Formal support of stroke survivors and their informal carers in the community: a cohort study

Simon, Chantal; Kumar, Satinder; Kendrick, Tony

doi:10.1111/j.1365-2524.2008.00782.x

Cited by 37 publications

(54 citation statements)

References 28 publications

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“…Nevertheless, the inevitable emotional upheavals were attenuated by the presence and availability of family and friends who provided support or who encouraged caregivers to get help for themselves or for the person they cared for [34]. It has been demonstrated that caregivers who profit from social support also need less respite services [35]. Our participants had both a high number of support needs and respite needs, indicating that their family and friends did not or could not provide all of the assistance they needed.…”

Section: Discussionmentioning

confidence: 80%

Needs, barriers and facilitators experienced by spouses of people with aphasia

Dorze

Signori

2009

Disability and Rehabilitation

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Results confirm the long-term needs of spouses in adjusting to the aphasia of their partner, as well as the limited services available to them. Many of the needs reflected spouses' concerns about their partner, while others were a consequence of their caregiving role as well as the unavailability of support. Spouses of people with aphasia should have access to support during and after rehabilitation.

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Section: Discussionmentioning

confidence: 80%

Needs, barriers and facilitators experienced by spouses of people with aphasia

Dorze

Signori

2009

Disability and Rehabilitation

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“…The interviewer then measured QoL (using the Newcastle Stroke-Specific QoL Measure, newsqol) [7], functional impairments (with American Heart Association Stroke Outcome Classification, AHA.SOC) [30], and dissatisfaction with information and home-care services [31,32]. As Luxembourg is multilingual, the questionnaire was in four official languages.…”

Section: Methodsmentioning

confidence: 99%

“…Dissatisfaction with perceived information and home-care services received was measured for ten issues as shown in Figure 1[31,32]. Information was gathered about community support, coordination and appropriateness of services, characteristics of stroke, speed of change, listening and being heard, problem management and accuracy of information.…”

Section: Methodsmentioning

confidence: 99%

Associations between quality of life and socioeconomic factors, functional impairments and dissatisfaction with received information and home-care services among survivors living at home two years after stroke onset

et al. 2014

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BackgroundQuality of life (QoL) assessment is important when monitoring over time the recovery of stroke-survivors living at home. This study explores the associations between QoL and socioeconomic factors, functional impairments and self-reported dissatisfaction with received information and home-care services among survivors two years after stroke onset. This problem remains partially addressed though optimal information and services may improve survivors’ QoL.MethodsStroke-survivors admitted to all hospitals in Luxembourg 18 months or more previously were identified using the only care-expenditure-reimbursement national system database. The clinical diagnosis was confirmed. Ninety four patients aged 65 years and living at home were interviewed to gather socioeconomic characteristics, functional impairments, dissatisfaction with information and home-care services, and QoL (using the Newcastle Stroke-Specific QoL, newsqol) assessing 11 domains. Data were analyzed using multiple linear regression models.ResultsAbout 50% of survivors had low education and lower income. Functional impairments were common: sensory (45%), motor (35%), memory (32%), language (31%), and vision (20%). Survivors with education (<12th grade) or lower income had low values for most newsqol domains (sex-age-adjusted regression coefficient saRC, i.e. mean difference, between -23 and -8). Patients who were working had better values for pain, mental feelings and sleep domains than did retired people (saRC between -3.9 and 4.2). Various functional impairments were associated with markedly low values of nearly all domains (saRC between -33.5 and -7.5) and motor, language, memory and sensory impairments had the highest impact. The survivors’ perceived QoL was markedly low, especially for the domains of interpersonal relationship, sleep, cognition, mental feelings, and pain. Various QoL domains were strongly related to dissatisfaction with information about stroke and its consequences/changes over time, accuracy of information obtained, help received, coordination between services, and the possibility of receiving help when necessary (saRC reaching -30).ConclusionsStroke-survivors had major alterations in QoL that reflected depressive symptoms, which should be appropriately treated. These findings may help with the development of public policies aiming at improving QoL among stroke survivors. The newsqol could be used routinely to measure the recovery of survivors over time and their needs in terms of information, help and care services.

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“…Problems and needs of both patients and carers must be identified in order to implement the necessary actions in RHB programs (Simon & Kumar, 2008). Social and family support are crucial to optimizing functional outcome after stroke and achieving a better quality of life for patients (MacKenzie & Chang, 2002;Clarke, Marshall, Black & Colantonio, 2002), mostly with moderate or severe impairment after stroke (Edwards, Hahn, Baum & Dromerick, 2006).…”

Section: Introductionmentioning

confidence: 99%

Effects of information and training provision in satisfaction of patients and carers in stroke rehabilitation

Aguirrezabal

Duarte

Rueda

et al. 2013

NRE

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BACKGROUND: Active information and training improves patient and carer knowledge of stroke and aspects of patient satisfaction, as well as reduces patient depression. OBJECTIVE: To evaluate the effect of a post-stroke information and carer training intervention provided in the rehabilitation hospital setting on patient and carers' satisfaction. METHODS: Nonrandomized, controlled trial with 241 patients consecutively admitted in a post-stroke rehabilitation unit and their carers. The first 140 underwent a standard rehabilitation program (control group) and the 131 following attended an additional class (intervention group). Satisfaction was assessed with the Satisfaction Pound Scale administered by telephone 6 months after stroke in 74 patients and 85 carers from the control group and in 76 patients and 73 carers from the intervention group. RESULTS: Over 80% of patients in both groups were satisfied with information, care and therapy during hospitalization. The amount of therapy and support at discharge were the issues that arouse greater dissatisfaction. Patient and carers' satisfaction with information, support and accessibility to rehabilitation team after hospital discharge improved after the intervention (p < 0.001). CONCLUSIONS: Systematic active information, training and community support provision for stroke patients and carers improves satisfaction with stroke rehabilitation programs and support received after hospital discharge.

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Formal support of stroke survivors and their informal carers in the community: a cohort study

Cited by 37 publications

References 28 publications

Needs, barriers and facilitators experienced by spouses of people with aphasia

Needs, barriers and facilitators experienced by spouses of people with aphasia

Associations between quality of life and socioeconomic factors, functional impairments and dissatisfaction with received information and home-care services among survivors living at home two years after stroke onset

Effects of information and training provision in satisfaction of patients and carers in stroke rehabilitation

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