Friendship matters: a research agenda for aphasia

Azios, Jamie H.; Strong, Katie; Archer, Brent; Douglas, Natalie; Simmons‐Mackie, Nina; Worrall, Linda

doi:10.1080/02687038.2021.1873908

Cited by 31 publications

(12 citation statements)

References 75 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…A high incidence of depression is also reported, with estimates ranging between 62 and 70% and higher, for PWA compared to stroke survivors without aphasia [14]. Aphasia also leads to social isolation [15] and limited participation in social and cultural events and family activities [5,7,16]. PWA also have reduced access to health and social services because of physical and communication barriers.…”

Section: Aphasia and Qolmentioning

confidence: 99%

Adaptation of the Aphasia Impact Questionnaire-21 into Greek: A Reliability and Validity Study

Charalambous

Phylactou

Kountouri³

et al. 2022

CTN

View full text Add to dashboard Cite

The impact of aphasia on the everyday life of Greek-speaking people with aphasia (PWA) is often underestimated by rehabilitation clinicians. This study explores the adaptation and psychometric properties of the Greek (GR) version of The Aphasia Impact Questionnaire-21 (AIQ-21-GR) to address this issue. The aim of this study is to determine the reliability and validity of the Greek version of the AIQ-21. The AIQ-21-GR was administered to 69 stroke survivors, 47 with aphasia and 22 without aphasia. The data were analyzed to determine reliability and validity. Content validity was based on the Consensus-based Standards for the selection of health Measurement Instruments guidelines. The AIQ-21-GR shows high levels of reliability and validity. The results confirmed high scores of internal consistency (Cronbach’s α = 0.91) and indicated good known—groups validity (Mann–Whitney U = 202, p < 001). Content validity achieved high scores with an overall median score of 4 [Q25 = 4, Q75 = 5]. The psychometric properties of the AIQ-21-GR support the reliability and validity of the tool for investigating the impact of aphasia on the quality of life of Greek-speaking PWA. The AIQ-21-GR can be used for setting functional goals in collaboration with PWA and as a patient reported outcome measure for functional communication training.

show abstract

Section: Aphasia and Qolmentioning

confidence: 99%

Adaptation of the Aphasia Impact Questionnaire-21 into Greek: A Reliability and Validity Study

Charalambous

Phylactou

Kountouri³

et al. 2022

CTN

View full text Add to dashboard Cite

show abstract

“…Loneliness and social inaccessibility in chronic aphasia lead to poor community and public engagement [9]. Aphasia communication groups are an opportunity for social participation [28] that promote community integration, broaden friendship circles, and improve social connectedness [29].…”

Section: Why Are Aphasia Communication Groups Important To People With Aphasia?mentioning

confidence: 99%

“…Aphasia communication groups' positive participation promotes patient involvement (PI) and elevates discussions on how aphasia impacts activities of daily living, social integration, and participation [32]. Azios et al [9] propose a codesign model of intervention and research on friendship maintenance within aphasia communication groups, as a means of addressing the issues of social isolation and other personal concerns of PWA. The Quality of Communication Life Scale [33] suggests that "the more positive the personal and environmental factors, the more successful the [person's] communication acts, the better the quality of communication life" (p. 2).…”

Section: Meaningful Activitymentioning

confidence: 99%

“…Functional communication and social participation are impaired in aphasia, which brings about reduced confidence in communication [8]. This leads to reduced interactions with family and friends [9] and smaller social networks [10]. Although maintaining social interactions and friendship networks in the chronic phase of aphasia (greater than 6-months post brain injury) has been identified as an important goal in aphasia rehabilitation, this is not regularly addressed by aphasia clinicians [9].…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

The Importance of Aphasia Communication Groups

Charalambous¹,

Kambanaros²

2022

Aphasia Compendium

View full text Add to dashboard Cite

Chronic aphasia is linked to poor functional recovery, depression, and social isolation. In the exploration of the above factors, the role of aphasia communication groups has evolved. Aphasia communication groups for stroke survivors with chronic aphasia and their communication buddies are gaining clinical importance. Communication buddies can be family members, friends, carers, health professionals, and speech and language therapy students who serve as communication facilitators for each group member. Group members share experiences on stroke and aphasia by using technology/tablets and the total communication approach. The benefits or outcomes of group involvement are measured by assessment of functional communication, individual self-ratings of the impact of aphasia on communication, and quality of life after stroke. The use of the communication buddy system, total communication approach, and systematic evaluations enables therapists to measure the effectiveness and efficacy of communication groups in terms of functional communication, social inclusion, and quality of life.

show abstract

“…In fact, at 6 months poststroke, one-fifth of people with aphasia report not having any friends (Northcott et al, 2016a). Developing interventions to address social connection and friendship may support the overall health and well-being of people living with aphasia, but research and clinical resources are needed in this area (Azios et al, 2021;Douglas et al, 2022). Patterson et al (1993) have found that strong and dependable relationships with friends impact well-being.…”

mentioning

confidence: 99%

Stakeholder-Engaged Research

Strong

Douglas

Johnson

et al. 2023

Topics in Language Disorders

Self Cite

View full text Add to dashboard Cite

There is a need for intervention to support friendship for people living with aphasia. The purpose of this article is to describe a stakeholder engagement process that involved researchers, clinicians, people living with aphasia, and care partners to inform such intervention. Through reflection and firsthand accounts of non-university-based researchers, people not typically represented in the research process, we share details of two main lessons learned throughout the stakeholder engagement journey: (1) accessible engagement and (2) team correspondence. Finally, we describe

show abstract

Friendship matters: a research agenda for aphasia

Cited by 31 publications

References 75 publications

Adaptation of the Aphasia Impact Questionnaire-21 into Greek: A Reliability and Validity Study

Adaptation of the Aphasia Impact Questionnaire-21 into Greek: A Reliability and Validity Study

The Importance of Aphasia Communication Groups

Stakeholder-Engaged Research

Contact Info

Product

Resources

About