55,67,70,76,81,82] One important coping strategy is social coping, when those suffering from leprosy can request support from their families, friends, and community. [16,56,62,69,71,78] Another helpful strategy is to find ways to maintain their emotional wellbeing by changing the way they think about the problems and accepting them [18,78,81,82], turning to their religion and spiritual beliefs to cope with the disease. Other coping strategies would include meaning-focused by gathering information and understanding them or problem-focused when they can ask for help and support from the experts and get treated.…”

Section: '[ ] a Scabies-like Rash On My Whole Body And It Was Itchin...mentioning

confidence: 99%

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Experiences of living with leprosy: A systematic review and qualitative evidence synthesis

et al. 2022

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Objective The objective of the review was to identify, appraise, and synthesise qualitative studies on the lived experience of individuals diagnosed with leprosy, the impact of the disease, and how they coped with the disease burden. Introduction Leprosy is a chronic disease with long-term biopsychosocial impact and is a leading cause of preventable disabilities. It traps the individuals with leprosy in a vicious circle of disease, stigma, and poverty. The efforts to reduce stigma and discrimination and improve their quality of life have not kept pace with the success of the multidrug treatment. Inclusion criteria This review considered published literature on the lived experience of individuals diagnosed with leprosy. There were no limitations on gender, background, or country. All qualitative or mixed-methods studies were accepted. Methods The review followed the JBI meta-aggregation approach for qualitative systematic reviews. A structured literature search was undertaken using multiple electronic databases: PubMed, Embase, Web of Science, and CINAHL. Results The search identified 723 publications, and there were 446 articles after deduplication. Forty-nine studies met the inclusion criteria. The final 173 findings were synthesised into ten categories and aggregated into four synthesised findings: biophysical impact, social impact, economic impact, and mental and emotional impact. These synthesised findings were consistent across the included studies from a patient’s perspective. The way people coped with leprosy depended on their interpretation of the disease and its treatment. It affected their help-seeking behaviour and their adherence to treatment and self-care. The review has identified a multi-domain effect on the affected individuals, which goes beyond the biological and physical effects, looking at the social issues, specific difficulties, emotions, and economic hardships. Conclusions The researchers, health professionals, and policymakers could use the synthesised findings to address the concerns and needs of the leprosy-affected individuals and offer appropriate support to manage their lives. Systematic review registration number PROSPERO Registration number: CRD42021243223

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Section: Quality Of Included Studiesmentioning

confidence: 99%

Section: '[ ] a Scabies-like Rash On My Whole Body And It Was Itchin...mentioning

confidence: 99%

Section: '[ ] a Scabies-like Rash On My Whole Body And It Was Itchin...mentioning

confidence: 99%

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Experiences of living with leprosy: A systematic review and qualitative evidence synthesis

et al. 2022

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“…Studies conducted in Taiwan in 2003 and Nepal in 2004 showed that PwL were aware of the emergence of HD initial symptoms on their skin but they did not know the cause [ 28 , 29 ]. These were similar with a study conducted in India in 2011 where most HD patients incorrectly knew their disease.…”

Section: Resultsmentioning

confidence: 99%

“…Some of them thought that HD could not be eliminated from their lives even if the bacteria had been eliminated. This causes PwL to self-isolate themselves [ 29 ]. These findings are parallel to studies conducted in the Philippines and the Netherlands in 2010, which showed that PwL with visible disability had a significantly lower level of social participation [ 31 , 32 ].…”

Section: Resultsmentioning

confidence: 99%

A Literature Review: The History of Psychological Impact of Illness amongst People with Leprosy (PwL) in Countries across the Globe

Achdiat

Ariyanto

Simanjuntak

2021

Dermatology Research and Practice

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Background. Leprosy is a chronic infectious disease for which effective therapy has been long since invented. Thus, the morbidity has been decreased as technology has advanced, but the permanent disability has continuously generated stigma for centuries. The stigma causes the emergence of a poor psychological impact on people with leprosy (PwL). These impacts make new PwL reluctant to get appropriate therapy for their initial symptoms and are, thus, troublesome in accomplishing the goals of the leprosy elimination program. The aim of this review is to provide the history of psychological impact amongst PwL in countries across the globe. Methods. This is a literature review study. A keyword-based search was conducted in digital libraries. Articles reporting on PwL’s psychology and related issues, such as quality of life, opportunity of building a marriage, and getting hired, were included. The data were presented based on a leprosy history timeline with cutoff points, namely, the invention of promin (1941) and multidrug treatment (1970). Results. In total, 38 studies were included in this review. These studies showed that PwL’s knowledge towards leprosy has been increasing; nevertheless, their attitude is still lacking. The emotional response was described by various negative feelings that had persistently occurred. These poor psychological impacts were followed by poor treatment-seeking behavior and resulted in low quality of life. Conclusions. From year to year, the PwL’s knowledge about leprosy has been getting better; nevertheless, their attitude towards the disease is still poor. The emotional response, social participation, and quality of life of PwL are persistently poor due to the persistent stigma.

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Factors Influencing Physical Activity in Institutionalized Elderly Patients with Leprosy

Cheng

Tang

et al. 2012

Rehabilitation Nursing

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From contagious to chronic: a life course experience with leprosy in Taiwanese women

Cited by 8 publications

References 14 publications

Experiences of living with leprosy: A systematic review and qualitative evidence synthesis

Experiences of living with leprosy: A systematic review and qualitative evidence synthesis

A Literature Review: The History of Psychological Impact of Illness amongst People with Leprosy (PwL) in Countries across the Globe

Factors Influencing Physical Activity in Institutionalized Elderly Patients with Leprosy

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