Family Economic Burden Associated to Caring for Children with Cancer

Velandia, Mercedes Rativa; Carreño-Moreno, Sonia

doi:10.17533/udea.iee.v36n1e07

Cited by 12 publications

(3 citation statements)

References 11 publications

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“…In addition, extended hospitalization increases financial pressure on the family as high medical expenses gradually increase. Rativa also pointed out that as the length of treatment increases, family caregivers need more time and experience to properly care for the children, and the amount of time they could spend working was reduced, resulting in their inability to work normally and further increasing the family's economic burden (Rativa Velandia & Carreño Moreno, 2018). Moreover, long‐term stays in the hospital affect the family caregiver's interpersonal communication.…”

Section: Discussionmentioning

confidence: 99%

The demands of caregivers of children with acute lymphoblastic leukaemia in different therapy stages and the exploration of possible interventions: A longitudinal investigation survey at a Tertiary Medical Institution

Liu

et al. 2022

Nursing Open

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Aim To describe the demands of family caregivers of children with ALL at different therapy stages and explore the possible interventions to address their care demands. Design A longitudinal investigation study. Method A total of 157 family caregivers of children treated in the Haematological oncology ward of a tertiary medical hospital in China between March and December in 2020 were included in this study. The Comprehensive Needs of Caregivers of Cancer Patients and Families Taking Care of Children Scale was used to investigate the family caregivers of children with ALL. The family caregivers completed the questionnaire accompanied by a researcher within two weeks of each therapy stage, which included the induction, consolidation and continuation stages. Results Family caregivers of children with ALL had many demands that varied based on the stage of therapy. Family caregivers in the induction therapy stage needed more information about their children's disease, having the highest score in information demands (35.60 ± 5.85). The family caregivers in the consolidation therapy stage needed more information on symptom management and socio‐economic support, having the highest score in care and support demands (36.14 ± 5.12). The family caregivers in the continuation therapy stage (including interim and maintenance therapy stages) focused more on their own and the children's social adaptation, so they scored the highest for psychosocial demands (35.96 ± 5.69). Conclusion Family caregivers of children with ALL had different demands that varied based on the stage of therapy. Medical personnel should be aware of the primary needs of family caregivers at different therapy stages to provide early interventions and support based on their demands, ultimately improving the physical and mental condition of family caregivers and the quality of care.

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Section: Discussionmentioning

confidence: 99%

The demands of caregivers of children with acute lymphoblastic leukaemia in different therapy stages and the exploration of possible interventions: A longitudinal investigation survey at a Tertiary Medical Institution

Liu

et al. 2022

Nursing Open

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“…Other jurisdictions have also noted the financial hardship and high out-of-pocket expenditure due to cancer, such as the US, Germany and Canada [28][29][30]. The lifetime burden for pediatric cancer sufferers and their families is expected to be particularly high but little is known about this problem in Australia and previous studies were based on small samples [31][32][33][34][35][36].…”

Section: Introductionmentioning

confidence: 99%

Lifetime Costs of Surviving Cancer—A Queensland Study (COS-Q): Protocol of a Large Healthcare Data Linkage Study

Merollini

Gordon

Aitken

et al. 2020

IJERPH

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Australia-wide, there are currently more than one million cancer survivors. There are over 32 million world-wide. A trend of increasing cancer incidence, medical innovations and extended survival places growing pressure on healthcare systems to manage the ongoing and late effects of cancer treatment. There are no published studies of the long-term health service use and cost of cancer survivorship on a population basis in Australia. All residents of the state of Queensland, Australia, diagnosed with a first primary malignancy from 1997–2015 formed the cohort of interest. State and national healthcare databases are linked with cancer registry records to capture all health service utilization and healthcare costs for 20 years (or death, if this occurs first), starting from the date of cancer diagnosis, including hospital admissions, emergency presentations, healthcare costing data, Medicare services and pharmaceuticals. Data analyses include regression and economic modeling. We capture the whole journey of health service contact and estimate long-term costs of all cancer patients diagnosed and treated in Queensland by linking routinely collected state and national healthcare data. Our results may improve the understanding of lifetime health effects faced by cancer survivors and estimate related healthcare costs. Research outcomes may inform policy and facilitate future planning for the allocation of healthcare resources according to the burden of disease.

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“…(Pardue, Fenton, Rounds,1989;Taylor et al, 2011). It also imparts a major financial burden not only on individuals (Timmons et al, 2013) but also on their families (Velandia & Moreno, 2018) and the society they live in, due to the increased burden of decreased productivity, (Luengo-Fernandez et al, 2013) disability (Karami-Matin et al, 2016) and premature mortality (Hanly & Sharp, 2014). .…”

Section: Introductionmentioning

confidence: 99%

Lifestyles and Cancer: A Brief Review

2020

aijcs

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Cancer is a devastating disease. It results in significant physical and mental suffering and gravely affects the financial status of the affected individuals and their families. Practicing healthy lifestyles can prevent many cancers and greatly ameliorate several adverse effects of ten imparted by the disease and its treatment. Healthy lifestyles can also improve the patients’ quality of life and significantly improve outcomes. This brief review looks at the published data on the persuasive benefits of healthy lifestyles on cancer.

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Family Economic Burden Associated to Caring for Children with Cancer

Abstract: The families have a high economic burden associated with caring for the child with cancer. It is necessary to implement social support strategies to these families to keep the economic burden from interfering with adherence to treatment and, hence, with the child's survival.

Cited by 12 publications

References 11 publications

The demands of caregivers of children with acute lymphoblastic leukaemia in different therapy stages and the exploration of possible interventions: A longitudinal investigation survey at a Tertiary Medical Institution

The demands of caregivers of children with acute lymphoblastic leukaemia in different therapy stages and the exploration of possible interventions: A longitudinal investigation survey at a Tertiary Medical Institution

Lifetime Costs of Surviving Cancer—A Queensland Study (COS-Q): Protocol of a Large Healthcare Data Linkage Study

Lifestyles and Cancer: A Brief Review

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