Field testing of decision coaching with a decision aid for parents facing extreme prematurity

Moore, Gregory P.; Lemyre, Brigitte; Daboval, Thierry; Ding, Sharon; Dunn, Sandra; Akiki, Salwa; Barrowman, Nicholas; Shephard, Allyson; Lawson, Margaret L.

doi:10.1038/jp.2017.29

Cited by 39 publications

(47 citation statements)

References 41 publications

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“…A guideline was created to assist in shared decision‐making during antenatal consultation to manage extremely premature infants, which included the accompanying Moore, Lemyre decision aid. A 14‐question semi‐structured interview guide was administered to HCPs involved in the care of extremely premature infants to determine their experiences with and understanding of the guideline and their perceived facilitators, challenges and areas of improvement for the guideline…”

Section: Resultsmentioning

confidence: 99%

“…The Prematurity Decision Aid was the most updated, tested and adapted. It was modified and then embedded in a guideline, which was assessed in a qualitative study . It was also adapted into video format, translated into Spanish and tested in a randomised controlled trial (RCT) …”

Section: Resultsmentioning

confidence: 99%

“…Participants found DAs to be user‐friendly, understandable, acceptable and informative . Use of DAs was associated with increased knowledge, understanding and information recall and reduced decisional conflict . However, many parents viewed values clarification exercises as unclear, and some parents were unsure about the probabilities of complications .…”

Section: Resultsmentioning

confidence: 99%

“…While DAs should be broadly applicable to the population of interest, most studies used a convenience sample as part of the development and evaluation process, thus leading to decreased generalisability . Although DAs are meant for point‐of‐care use, participants involved in the development were families who had previously made the decision that was the focus of the aid or who might be faced with that decision in the future .…”

Section: Resultsmentioning

confidence: 99%

“…Although DAs are meant for point‐of‐care use, participants involved in the development were families who had previously made the decision that was the focus of the aid or who might be faced with that decision in the future . Only the Prematurity Decision Aid and Indomethacin Therapy in Low Birth Weight Infants Decision Aid were used in real time with parents currently making a decision. When faced with stressful decisions, parents' stress and factors associated with the decision may alter the usefulness of DAs; thus, testing in real time is a critical but often missing component in evaluation.…”

Section: Resultsmentioning

confidence: 99%

See 4 more Smart Citations

Decision aids available for parents making end‐of‐life or palliative care decisions for children: A scoping review

Medeiros

Buckley

Metcalfe

et al. 2020

J Paediatrics Child Health

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Aim: To identify and assess the quality of decision aids that align the decision, values and information provided for parents making end-of-life or palliative care decisions for children with life-threatening conditions. Methods: Six databases and the grey literature were searched in December 2018. Two reviewers independently reviewed database citations, and one reviewed grey literature citations. Citation chaining via Scopus was conducted. Quality was assessed using IPDAS Collaboration Criteria. Results: After reviewing 18 671 database citations and 10 988 grey literature citations, 18 citations describing 11 decision aids remained. Decision aids targeted premature infants, children requiring airway management, children with cancer and children with scoliosis. Three aids underwent testing beyond initial development. Quality scores averaged 27 of 50 points. Conclusions: There are few high-quality decision aids available for use and a lack evidence of widespread clinical use. Additional research is needed to support systematic development and the use of decision aids with families.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

See 3 more Smart Citations

Decision aids available for parents making end‐of‐life or palliative care decisions for children: A scoping review

Medeiros

Buckley

Metcalfe

et al. 2020

J Paediatrics Child Health

View full text Add to dashboard Cite

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Association of Antenatal Steroid Exposure With Survival Among Infants Receiving Postnatal Life Support at 22 to 25 Weeks’ Gestation

et al. 2018

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Key Points Question For infants born at the edge of viability who received postnatal life support, was the administration of antenatal steroids associated with higher rates of survival? Finding In a cohort study of 33 472 infants born at 22 to 25 weeks’ gestation between 2012 and 2016, the concordant receipt of antenatal steroids and postnatal life support was significantly associated with higher rates of survival compared with postnatal life support alone. Meaning There is an opportunity for reevaluation of national guidelines, allowing for shared decision making with concordant obstetrical and neonatal treatment plans.

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Creation of a Decision Support Tool for Expectant Parents Facing Threatened Periviable Delivery: Application of a User-Centered Design Approach

Edmonds

Hoffman

Lynch

et al. 2018

Patient

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Background: Shared decision-making (SDM) is optimal in the context of periviable delivery, where the decision to pursue life-support measures or palliation is both preference-sensitive and value-laden. We sought to develop a decision support tool (DST) prototype to facilitate SDM by utilizing a user-centered design research approach. Methods: We convened four patient and provider advisory boards with women and their partners who had experienced a surviving or non-surviving periviable delivery, pregnant women who had not experienced a prior preterm birth, and obstetric providers. Each two-hour session involved design research activities to generate ideas and facilitate sharing of values, goals, and attitudes. Participant feedback shaped the design of three prototypes (a tablet application, family story videos, and a virtual reality experience) to be tested in a final session. Results: Ninety-five individuals (48 mothers/partners; 47 providers) from two hospitals participated. Most participants agreed that the prototypes should include factual, unbiased outcomes and probabilities. Mothers and support partners also desired comprehensive explanations of delivery and care options, while providers wanted a tool to ease communication, help elicit values, and share patient experiences. Participants ultimately favored the tablet application and suggested that it include family testimonial videos. Conclusion: Our results suggest that a DST that combines unbiased information and understandable outcomes with family testimonials would be meaningful for periviable SDM. User-centered design was found to be a useful method for creating a DST prototype that may lead to improved effectiveness, usability, uptake, and dissemination in the future, by leveraging the expertise of a wide range of stakeholders.

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Field testing of decision coaching with a decision aid for parents facing extreme prematurity

Abstract: Field testing demonstrated that consultations using the aid with decision coaching were feasible, reduced decisional conflict and may facilitate shared decision-making.

Cited by 39 publications

References 41 publications

Decision aids available for parents making end‐of‐life or palliative care decisions for children: A scoping review

Decision aids available for parents making end‐of‐life or palliative care decisions for children: A scoping review

Association of Antenatal Steroid Exposure With Survival Among Infants Receiving Postnatal Life Support at 22 to 25 Weeks’ Gestation

Creation of a Decision Support Tool for Expectant Parents Facing Threatened Periviable Delivery: Application of a User-Centered Design Approach

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