Family Stigma: A Concept Analysis

Park, Sihyun; Park, Kyung Sook

doi:10.1016/j.anr.2014.02.006

Cited by 71 publications

(78 citation statements)

References 19 publications

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“…Assessment of an environmental factor is a result of the stigma of pengkajina health workers and social stigma against families was done by individual measurements using a questionnaire regarding the internalized stigma of mental illness (Seismic) scale [8]. Measurement instruments of stigma were family-based kosep stigma [9], the concept component of stigma and social stigma [6], [7], and the concept of family stigma [2] and modified by the use of explanatory Model Interview catalog (EMIC) stigma scale for community [8] , [10] - [12]. The stigma question was about the family stigma towards a family whose members have leprosy.…”

Section: Methodsmentioning

confidence: 99%

“…In addition, bad presumption, unstable family coping and poor spiritual support cause family stress and they seek to obtain traditional medicine or a healer. The family also feels afraid of being expelled by the society, so they try to hide their member who has leprosy from society as well as being afraid of being contaminated [1], [2]. A study in India offered a description about persons with leprosy, stigma and disability in society [34].…”

Section: Influence Of Environmental Factors and Family Stigmamentioning

confidence: 99%

“…Moreover, this will aggravate the process of early detection in patients with leprosy, their self-stigma, disability and their quality of life and all members of the family. [2] Stigma on leprosy patients may have an effect on all aspects of their life, such as physical impact, psychological, social and economic. [3] The world's leprosy prevalence fell from more than five million cases in the mid-1980s to less than 200,000 cases in 2015.…”

Section: Introductionmentioning

confidence: 99%

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Analysis of the effect of Individual, Familial and Environmental Factors on Family Stigma of Leprosy in Jombang regency, East Java Indonesia

Nasrudin¹,

Suwandi²,

Hadi³

2018

Proceedings of the 1st International Conference Postgraduate School Universitas Airlangga : "Implementation of Climate Change A

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Abstract-Stigma is assigning a sign or label of a negative undesirable characteristic which is not appropriate for the society. In addition, stigma in the family is resulted from the loss of family support in patients with leprosy(leprosy sufferer), by excluding and hiding them until the cessation of the treatment process. This condition will aggravate the process of early detection of patients with leprosy, self-stigma in patients with leprosy, disability and quality of life of patients and family members. The aim of this study is to analyze the patient, family and environmental factors that influence the family stigma on leprosy. This study applied cross-sectional design while the study population was families of leprosy patients at six health centers for endemic leprosy in Jombang East Java and represent 49 families of leprosy patients. These samples included 39 families and sampling was with Multi-Stage Random Sampling. The hypotheses were tested by using Chi-Square with p value<0.05. The results found that there were 29 (74.4%) family stigmas occurred, while hypotheses tests obtained from the individual factors included stigma individual, self-concept and disability level of leprosy patient influence on family stigma (P = 0.000). Family factors include family support, family coping mechanisms, knowledge and family perception towards leprosy affecting the family stigma (P = 0.000), whereas there was no effect of economic status on family stigma (P = 0.07) and environmental factors affects the family stigma only as a social stigma (P = 0.007) and there is no stigma attached by healthcare providers. The conclusion is that the individual, family and environmental factors influence the occurrence of family stigma; therefore, the researchers recommend intervention in an attempt to overcome the family stigma attention on individuals, families and the environment.

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Section: Methodsmentioning

confidence: 99%

Section: Influence Of Environmental Factors and Family Stigmamentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Analysis of the effect of Individual, Familial and Environmental Factors on Family Stigma of Leprosy in Jombang regency, East Java Indonesia

Nasrudin¹,

Suwandi²,

Hadi³

2018

Proceedings of the 1st International Conference Postgraduate School Universitas Airlangga : "Implementation of Climate Change A

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“…Stigma is the most serious concern for these patients (Momeni & Parvizy, 2013) and its effects are often understood as being heavier and more disturbing than the disorder itself (Koschorke et al, 2014). Stigma is not limited to patients, but also affects their family members who are associated with them (Park & Park, 2014). The consequences of stigma on patients and their families include reduced self-confidence and self-esteem, feelings of shame and futility, social exclusion and an inability to enter into the community, reduced psychological well-being, decreased quality of life, sleep disorders, the creation of the disease burden, and not seeking treatment (Koschorke et al;Park & Park;Seekles et al, 2012;Shahveysi, Shoja Shafti, Fadaei, & Doulatshahi, 2007;Wong et al, 2009).…”

Section: Introductionmentioning

confidence: 99%

“…Stigma is not limited to patients, but also affects their family members who are associated with them (Park & Park, 2014). The consequences of stigma on patients and their families include reduced self-confidence and self-esteem, feelings of shame and futility, social exclusion and an inability to enter into the community, reduced psychological well-being, decreased quality of life, sleep disorders, the creation of the disease burden, and not seeking treatment (Koschorke et al;Park & Park;Seekles et al, 2012;Shahveysi, Shoja Shafti, Fadaei, & Doulatshahi, 2007;Wong et al, 2009). Some studies have been conducted and reported in the field the experiences of stigma in psychiatric patients and their families in different countries (Huang, Jen, & Lien, 2016;Koschorke et al, 2014;Suto et al, 2012).…”

Section: Introductionmentioning

confidence: 99%

Experience and the meaning of stigma in patients with schizophrenia spectrum disorders and their families: A qualitative study

Rezayat

Mohammadi

Fallahi-Khoshknab

et al. 2018

Japan Journal Nursing Sci

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Families under pressure: A qualitative study of stressors in families of children with congenital heart disease

et al. 2023

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The objective of this study was to better understand the stressors in families of children with congenital heart disease (CHD) to assist with formulating targeted stress management plans for such families. A descriptive qualitative study was undertaken at a tertiary referral hospital in China. Following purposeful sampling, interviews were conducted with 21 parents of children with CHD regarding the stressors in their families. Following content analysis, 11 themes were generated from the data and categorised into six main domains: the initial stressor and associated hardships, normative transitions, prior strains, the consequences of family efforts to cope, intrafamily and social ambiguity, and sociocultural values. The 11 themes include confusion regarding the disease, hardships encountered during treatment, the heavy financial burden, the unusual growth track of the child due to the disease, normal events becoming abnormal for the family, impaired family functioning, family vulnerability, family resilience, family boundary ambiguity induced by role alteration, a lack of knowledge about community support and family stigma. Various and complex stressors exist for families of children with CHD. Medical personnel should fully evaluate the stressors and take targeted measures before implementing family stress management practices. It is also necessary to focus on the posttraumatic growth of families of children with CHD and strengthen resilience. Moreover, family boundary ambiguity and a lack of knowledge about community support should not be ignored, and further research is needed to explore these variables. Most importantly, policymakers and healthcare providers should adopt a range of strategies to address the stigma of being in a family of a child with CHD.

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Family Stigma: A Concept Analysis

Cited by 71 publications

References 19 publications

Analysis of the effect of Individual, Familial and Environmental Factors on Family Stigma of Leprosy in Jombang regency, East Java Indonesia

Analysis of the effect of Individual, Familial and Environmental Factors on Family Stigma of Leprosy in Jombang regency, East Java Indonesia

Experience and the meaning of stigma in patients with schizophrenia spectrum disorders and their families: A qualitative study

Families under pressure: A qualitative study of stressors in families of children with congenital heart disease

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