Family members’ narratives of lifespace: Mapping changes before and after a brain injury causing driving disruption

Liang, Phyllis; Liddle, Jacki; Fleming, Jennifer; Gustafsson, Louise

doi:10.1111/1440-1630.12258

Cited by 9 publications

(5 citation statements)

References 30 publications

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“…The mean age was 48.7 years (SD = 10.8, range = 28–68). The complete demographic information is available in Liang et al. (2016b).…”

Section: Resultsmentioning

confidence: 99%

“…The mean age was 48.7 years (SD ¼ 10.8, range ¼ 28-68). The complete demographic information is available in Liang et al (2016b). The occupational experience of family members during driving disruption was captured in three themes: (1) more than just driving; (2) the invisible and undervalued care and (3) being a therapist at home.…”

Section: Resultsmentioning

confidence: 99%

“…To explore this issue in depth, we conducted a prospective, mixed methods, longitudinal study. We have since then documented the impact of driving disruption on family members (Liang et al, 2015a(Liang et al, , 2016b) using a cross-sectional mixed methods approach. The needs and experiences of family members over a 6-month period were reported in two qualitative studies.…”

Section: Introductionmentioning

confidence: 99%

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Occupational experience of caregiving during driving disruption following an acquired brain injury

Liang

Fleming

Gustafsson

et al. 2016

British Journal of Occupational Therapy

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Introduction Caregiving associated with driving disruption following an acquired brain injury is challenging and impacts on family members’ daily lives. However, little is known about the activities and meaning behind the occupation of a family member providing care during driving disruption. Method A prospective longitudinal design with a phenomenological approach was used as part of a larger study exploring family members’ needs and experiences. Forty-two semi-structured interviews were conducted with 15 family members over a 6-month period. Interviews were analysed using inductive thematic analysis. Results The occupational experiences related to caregiving during driving disruption emerged as a key finding. The meaning and activities comprising the caregiving occupation during driving disruption are captured in three themes: (1) More than just driving; (2) The invisible and undervalued care and (3) Being a therapist at home. Family members highlighted the challenges of managing broader and multiple responsibilities. Conclusion The lived experiences, perceived meaning and activities involved in the caregiver occupation during driving disruption extend beyond just transport provision. Family members require support for occupational engagement and satisfaction at this key time. Rehabilitation and support for the person after an acquired brain injury may also improve the occupational experiences of family members.

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“…The mean age was 48.7 years (SD = 10.8, range = 28–68). The complete demographic information is available in Liang et al. (2016b).…”

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Occupational experience of caregiving during driving disruption following an acquired brain injury

Liang

Fleming

Gustafsson

et al. 2016

British Journal of Occupational Therapy

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“…As lifespace data can be visualised over maps of a person's local area, it may be possible to also use these created maps to help reflect on the client's recent community life experiences. Using maps to discuss community mobility can be a powerful and effective way to elicit needs and therapeutic goals (Liang, Liddle, Fleming, & Gustafsson, 2016) and using the client's own passively collected data, rather than interview-elicited data may enhance a grounded discussion, goal setting and problem solving process.…”

Section: Discussionmentioning

confidence: 99%

Impact of deep brain stimulation on people with Parkinson’s disease: A mixed methods feasibility study exploring lifespace and community outcomes

Liddle

Sundraraj

Ireland

et al. 2019

Hong Kong Journal of Occupational Therapy

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Background Deep brain stimulation is a surgical treatment for Parkinson’s disease. Its impacts on motor symptoms are widely reported; however, little is known about the broader impact of deep brain stimulation on the community lives of people with Parkinson’s disease. Lifespace is a measure of lived community mobility, providing an indication of community access and participation. Aims This pilot study explored the feasibility of remotely monitoring the qualitative and quantitative community outcomes related to deep brain stimulation. Methods A longitudinal mixed methods study with a convergent design was undertaken exploring the lifespace, quality of life, life satisfaction and lived experiences of people with Parkinson’s disease before and after deep brain stimulation. Data were collected through questionnaires, semi-structured interviews and a smartphone-based application which collected geolocation data. Results Quantitative and qualitative data from eight participants living with Parkinson’s disease were analysed and integrated. At baseline, participants had a median age of 68 years and a median Hoehn and Yahr score of 2. Measuring a range of community-based outcomes indicated different change trajectories for individuals across outcomes. Key content areas were developed from the qualitative data: participation in occupations and travel and home. This study indicates the potential value of including geolocation data-based lifespace collection in metropolitan and regional areas. Conclusions Monitoring lifespace in conjunction with subjective measures provides insights into the complex and individually varied experiences. Further research could explore the impacts of deep brain stimulation on occupations and community participation to gain a deeper understanding of the related needs and support clinical approaches.

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“…This occupational change within the family therefore has the potential to create a great impact on their daily life and family functioning (Liang et al, 2015;2017), even if it is short-term. As a result, it is necessary for health professionals to engage in discussions with family members around the implications of driving disruption, such as time off work, and actively prepare and assist them with this (Liang et al, 2015;Liang, Liddle, Fleming & Gustafsson, 2016). However, health professionals have previously expressed a lack of confidence in their knowledge and skills to address the topic of driving disruption (Liang et al, 2015).…”

Section: Discussionmentioning

confidence: 99%

Investigating the transition to home experience for people with mild stroke: the mild stroke transitional experience in Australia

Hodson¹

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Background Mild stroke was once considered a benign version of stroke, with minimal ongoing consequences for the person, or society at large. This perception has recently been challenged, with researchers identifying that people experience life changes as a direct consequence of a mild stroke event. Whilst research into the implications of mild stroke has started to grow, research into health services targeted to this population remains scarce. The transition period for people with mild stroke is particularly important to understand as it is a time in which they return to the community and engage in complex activities, and consequently when they start to identify changes that result from the stroke. By identifying this population's experience of the transitional period after stroke, healthcare services can be developed to meet their needs. Research Aims The purpose of this research was to determine the essence of the transition experience to home after acute hospital discharge for people with mild stroke and their key support people, under two different service models; an allied health-led, stroke specific self-management model of care that used telehealth, or 'standard care'. Two research questions were used to achieve this, with the first being 'How do people with mild stroke experience their transition home from acute hospital care?' and the second 'How do people experience the MiSTrEnGTH (Mild Stroke Enhancing and Guiding Transition Home) program in comparison to standard care?' Methodology A qualitative methodology was used in order to understand the 'essence' of the mild stroke experience. Interpretative phenomenological analysis (IPA), was guided by the tiered IPA methodology outlined by Smith, Flowers, and Larkin (2009) for the completion of PhD projects. The first study consisted of a longitudinal exploration of a spousal dyad across the first 9-months after mild stroke. The second and third studies involved five participants with mild stroke along the first 6-months after hospital discharge. The fourth study involved four key support persons who were interviewed at 9-months after hospital discharge. All participants were consecutively recruited and semi-structured interviews were recorded, transcribed verbatim and analysed by two research team members. Findings Findings from the first study revealed the transitional experience from the perspective of a spousal dyad. It highlighted that even in theoretically the best of contextual situations, people with mild stroke and their key support persons can experience changes to their lives following stroke. This finding was based on two themes: 'the unexpected, undesirable and short-lived' and 'the new normal'. The first of these indicated that there is a short period of time following the stroke where it impacts on daily life. The second theme reflects the period following this where life returns to as it was before, but with subtle changes and lingering questions. The second study extended the findings of the first and explored the experience of five people w...

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Family members’ narratives of lifespace: Mapping changes before and after a brain injury causing driving disruption

Cited by 9 publications

References 30 publications

Occupational experience of caregiving during driving disruption following an acquired brain injury

Occupational experience of caregiving during driving disruption following an acquired brain injury

Impact of deep brain stimulation on people with Parkinson’s disease: A mixed methods feasibility study exploring lifespace and community outcomes

Investigating the transition to home experience for people with mild stroke: the mild stroke transitional experience in Australia

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