Improved Quality of Life at End of Life Related to Home-Based Palliative Care in Children with Cancer

Abstract

This is the first North American study to assess outcomes among children with cancer who received concurrent oncology and palliative home care compared with those who received oncology care alone. Symptom distress experiences were similar in groups. However, children enrolled in a PPC home care program appear to have improved quality of life and are more likely to die at home.

Home-Based Palliative Care for Children With Incurable Cancer: Long-term Perspectives of and Impact on General Practitioners

“…Many studies have described the key features associated with providing home-based palliative care to children with cancer from the parent's perspective, health care professionals' perspective, and/or by reviewing the child's medical information [17][18][19][20][21][22][23][24][25][26][27][28][29][30][31][32] . On the other hand, the experiences of GPs with respect to home-based palliative care in children have received relatively little attention 27 30 31 .…”

Pediatric palliative care in Canada in 2012: a cross-sectional descriptive study

“…However, for this study we were interested in the care provided through programs with pediatric palliative care specialists that fit our inclusion criteria, as these types of programs are linked to higher-quality care. [2][3][4][5][6] An important component of the setting of care in Canada is the availability of free-standing pediatric hospices, often associated with a children's hospital, that have been developed after the model of hospices in the United Kingdom. In contrast to "hospice care" in the United States, a term typically denoting additional resources provided at the end of life, often in the home, Canadian pediatric hospices refer to physical buildings that provide respite care earlier in the patient's course along with specialized palliative care services throughout the patient's course.…”

Ønsker palliasjon av barn hjemme

“…Funn viser til at barn og pårøren-de har behov for sosial omgang selv i en livskrise, og at den sosiale delen av barnets liv virker inn på barnets livskvalitet (5,(7)(8)(9)(10)(11) Behandlingen i hjemmet bidrar til økt livskvalitet for hele familien. Pleien er direkte rettet mot familien som helhet og ivaretar dermed alles behov.…”

“…Selv uten kontinuerlig tilsyn, slik som ved en barneavdeling, opplevde foreldrene og barna trygghet. Sykepleieren hadde aldri dårlig tid, ga dem hjelp og veiledning og bidro dermed til mestring, og satte av tid til samtaler (7,8,11,(13)(14)(15)(16).…”