Occupational experience of caregiving during driving disruption following an acquired brain injury

Abstract

Introduction Caregiving associated with driving disruption following an acquired brain injury is challenging and impacts on family members’ daily lives. However, little is known about the activities and meaning behind the occupation of a family member providing care during driving disruption. Method A prospective longitudinal design with a phenomenological approach was used as part of a larger study exploring family members’ needs and experiences. Forty-two semi-structured interviews were conducted with 15 family members over a 6-month period. Interviews were analysed using inductive thematic analysis. Results The occupational experiences related to caregiving during driving disruption emerged as a key finding. The meaning and activities comprising the caregiving occupation during driving disruption are captured in three themes: (1) More than just driving; (2) The invisible and undervalued care and (3) Being a therapist at home. Family members highlighted the challenges of managing broader and multiple responsibilities. Conclusion The lived experiences, perceived meaning and activities involved in the caregiver occupation during driving disruption extend beyond just transport provision. Family members require support for occupational engagement and satisfaction at this key time. Rehabilitation and support for the person after an acquired brain injury may also improve the occupational experiences of family members.

With a Little Help From My Friends and Family: Transportation and Caregiving Hours

“…This is consistent with previous research demonstrating that informal caregivers often need transportation support (Eby et al, 2017). More hours spent caregiving, as a result of providing regular transportation assistance, might negatively impact employment status (AARP & NAC, 2020) and create conflicting scheduling demands that could cause caregiver and care recipient stress (Liang et al, 2017) as suggested in the caregiving stress process model (Pearlin et al, 1990). Despite reluctance at the prospect of having to provide transportation assistance, due to conflicting role strains and responsibilities (Connell et al, 2013), few caregivers report arranging private and public transportation services for their care recipient’s transportation needs (Eby et al, 2017).…”