Family Dynamics and Personal Strengths among Dementia Caregivers in Argentina

Elnasseh, Aaliah; Trujillo, Michael A.; Peralta, Silvina Victoria; Stolfi, Miriam E.; Morelli, Eliana; Perrin, Paul B.; Arango-Lasprilla, Juan Carlos

doi:10.1155/2016/2386728

Cited by 19 publications

(27 citation statements)

References 65 publications

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“…As described by Gitlin et al, 68 most of the caregivers found in caregiving a chance to "return the favour" to their relatives and the opportunity to do activities together, reducing both caregiver burden and behavioural symptoms of dementia, which is in agreement with our findings. Findings from Elnasseh et al 69 are consistent with past literature showing that the quality of previous familiar relationship is relevant when a family member becomes a caregiver. In families with healthier dynamics, caregivers are more likely to have greater personal strengths, while families with poor affinity are more likely to experience increased caregiver burden.…”

Section: Discussionsupporting

confidence: 81%

Impact of dementia on informal care: a systematic review of family caregivers’ perceptions

Lindeza

Rodrigues²,

Costa

et al. 2020

BMJ Support Palliat Care

160

158

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IntroductionCaregivers play a major role in providing all the support and care in daily activities for their relatives with dementia. To fully describe the influence of dementia caregiving on family caregivers’ life, we conducted a systematic review including caregivers’ perceptions about the positive and negative aspects of caring and the expressed factors.Materials and methodsWe conducted a systematic review including articles from January 1998 to July 2020. Qualitative studies reporting family caregivers’ perceptions about their experiences and the effects/impact of dementia caregiving were eligible. Two authors extracted the data independently, and the analysis focused on the positive and negative aspects of dementia caregiving in caregivers’ life.ResultsEighty-one studies with 3347 participants were included in this review. The positive aspects of caregiving in caregivers’ life encompass personal accomplishment and strengthening relationships, which were enhanced by good medical counselling/formal care support and family/friends support. The negative aspects included emotional and social aspects experienced by caregivers. Other factors such as inappropriate medical/formal care support, illness progression and the costs of dementia contributed to negative appraisal.Discussion and implicationsThe findings provide insights into the holistic experience of caring for a person with dementia revelling the major positive and negative aspects underlying the caregiver role. The evidence emphasises the need ‘to focus on positive aspects’ and targeted interventions aimed at reducing the negative impact of caregiving, which has serious consequences on caregivers’ quality of life. A multicomplex intervention for dementia informal caregiving should be developed, committing the society to promote mental health, address these community needs and improve the quality of life of the person with dementia and their family caregivers.

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Section: Discussionsupporting

confidence: 81%

Impact of dementia on informal care: a systematic review of family caregivers’ perceptions

Lindeza

Rodrigues²,

Costa

et al. 2020

BMJ Support Palliat Care

160

158

View full text Add to dashboard Cite

show abstract

“…They show that burden is usually associated with lower socio-economic status and with poor outcomes for the dependent older person (Chen et al, 2016). Some studies identify associations between positive family dynamics and family cohesion (defined in general terms) and reduced carer burden (Elnasseh et al, 2016;Perrin et al, 2013). These findings are closely in line with those of similar studies in high income countries.…”

Section: Introductionsupporting

confidence: 69%

Allocating Family Responsibilities for Dependent Older People in Mexico and Peru

Lloyd‐Sherlock

Mayston

Acosta

et al. 2017

The Journal of Development Studies

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This paper applies different analytical frameworks to explore processes of family bargaining about providing care for dependent older people in Mexico and Peru. These frameworks include cultural norms, life course effects and material exchange. The paper is based on 19 in-depth qualitative family case studies, which are linked to a wider set of quantitative survey data. Care arrangements and bargaining processes are revealed to be highly gendered, and largely conform to prevailing cultural norms. Rather than neutral and objective, the selfidentified role as main carer is found to be subjective and potentially ambiguous. The few men who self-identify as main carers are more likely to play an indirect, organisational role than engage directly in daily care. As such, bargaining mainly relates to which woman performs the main care role, and large family networks mean that there is usually more than one candidate carer. Bargaining can occur inter-generationally and conjugally, but bargaining between siblings is of particular importance. Bargaining is framed by the uncertain trajectory of older people's care needs, and arrangements are sometimes reconfigured in response to changing care needs or family circumstances. Taking the narratives at face value, the influence of life course effects on bargaining and care arrangements is more obvious than material exchange. There are, however, indications that economic considerations, particularly inheritance, still play an important behind the scenes role.

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“…The most relevant study we found reported an association between personal strengths and enhanced psychosocial functioning. The strengths identified included resilience, optimism, and a sense of coherence (Elnasseh et al 2016). Resilience was defined as effective coping in times of adversity, optimism as being positive, and sense of coherence as being efficient by using positive coping methods.…”

Section: Discussionmentioning

confidence: 99%

Residential Care Directors’ Perceptions of Desirable Characteristics of Caregivers for Orphaned and Separated Children

Biru

Proeschold‐Bell

Kaiser

et al. 2020

Int J Appl Posit Psychol

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Caring for, raising, and educating orphaned and separated children (OSC) is important work that is critical to the long-term well-being of those children. Despite the importance of caregiving, it can be overwhelming and stressful. Much of the available literature addresses the burdens of caregiving, without addressing the positive characteristics that caregivers need to deliver care in residences for OSC. This study's objective was to identify the desirable characteristics of caregivers through qualitative interviews with directors of residences for OSC across four countries: Cambodia, Ethiopia, India and Kenya. A total of 28 interviews were conducted in the directors' local languages. Interviews were transcribed, translated into English, and analyzed using NVivo software. A thematic analysis of the data yielded three domains: personal qualities, skills, and religion. Across all the study geographic regions, most participants looked for similar characteristics in caregivers, such as love, patience, teamwork and communication skills, especially communicating about difficult child behaviors. These findings can inform plans to enhance effective and sustainable caregiving at residential care sites for OSC and simultaneously benefit the well-being of caregivers. Residential care directors may consider organizing workshops on teamwork and communication skills that will help improve the quality of caregiving.

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Family Dynamics and Personal Strengths among Dementia Caregivers in Argentina

Cited by 19 publications

References 65 publications

Impact of dementia on informal care: a systematic review of family caregivers’ perceptions

Impact of dementia on informal care: a systematic review of family caregivers’ perceptions

Allocating Family Responsibilities for Dependent Older People in Mexico and Peru

Residential Care Directors’ Perceptions of Desirable Characteristics of Caregivers for Orphaned and Separated Children

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