Family's Difficulty Scale in End-of-Life Home Care: A New Measure of the Family's Difficulties in Caring for Patients with Cancer at the End of Life at Home from Bereaved Family's Perspective

Abstract

The validity and reliability of this new instrument were confirmed. This scale should help home care providers to assess and focus on family difficulties and provide individualized care for the family who cares for a patient with terminal cancer at home.

Examining Posttraumatic Growth Among Bereaved Family Members of Patients With Cancer Who Received Palliative Care at Home

“…13 A few studies have investigated PTG after the death of a loved one [14][15][16][17] ; however, none have focused on families of people receiving palliative care at home. Although family members of terminally ill patients with cancer report a burden of care 18 and depression after the patient's death, 2 palliative care at home is associated with greater familial satisfaction with quality of care than at other venues (eg, hospitals). 19,20 It is crucial to systematically assess PTG in bereaved family members in home palliative care settings.…”

Acceptance Process Model of Patients’ Life with Terminally Ill in Home Hospice and Development of a Narrative Approach for Nurses

“…About "Worries about the future of people who remain", medical staffs need to assess the level or kinds of worries and try to resolve realistic problems. A factor of "Troubles caused by various physical symptoms" is the same trouble factor from previous studies [17] [18], although medical staffs proposed care as much as possible. Since physical symptoms affects mental or psychological problem [19] and medical staffs are not stay always in home hospice, explanation about them and coping methods will be needed for patients and families Journal of Cancer Therapy much more.…”

Homecare user needs from the perspective of the patient and carers: a review

“…The Family Difficulty Scale identifies eight categories of concerns: burden of care, concerns about homecare doctor, balance of work and care, patient's pain and condition, concerns about visiting nurse, concerns about homecare service, relationship between family caregivers and their families, and funeral preparations. 102 One study found 22% of informal caregivers could be formally classified as distressed. 103 Distress was a function of the interaction between the severity of the patient's condition and functionality, and the degree of the carer's positive outlook and personal resources.…”