Helping Patients With Cancer Prepare for Hospice

Hill, Kelly; Hacker, Eileen Danaher

doi:10.1188/10.cjon.180-188

Cited by 6 publications

(2 citation statements)

References 55 publications

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“…For example, nurses must decide which team member should initiate conversations, when it is appropriate to suggest a transition in care, whether or not the patient is eligible for transition, and consider treatment options that may prolong aggressive treatments [25]. Nurses have a unique clinical role that makes them the most accessible care provider on the care team, privy to family conversations and ongoing family communication throughout the care trajectory.…”

Section: Resultsmentioning

confidence: 99%

Targeting Communication Interventions to Decrease Caregiver Burden

Wittenberg-Lyles

Goldsmith²,

Oliver³

et al. 2012

Seminars in Oncology Nursing

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Objectives The goal of this paper was to articulate and describe family communication patterns that give shape to four types of family caregivers: Manager, Carrier, Partner, and Loner. Data Sources Case studies of oncology family caregivers and hospice patients were selected from data collected as part of a larger, randomized controlled trial aimed at assessing family participation in interdisciplinary team meetings. Conclusion Each caregiver type demonstrates essential communication traits with nurses and team members; an ability to recognize these caregiver types will facilitate targeted interventions to decrease family oncology caregiver burden. Implications for Nursing Practice By becoming familiar with caregiver types, oncology nurses will be better able to address family oncology caregiver burden and the conflicts arising from family communication challenges. With an understanding of family communication patterns and its impact on caregiver burden, nurses can aid patient, family, and team to best optimize all quality of life domains for patient as well as the lead family caregiver.

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Section: Resultsmentioning

confidence: 99%

Targeting Communication Interventions to Decrease Caregiver Burden

Wittenberg-Lyles

Goldsmith²,

Oliver³

et al. 2012

Seminars in Oncology Nursing

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show abstract

“…This widening of the 'circle of responsibility' to other hospital professionals, including nurses, social workers, home care coordinators, palliative care physicians, psychiatrists, psychologists and spiritual care specialists, each with their own input and experience, is invaluable [16]. The caregivers of patients in a hospice setting perceive nurses and social workers as most helpful with the transition to hospice care [17].…”

Section: Shared Responsibility/teamworkmentioning

confidence: 99%

Untitled

2018

BJSTR

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Background: Truth-telling by doctors to patients is a basic moral rule in developed healthcare systems. Not to tell the truth jeopardizes staff-patient trust, undermines the patient's capacity for autonomy, and deprives the terminally-ill of a 'good death'. Yet non-truth-telling is still common. This study explores and measures the extent of non-truth-telling to cancer patients in Israel's modern health care system, why it happens and what consequences it leads to. Research Design and Methods:This Mixed Methods study of doctors working regularly in the field of palliative care, in both hospital, community and home care settings centred on two main tools, the first a qualitative structured in-depth interview of 15 doctors (from oncology, hospice home care and family medicine); the second a much longer quantitative self-administered questionnaire for 90 practitioners (30 hospital oncologists, 30 home care specialists, and 30 family medicine specialists). The sample was made fully representative of the research population. The sampling method combined cluster, directed and convenience sampling. Data were analysed by content analysis and descriptive statistics (chiefly means and correlations).Findings: Most oncologists had poor knowledge and a negative opinion of the 2005 act of parliament drawn up to regulate the care and treatment of terminally-ill patients. They knew and thought equally little of the palliative care approach which the Act mandated. Most doctors did not tell patients the full truth about their medical condition and avoided holding an end-of-life conversation with them or discussing Advance Medical Directives, largely out of fear and lack of the emotional resources and communications training required. Most thought truth telling took away hope and that hospice care approximated euthanasia. Many/most were reluctant to face the 'failure' implied in even discussing the transfer of a patient to palliative care. All doctors thought it was another doctor's responsibility to break bad news to patients. There was a huge variance in approach to end-of-life care between hospital oncologists and home care specialists. The consequences of the above were that few patients were given the chance to plan the end-of-life they wanted for themselves and that palliative and hospice care were very much under-used. Main Conclusion:Israeli oncologists are too fearful of patient-centred end-of-life care to be left in sole charge of it. Shared decisionmaking by all members of a multidisciplinary team would help take the responsibility off oncologists, as well as ensure a higher quality of decision-making. Medical training needs to prepare health care staff for interdisciplinary teamwork. Not sharing data/ decisions with the patient threatens both their autonomy and the quality of the decisions made without their input. The Israel Ministry of Health needs to take initiatives to firmly clarify the provisions of the 2005 Act, to provide and enforce training in its requirements, and to firmly apprise oncologists of their duty t...

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COMFORT: Evaluating a New Communication Curriculum With Nurse Leaders

Goldsmith

Wittenberg-Lyles

2013

Journal of Professional Nursing

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Helping Patients With Cancer Prepare for Hospice

Cited by 6 publications

References 55 publications

Targeting Communication Interventions to Decrease Caregiver Burden

Targeting Communication Interventions to Decrease Caregiver Burden

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COMFORT: Evaluating a New Communication Curriculum With Nurse Leaders

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