Examining Posttraumatic Growth Among Bereaved Family Members of Patients With Cancer Who Received Palliative Care at Home

Hirooka, Kayo; Fukahori, Hiroki; Taku, Kanako; Togari, Taisuke; Ogawa, Asao

doi:10.1177/1049909117703358

Cited by 12 publications

(15 citation statements)

References 52 publications

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“…In terms of the positive elements of care, our findings regarding resilience coincide with other research in which the lower the resilience became, the higher the level of perceived burden was present [23,58,59]. The results we obtained for the PTGI [51] were similar to those reported in studies conducted with PFCs both of palliative [60] and non-palliative patients [23], coinciding with the finding that post-traumatic growth increases regardless of the burden.…”

Section: Discussionsupporting

confidence: 88%

Level of Burden and Health-Related Quality of Life in Caregivers of Palliative Care Patients

Perpiñá‐Galvañ

Orts-Beneito

Fernández‐Alcántara

et al. 2019

IJERPH

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The complexity of palliative care means that the emotional distress and burden that primary family caregivers suffer under can be particularly high. The objective of this study was to determine the level of burden endured by these primary family caregivers and to identify the variables that predict it in the caregiving relatives of people who require home-based palliative care. A descriptive-correlational cross-sectional study was conducted. Socio-demographic and clinical data were collected from caregivers through a self-administered questionnaire that included questions from the 12-Item Short Form Health Survey (SF-12), Zarit Caregiver Burden Interview (ZBI), Hospital Anxiety and Depression Scale (HADS), Brief Resilient Coping Scale (BRCS), Post Traumatic Growth Inventory (PTGI), and Fatigue Assessment Scale (FAS). A total of 77 caregivers participated; 66.2% were women, and the mean age was 61.5 years. Most (62.3%) were providing care to cancer patients. From among these data, the presence of anxiety as a clinical problem (48.1%), a high average fatigue score (FAS) of 23.0 (SD = 8.5), and the prevalence of intense overload (41.6%) stood out. We found statistically significant correlations between the variables of burden, fatigue, post-traumatic growth, anxiety, and depression, with the latter two being the main predictive variables of burden. In addition, caregiver burden was associated with a worsening of health. Identifying the factors that influence the appearance of overburden will allow the specific needs of careers to be assessed in order to offer them emotional support within the healthcare environment.

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Section: Discussionsupporting

confidence: 88%

Level of Burden and Health-Related Quality of Life in Caregivers of Palliative Care Patients

Perpiñá‐Galvañ

Orts-Beneito

Fernández‐Alcántara

et al. 2019

IJERPH

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“…Spiritual change was an important and frequently reported area of positive change in participants’ narratives, which is consistent with other studies in FEP (4) and other adversities (48). Yet, spiritual change received the lowest endorsement of any domain on the Posttraumatic Growth Inventory, which too is consistent with studies focused on other adversities (49–51). This divergence suggests that the Posttraumatic Growth Inventory may not be sensitive to spiritual changes.…”

Section: Discussionsupporting

confidence: 81%

“It’s Brought Me a Lot Closer to Who I Am”: A Mixed Methods Study of Posttraumatic Growth and Positive Change Following a First Episode of Psychosis

2019

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Background: A first episode of psychosis is often a traumatic experience that may also lead to positive change, a phenomenon that has received little attention. This knowledge gap may impede service providers’ capacity to foster positive change among service users. Objective: To investigate aspects of positive change among persons receiving early intervention services for psychosis. Design: The study objective was addressed using a mixed methods convergent design, which entailed simultaneously employing qualitative and quantitative methods. Setting: This study was conducted at a specialized early intervention service for psychosis based in Montreal, Quebec, Canada. Participants: Participants included service users receiving services at an early intervention service for psychosis. Participants had to be fluent in English or French, be clinically stable enough to take part in the study, and have received at least 6 months of treatment. Participants were conveniently sampled in the quantitative component and purposefully sampled in the qualitative component. The quantitative component was carried out using a cross-sectional survey design. Ninety-four participants completed the Posttraumatic Growth Inventory, a widely used measure of positive change. Data on the extent and domains of posttraumatic growth were summarized using descriptive statistics. The qualitative component was carried out using a qualitative descriptive approach. Semistructured interviews were conducted with 12 participants. Data were analyzed using thematic analysis. Findings from both components were integrated using a weaving method in the discussion section. Results: Quantitative results indicated that most participants reported a moderate amounts of posttraumatic growth. A greater appreciation of life was the most commonly endorsed domain, whereas spiritual growth was the least commonly endorsed domain. The qualitative results revealed that in addition to suffering, participants experienced positive changes, such as improved health and personality, and a stronger sense of self; stronger, more balanced religiosity and spirituality; improved relationships with others; and improved lifestyles, goals, and expectations for the future. Conclusions: Positive change may be a common phenomenon in the aftermath of first episode psychosis. The study findings may provide hope to those who have experienced a first episode of psychosis and can inform efforts by early intervention services to provide recovery-oriented, growth-focused care.

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“…Female CCPs, older relatives, and those with religious beliefs were reported to have more PTG. Additionally, being the spouse of a cancer patient had positive impacts on spiritual changes [21]. Similar to our results, there are studies in which analysis of sex effects did not yield significant differences [22,23].…”

Section: Discussionsupporting

confidence: 88%

Posttraumatic growth and death anxiety in caregivers of cancer patients: PHOENIX study

Alkan¹,

Köksoy²,

Karcı³

et al. 2020

Turk J Med Sci

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Background/aim: Posttraumatic growth (PTG) is defined as positive psychological changes following a challenging or traumatic life event. The purpose of this study is to define the predictors of PTG and death anxiety (DAN) in caregivers of cancer patients and evaluate the impact of DAN on PTG. Materials and methods: The caregivers of cancer patients were evaluated using structured questionnaires, including a validated PTG scale and Templer death anxiety scale. Results: In 3 different cancer centers, 426 participants were evaluated. In multivariate analysis of factors associated with PTG, a high DAN score was the only parameter associated with high PTG scores [OR: 1.6, CI (95%) 1.02-2.5, P = 0.03]. In multivariate analysis of factors associated with DAN, female sex was the only risk factor for high DAN scores [OR: 1.6, CI (95%) 1.1-2.8, P = 0.049]. There was a positive correlation between PTG and DAN scores (r = 0.15, P = 0.001). Higher DAN scores were associated with positive impacts on self-perception (37.0 versus 35.0, P = 0.02), philosophy of life (16.0 versus 13.0, P = 0.035), and changes in relationship (16.0 versus 14.0, P = 0.01) Conclusions: This is the first report regarding the association between DAN and PTG. We found a positive impact of death anxiety on psychological changes in caregivers of cancer patients.

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Examining Posttraumatic Growth Among Bereaved Family Members of Patients With Cancer Who Received Palliative Care at Home

Abstract: Clinicians may be able to adjust the support they provide based on patients' personal characteristics. Future research should look at the mechanisms of PTG by examining the role of rumination, social support, and emotional distress among bereaved family members of patients with cancer.

Cited by 12 publications

References 52 publications

Level of Burden and Health-Related Quality of Life in Caregivers of Palliative Care Patients

Level of Burden and Health-Related Quality of Life in Caregivers of Palliative Care Patients

“It’s Brought Me a Lot Closer to Who I Am”: A Mixed Methods Study of Posttraumatic Growth and Positive Change Following a First Episode of Psychosis

Posttraumatic growth and death anxiety in caregivers of cancer patients: PHOENIX study

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