Family Perspectives on Communication With Healthcare Providers During End-of-Life Cancer Care

Abstract

Study findings highlight the importance of training healthcare professionals in the content, timing, and potential biases associated with information delivery to facilitate informed decisions about EOL and hospice care to dying patients and their families.

What Questions do Family Caregivers want to Discuss with Health Care Providers in Order to Prepare for the Death of a Loved One? An Ethnographic Study of Caregivers of Patients at End of Life

“…QPS are effective in facilitating communication because they give caregivers "permission" to ask questions they may be uncomfortable asking. 33,34 QPS also take into account the fact that caregivers have different information seeking styles and different needs for information. 35 This is important because individualizing information is necessary to avoid the harm that may occur when HCPs discuss topics with caregivers who are unwilling or unable to process the information.…”

Death and dying in Australia: perceptions of a Sudanese community

“…Gillick (2009) and Royak-Schaler et al (2006) reported that families try to protect the patient as they fear that the patient will become depressed, downhearted or even suicidal if they knew the truth. In the Sudanese community, this protection is extended to the bereaved and the sick, elders and the very young.…”

Helping Patients With Cancer Prepare for Hospice

“…Patients often have reported wanting to know the truth in a compassionate manner (Royak-Schaler et al, 2006). Conveying compassion during EOL discussions communicates the nurse's desire to help the patient.…”