Family members' of persons living with a serious mental illness: Experiences and efforts to cope with stigma

Karnieli‐Miller, Orit; Perlick, Deborah A.; Nelson, Ann; Mattias, Kate; Corrigan, Patrick W.; Roe, David

doi:10.3109/09638237.2013.779368

Cited by 75 publications

(67 citation statements)

References 17 publications

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“…Otro aspecto a destacar de nuestros resultados, es que parecen indicar que las estrategias de afrontamiento familiar negativas son más habituales en ciertos acontecimientos estresantes como son los accidentes (17) , discapacidades (8) , enfermedades mentales (25,27,31,36) y adicciones (22,26) . Siendo las estrategias de afrontamiento más utilizadas la evitación, la negación y la ocultación del problema.…”

Section: Discussionunclassified

“…Así mismo, según otros autores, estos tipos de estrategias están encaminadas a disminuir la alteración emocional que provoca una situación estresante de la cuál piensan que no pueden hacer nada para modificarla (40) . Por ello, ocultar la enfermedad mental, la adicción o la discapacidad de algún miembro de la familia tiene como finalidad defenderse frente al estigma, ya que esto conlleva un gran coste emocional a nivel familiar, debido a las alteraciones que provoca estas situaciones en la salud familiar y en sus diferentes dimensiones, las relaciones familiares y las redes sociales de esta (22,25) . En cambio, Lazarus (41) afirma que el uso de este tipo de estrategias de afrontamiento a veces puede preceder a la utilización de estrategias de afrontamiento centradas al problema y que conlleven a la supervivencia de la familiar en el tiempo.…”

Section: Discussionunclassified

“…Estas fueron: 6 estudios sobre estrategias de afrontamiento familiar en las enfermedades crónicas (16,18,24,29,35,37) , 6 sobre el Trastorno del Espectro Autista (TEA) (20,23,30,(32)(33)(34) , 4 sobre enfermedades mentales (25,27,31,36) , 2 sobre adicciones (22,26) , 2 sobre accidentes y discapacidad (8,17) , 2 sobre reajuste familiar (21,28) , y el restante, sobre la pérdida del trabajo y las dificultades financieras (19) .…”

Section: Dussel Et Al 2011 (19)unclassified

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Estrategias de afrontamiento familiar y repercusiones en la salud familiar: Una revisión de la literatura

Martínez-Montilla

Amador-Marín

Guerra-Martín

2017

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Introducción: La salud familiar ha constituido una preocupación para todos aquellos que trabajan con la familia. La forma que tiene la familia de enfrentarse a los acontecimientos y proceso vitales estresantes es conocida como afrontamiento familiar y tiene repercusión en la salud familiar. El objetivo del estudio fue conocer las estrategias de afrontamiento familiar y su relación con la salud familiar. Metodología: Se realizó una revisión de la literatura científica a través de las siguientes bases de datos: PubMed/Medline, SCOPUS, PsycINFO y Dialnet, desde 2010 hasta 2016. Resultados: Las estrategias iniciales de búsqueda identificaron un total de 1074 resultados, siendo finalmente seleccionados 23 estudios. En cuanto a las principales situaciones familiares estresantes fueron: enfermedades crónicas, Trastornos del Espectro Autista (TEA), enfermedades mentales y adicciones, accidentes y discapacidad, reajuste familiar, problemas laborales y financieros. Y las principales estrategias de afrontamiento familiar fueron: positivas como búsqueda de información, búsqueda de apoyo familiar, social o espiritual, aceptación y mejora de la autoestima. Y las negativas fueron negación, ocultación, desconexión, auto-culpa, distanciamiento emocional, consumo de sustancia, entre otros. Conclusiones: Los acontecimientos estresantes alteran el equilibrio dinámico familiar, de ahí la importancia de que la unidad familiar posea buenas estrategias de afrontamiento. Por otro lado, es importante que los profesionales de la salud conozcan los principales estresores, así como las estrategias de afrontamiento familiar positivas, para mediante la promoción de la salud, poder prevenir los problemas derivados de un inadecuado afrontamiento familiar.Palabras clave: Salud de la familia; Estrategias de Afrontamiento; Ajuste psicológico; Salud. ABSTRACT:Introduction: Family health has been a concern for all those working with the family. The way how the family has to face the stressful events and vital process is known as family coping and has impact on family health. The objective of the study was to find family coping strategies and their relationship to family health.

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Section: Discussionunclassified

Section: Dussel Et Al 2011 (19)unclassified

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Estrategias de afrontamiento familiar y repercusiones en la salud familiar: Una revisión de la literatura

Martínez-Montilla

Amador-Marín

Guerra-Martín

2017

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“…At the same time, stigmas and discrimination are also common among families, who share similar beliefs about inferiority and may feel a lessened sense of humanity [6]. Other research also has shown that family members of serious mental health consumers, especially caregivers of patients with schizophrenia, often encounter stigma and discrimination [4], [7]–[10]. Family stigma negatively impacts caregivers and persons with schizophrenia, creating burdens, enhancing stress and affecting the quality of life [11].…”

Section: Introductionmentioning

confidence: 99%

Experiences of Stigma and Discrimination among Caregivers of Persons with Schizophrenia in China: A Field Survey

Yin

Zhang

et al. 2014

PLoS ONE

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In China, caregivers for family members with schizophrenia play an important role in treatment and recovery but may experience stigma and discrimination simply because of their family relationship. The object of this study was to measure the degrees and correlates of stigma and discrimination experiences among this group. Four hundred twenty-seven caregivers participated in this hospital-based and cross-sectional study in Ningbo and Guangzhou, China. Data were collected by trained interviewers using fixed questionnaires. Stigma and discrimination experiences were measured by the Modified Consumer Experiences of Stigma Questionnaire (MCESQ). Caregivers’ social support was measured by the Social Support Rating Scale. Parametric analysis, nonparametric analysis and multivariate linear regression were used. The mean (SD) score of MCESQ was 2.44(0.45), 2.91(0.71) for stigma experiences and 1.97(0.37) for discrimination experiences on a five-point score (“1 = never” and “5 = very often”). Approximately 65% of caregivers reported that they tried to conceal their family members’ illness, and 71% lacked the support of friends. The experience of stigma was significantly negatively associated with the perceived social support of caregivers (standard β = −0.2,p<0.001). Caregivers who were children of the patients experienced fewer stigmas than other (standard β = −0.18, p<0.001). Urban residence (standard β = −0.12, p<0.01) and patients did not complete primary school education (standard β = −0.13, p<0.01) were negatively related with stigmas. In addition, stigma and discrimination was more experienced in Zhejiang than in Guangdong (p<0.05). In conclusion, this study performed that caregivers of people with schizophrenia in China experienced general stigmas and rare discrimination and found the relations with social support, kinship, patient’s educational level and regional differences. More interventions and supports should been given to caregivers who are lack of social support, who live in rural area and who are the patients’ parents, spouses or siblings.

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“…Negative comments and behaviors from others, including extended family members, created feelings of rejection and shame and further contributed to emotional distress among caregivers. These feelings of rejection indicate that families may experience social isolation that can add to their subjective burden (Karnieli-Miller et al, 2013; Larson & Corrigan, 2008). Although caregivers may subscribe to strong views on family interdependence, they may experience limited support from their extended family and therefore be vulnerable to increased burden (Hackethal et al, 2013).…”

Section: Discussionmentioning

confidence: 99%

Perceptions of Subjective Burden Among Latino Families Caring for a Loved One with Schizophrenia

Hernández

Barrio

2015

Community Ment Health J

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The purpose of this study was to explore perceptions of subjective burden among Latino family members providing care for a loved one with schizophrenia. Data were collected from outpatient community mental health centers and featured 64 Latino family members who were primarily Spanish speaking and of Mexican origin. We used qualitative methods to examine subjective burden based on an open section of the Family Burden Interview Schedule. Five salient themes emerged capturing family members’ subjective burden experience: (a) interpersonal family relationships, (b) emotional and physical health, (c) loss of role expectations, (d) religion and spirituality, and (e) stigma. Overall, findings illustrated that families perceived numerous challenges in their caregiving. Implications for research and practice among Latino family members are discussed.

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Family members' of persons living with a serious mental illness: Experiences and efforts to cope with stigma

Cited by 75 publications

References 17 publications

Estrategias de afrontamiento familiar y repercusiones en la salud familiar: Una revisión de la literatura

Estrategias de afrontamiento familiar y repercusiones en la salud familiar: Una revisión de la literatura

Experiences of Stigma and Discrimination among Caregivers of Persons with Schizophrenia in China: A Field Survey

Perceptions of Subjective Burden Among Latino Families Caring for a Loved One with Schizophrenia

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