Family experience with intensive care unit care: Association of self-reported family conferences and family satisfaction

Kodali, Sashikanth; Stametz, Rebecca; Bengier, Amanda; Clarke, Deserae; Layon, A. Joseph; Darer, Jonathan

doi:10.1016/j.jcrc.2014.03.012

Cited by 47 publications

(45 citation statements)

References 21 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…21 A recent review 23 emphasized that providing patients' families with proactive communication strategies and information may increase families' satisfaction in the ICU. 24 Family members expressed only negative comments about the ICU environment. This result is similar to the findings of Henrich and colleagues, 11 where positive comments were less commonly reported in the freetext questions of the FS-ICU-24 than were negative comments regarding the waiting room environment.…”

Section: Discussionmentioning

confidence: 99%

Measuring Family Satisfaction With Care Delivered in the Intensive Care Unit

Clark

Milner²,

Beck³

et al. 2016

Critical Care Nurse

View full text Add to dashboard Cite

Background In our competitive health care environment, measuring the experience of family members of patients in the intensive care unit to ensure that health care providers are meeting families’ needs is critical. Surveys from Press Ganey and the Centers for Medicare and Medicaid Services are unable to capture families’ satisfaction with care in this setting. Objective To implement a sustainable measure for family satisfaction in a 12-bed medical and surgical intensive care unit. To assess the feasibility of the selected tool for measuring family satisfaction and to make recommendations that are based on the results. Method A descriptive survey design using the Family Satisfaction in the Intensive Care Unit 24-item questionnaire to measure satisfaction with care and decision-making. Results Forty family members completed the survey. Overall, the mean score for families’ satisfaction with care was 72.24% (SD, 14.87%) and the mean score for families’ satisfaction with decision-making was 72.03% (SD, 16.61%). Families reported that nurses put them at ease and provided understandable explanations. Collaboration, inclusion of families in clinical discussions, and timely information regarding changes in the patient’s condition were the most common points brought up in free-text responses from family members. Written communication, including directions and expectations, would have improved the families’ experience. Conclusion Although patients’ family members reported being satisfied with their experience in the intensive care unit, there is room for improvement. Effective communication among the health care team, patients’ families, and patients will be targeted for quality improvement initiatives.

show abstract

Section: Discussionmentioning

confidence: 99%

Measuring Family Satisfaction With Care Delivered in the Intensive Care Unit

Clark

Milner²,

Beck³

et al. 2016

Critical Care Nurse

View full text Add to dashboard Cite

show abstract

“…The importance of communication has been emphasised by numerous studies. [20][21][22][23][24][25] One study found that longer periods of communication between health care providers and Abbreviation: ICU = intensive care unit * All part 1 items except for "spiritual support for family", "support from social workers", and "support from pastors" were included in the analysis † Age and sex of respondents, and all part 2 items except for "given right amount of hope" were included in the analysis families was associated with reduced anxiety among family members of ICU patients. 24 They reported a median (range) time of staff contact as 10 (1-60) minutes.…”

Section: Discussionmentioning

confidence: 99%

Intensive care unit family satisfaction survey

Lam

Fok

et al. 2015

Hong Kong Med J

View full text Add to dashboard Cite

“…Of the 21 studies, 16 were based on single publications from a single cohort 17,[38][39][40][41][42][55][56][57][72][73][74][75][78][79][80] and five were based on multiple publications from overlapping cohorts. 9,10,53,54,[59][60][61][62][63][64][65][66][67][68][69][70][71]76,77 These studies are reported between 2002 and 2014.…”

Section: Settingmentioning

confidence: 99%

“…Most of the studies were based in North America -the USA (n = 9) 53,54,[59][60][61][62][63][64][65][66][67][68][69][70][71][72][73][76][77][78][79][80] and Canada (n = 3) 9,10,56,74 -with other studies based in Greece (n = 2), 41,42 Switzerland (n = 2), 17,55 Germany (n = 1), 39 Israel (n = 1), 57 the Netherlands (n = 1), 75 the Philippines (n = 1) 38 and Turkey (n = 1). 40 Nine studies were single centre, with the remainder being multicentre, ranging from 2 to 23 centres.…”

Section: Settingmentioning

confidence: 99%

Family-Reported Experiences Evaluation (FREE) study: a mixed-methods study to evaluate families’ satisfaction with adult critical care services in the NHS

Wright

Walmsley

Harvey

et al. 2015

Health Serv Deliv Res

View full text Add to dashboard Cite

BackgroundTo improve care it is necessary to feed back experiences of those receiving care. Of patients admitted to intensive care units (ICUs), approximately one-quarter die, and few survivors recollect their experiences, so family members have a vital role. The most widely validated tool to seek their views is the Family Satisfaction in the Intensive Care Unit questionnaire (FS-ICU).ObjectivesTo test face and content validity and comprehensibility of the FS-ICU (phase 1). To establish internal consistency, construct validity and reliability of the FS-ICU; to describe family satisfaction and explore how it varies by family member, patient, unit/hospital and other contextual factors and by country; and to model approaches to sampling for future use in quality improvement (phase 2).DesignMixed methods: qualitative study (phase 1) and cohort study (phase 2).SettingNHS ICUs (n = 2, phase 1;n = 20, phase 2).ParticipantsHealth-care professionals, ex-patients, family members of ICU patients (n = 41, phase 1). Family members of ICU patients (n = 12,303, phase 2).InterventionsNone.Main outcome measuresKey themes regarding each item of the 24-item FS-ICU (FS-ICU-24) (phase 1). Overall family satisfaction and domain scores of the FS-ICU-24 (phase 2).ResultsIn phase 1, face validity, content validity and comprehensibility were good. Adaptation to the UK required only minor edits. In phase 2, one to four family members were recruited for 60.6% of 10,530 patients (staying in ICU for 24 hours or more). Of 12,303 family members, 7173 (58.3%) completed the questionnaire. Psychometric assessment of the questionnaire established high internal consistency and criterion validity. Exploratory factor analysis indicated new domains:satisfaction with care,satisfaction with informationandsatisfaction with the decision-making process. All scores were high with skewed distributions towards more positive scores. For family members of ICU survivors, factors associated with increased/decreased satisfaction were age, ethnicity, relationship to patient, and visit frequency, and patient factors were acute severity of illness and invasive ventilation. For family members of ICU non-survivors, average satisfaction was higher but no family member factors were associated with increased/decreased satisfaction; patient factors were age, acute severity of illness and duration of stay. Neither ICU/hospital factors nor seasonality were associated. Funnel plots confirmed significant variation in family satisfaction across ICUs. Adjusting for family member and patient characteristics reduced variation, resulting in fewer ICUs identified as potential outliers. Simulations suggested that family satisfaction surveys using short recruitment windows can produce relatively unbiased estimates of average family satisfaction.ConclusionsThe Family-Reported Experiences Evaluation study has provided a UK-adapted, psychometrically valid questionnaire for overall family satisfaction and three domains. The large sample size allowed for robust multilevel multivariable modelling of factors associated with family satisfaction to inform important adjustment of any future evaluation.LimitationsResponses to three free-text questions indicate the questionnaire may not be sensitive to all aspects of family satisfaction.Future workReservations remain about the current questionnaire. While formal analysis of the free-text questions did not form part of this proposal, brief analysis suggested considerable scope for improvement of the FS-ICU-24.Study registrationCurrent Controlled Trials ISRCTN47363549.Funding detailsThe National Institute for Health Research Health Services and Delivery Research programme.

show abstract

Family experience with intensive care unit care: Association of self-reported family conferences and family satisfaction

Cited by 47 publications

References 21 publications

Measuring Family Satisfaction With Care Delivered in the Intensive Care Unit

Measuring Family Satisfaction With Care Delivered in the Intensive Care Unit

Intensive care unit family satisfaction survey

Family-Reported Experiences Evaluation (FREE) study: a mixed-methods study to evaluate families’ satisfaction with adult critical care services in the NHS

Contact Info

Product

Resources

About