Family relationships in two types of terminal care

Birenbaum, Linda K.; Robinson, Michaelle Ann

doi:10.1016/0277-9536(91)90133-w

Cited by 13 publications

(3 citation statements)

References 14 publications

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“…29 However, others have found family relationships to be better when the child died in the hospital. 30 Acknowledging the selfselecting nature of families' choices, this study showed that higher quality of life may be one of the advantages of providing PPC services in the home. A recent review evaluates modalities to improve PPC for hospitalized children.…”

Section: Discussionmentioning

confidence: 95%

Improved Quality of Life at End of Life Related to Home-Based Palliative Care in Children with Cancer

Friedrichsdorf

Postier

Dreyfus

et al. 2015

Journal of Palliative Medicine

171

140

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Section: Discussionmentioning

confidence: 95%

Improved Quality of Life at End of Life Related to Home-Based Palliative Care in Children with Cancer

Friedrichsdorf

Postier

Dreyfus

et al. 2015

Journal of Palliative Medicine

171

140

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“…This could be related to decrease helplessness and increased family intimacy by being at home. On the other hand, some have reported that family relationships appeared to be better when the child died in the hospital [ 44 ]. While it is often suggested that most children prefer to die at home, this has actually not been systematically evaluated.…”

Section: Common Myths and Misconceptions In Pediatric Palliative Cmentioning

confidence: 99%

Delivering Pediatric Palliative Care: From Denial, Palliphobia, Pallilalia to Palliactive

Friedrichsdorf

Bruera

2018

Children

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Among the over 21 million children with life-limiting conditions worldwide that would benefit annually from a pediatric palliative care (PPC) approach, more than eight million would need specialized PPC services. In the United States alone, more than 42,000 children die every year, half of them infants younger than one year. Advanced interdisciplinary pediatric palliative care for children with serious illnesses is now an expected standard of pediatric medicine. Unfortunately, in many institutions there remain significant barriers to achieving optimal care related to lack of formal education, reimbursement issues, the emotional impact of caring for a dying child, and most importantly, the lack of interdisciplinary PPC teams with sufficient staffing and funding. Data reveals the majority of distressing symptoms in children with serious illness (such as pain, dyspnea and nausea/vomiting) were not addressed during their end-of-life period, and when treated, therapy was commonly ineffective. Whenever possible, treatment should focus on continued efforts to control the underlying illness. At the same time, children and their families should have access to interdisciplinary care aimed at promoting optimal physical, psychological and spiritual wellbeing. Persistent myths and misconceptions have led to inadequate symptom control in children with life-limiting diseases. Pediatric Palliative Care advocates the provision of comfort care, pain, and symptom management concurrently with disease-directed treatments. Families no longer have to opt for one over the other. They can pursue both, and include integrative care to maximize the child’s quality of life. Since most of the sickest children with serious illness are being taken care of in a hospital, every children’s hospital is now expected to offer an interdisciplinary palliative care service as the standard of care. This article addresses common myths and misconceptions which may pose clinical obstacles to effective PPC delivery and discusses the four typical stages of pediatric palliative care program implementation.

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“…Trauma can allow one to realize the importance of honest communication and genuine relationships. For example, studies have indicated strengthened relationships (e.g., more cohesion and expressiveness, less conflict) following traumatic events (Birenbaum & Robinson, 1991;Charles et al, 1996;Gritz, Wellisch, Siau, & Wang, 1990). The most striking example is that of cancer patients who are thankful they have cancer as opposed to other, more immediate diseases (e.g., heart attack, stroke) because it gives them time to appreciate the love and tenderness that is possible between people (Mumford, 1997).…”

mentioning

confidence: 99%

Posttraumatic Growth Among HIV/AIDS Patients¹

Milam

2004

J Applied Social Pyschol

139

133

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Correlates (n= 835 at Time 1) and predictors (n= 434 at Time 2) of posttraumatic growth (PTG; perceiving positive life changes stemming from diagnosis) over 1.6 years were examined among a diverse sample of HIV/AIDS patients. PTG was common–59% of participants reported to have experienced at least moderate positive changes since diagnosis. At Time 1, PTG had significant negative associations with age, alcohol use, depression, and pessimism; and positive associations with African American ethnicity (vs. White), female gender, eating a healthy diet, and optimism. At Time 2, religiosity was positively associated with PTG. The process of experiencing PTG over time was associated with lower levels of depression over time. Although the underlying process of PTG remains unclear, these results suggest that PTG is worthy of intervention focus.

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Family relationships in two types of terminal care

Cited by 13 publications

References 14 publications

Improved Quality of Life at End of Life Related to Home-Based Palliative Care in Children with Cancer

Improved Quality of Life at End of Life Related to Home-Based Palliative Care in Children with Cancer

Delivering Pediatric Palliative Care: From Denial, Palliphobia, Pallilalia to Palliactive

Posttraumatic Growth Among HIV/AIDS Patients¹

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Family relationships in two types of terminal care

Cited by 13 publications

References 14 publications

Improved Quality of Life at End of Life Related to Home-Based Palliative Care in Children with Cancer

Improved Quality of Life at End of Life Related to Home-Based Palliative Care in Children with Cancer

Delivering Pediatric Palliative Care: From Denial, Palliphobia, Pallilalia to Palliactive

Posttraumatic Growth Among HIV/AIDS Patients1

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Product

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Posttraumatic Growth Among HIV/AIDS Patients¹