Fibromialgia: percepción de pacientes sobre su enfermedad y el sistema de salud. Estudio de investigación cualitativa

Escudero-Carretero, María José; Toyos, Noelia García; Prieto-Rodríguez, María Ángeles; Pérez-Corral, Olivia; March-Cerdá, Joan Carles; López-Doblas, Manuela

doi:10.1016/j.reuma.2009.04.008

Cited by 37 publications

(9 citation statements)

References 23 publications

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“…Previous studies have shown that patients have to persuade their doctors that they have a real condition, that they need to be treated, and to have their symptoms recognized (Haugli, Strand, & Finset, 2004; Rodham, Rance, & Bleke, 2010), and they expect health professionals to show an interest in their disease (Escudero-Carretero et al, 2010). The public care patients we interviewed experienced the same need to have their symptoms recognized, with particular emphasis placed on their pain and their need for physical relief.…”

Section: Discussionmentioning

confidence: 99%

Doctor–Patient Relationship Between Individuals With Fibromyalgia and Rheumatologists in Public and Private Health Care in Mexico

et al. 2016

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The aim of this article was to describe and analyze the doctor-patient relationship between fibromyalgia patients and rheumatologists in public and private health care contexts within the Mexican health care system. This medical anthropological study drew on hospital ethnography and patients' illness narratives, as well as the experiences of rheumatologists from both types of health care services. The findings show how each type of medical care subsystem shape different relationships between patients and doctors. Patient stigmatization, overt rejection, and denial of the disease's existence were identified. In this doctor-patient-with-fibromyalgia relationship, there are difficult encounters, rather than difficult patients. These encounters are more fluid in private consultations compared with public hospitals. The doctor-centered health care model is prevalent in public institutions. In the private sector, we find the characteristics of the patient-centered model coexisting with the traditional physician-centered approach.

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Section: Discussionmentioning

confidence: 99%

Doctor–Patient Relationship Between Individuals With Fibromyalgia and Rheumatologists in Public and Private Health Care in Mexico

et al. 2016

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“…Es habitual el escepticismo de algunos profesionales médicos hacia el SF, que no creen que exista, que la desconocen o que no saben cómo manejarla y el de algunos inspectores médicos que no teniendo datos objetivos para evaluarla, la ignoran, como si fuera un tema de creencias y no de conocimiento de la misma. Como consecuencia de ello, las pacientes se sienten injustamente tratadas, se encuentran en un estado de queja continuada y de ansiedad cronificada al no verse resueltas sus demandas, lo que repercute muy negativamente en la enfermedad, aumentando el dolor y el sufrimiento1, 2, 3.…”

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Fibromialgia y empatía: un camino hacia el bienestar

Damas¹,

Santamaría²,

Marín³

et al. 2018

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“…The questioning of these diseases, fostered by the lability of their diagnostic labels (Chew-Graham et al, 2010; Undeland & Malterud, 2008), turns the involvement with the health care system into a potential source of additional suffering (Lobo, Pfalzgraf, Giannetti, & Kanyongo, 2014) in addition to a key force in the maintenance and reproduction of the feelings of vulnerability (Arroll & Howard, 2013). This explains why affected people take interest in research on their diseases, as it is a way of gaining acknowledgment of their symptoms’ reality (Escudero-Carretero et al, 2010).…”

Section: Discussionmentioning

confidence: 99%

Fibromyalgia, Chronic Fatigue Syndrome, and Multiple Chemical Sensitivity: Illness Experiences

et al. 2019

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Fibromyalgia, chronic fatigue syndrome/myalgic encephalomyelitis, and multiple chemical sensitivity can be considered contested illnesses. The questioning of the status of these conditions as real diseases reduces feelings of legitimacy in those affected. The purpose of this study was to analyze subjectivity construction processes in people with these diseases. A qualitative exploratory study was conducted from the perspective of hermeneutic phenomenology and ethnosociology. We used life stories for compiling data (13 informants were interviewed face-to-face), and sociological discourse analysis was developed. Three main categories were identified: (a) self and grieving; (b) images and practices relating to fibromyalgia, chronic fatigue syndrome/myalgic encephalomyelitis, and multiple chemical sensitivity; and (c) relationships with health professionals. This study shows that daily experiences of people living with these diseases are marked by stigmatization processes. The ultimate purpose of nursing care for people with these conditions should be to reduce their vulnerability and exclusion.

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Fibromialgia: percepción de pacientes sobre su enfermedad y el sistema de salud. Estudio de investigación cualitativa

Cited by 37 publications

References 23 publications

Doctor–Patient Relationship Between Individuals With Fibromyalgia and Rheumatologists in Public and Private Health Care in Mexico

Doctor–Patient Relationship Between Individuals With Fibromyalgia and Rheumatologists in Public and Private Health Care in Mexico

Fibromialgia y empatía: un camino hacia el bienestar

Fibromyalgia, Chronic Fatigue Syndrome, and Multiple Chemical Sensitivity: Illness Experiences

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