Family-Centered Care

Hostler, Sharon L.

doi:10.1016/s0031-3955(16)38236-0

Cited by 38 publications

(18 citation statements)

References 16 publications

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“…73 Collaboration with the patient and family can lead to a more comprehensive medical record, a better sense of the patient as a person, and a better understanding of how the patient will function at home. When parents are present for the care of their child, they can help the staff provide support to the patient, understand the patient's attempts to communicate, position the patient, reduce a need for sedatives or restraints, and provide essential medical information.…”

Section: Benefits To Health Care Professionalsmentioning

confidence: 99%

Patient- and Family-Centered Care of Children in the Emergency Department

O’Malley¹,

Brown

Krug³

2015

Pediatrics

143

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Patient- and family-centered care is an approach to the planning, delivery, and evaluation of health care that is grounded in a mutually beneficial partnership among patients, families, and health care professionals. Providing patient- and family-centered care to children in the emergency department setting presents many opportunities and challenges. This revised technical report draws on previously published policy statements and reports, reviews the current literature, and describes the present state of practice and research regarding patient- and family-centered care for children in the emergency department setting as well as some of the complexities of providing such care.

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Section: Benefits To Health Care Professionalsmentioning

confidence: 99%

Patient- and Family-Centered Care of Children in the Emergency Department

O’Malley¹,

Brown

Krug³

2015

Pediatrics

143

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“…Only recently it has been accepted that pain and discomfort can affect newborns, whatever their gestational age, and even foetuses [3,4], despite the fact that attention was drawn to this issue already many years ago [5-8]. Likewise, the experience gained in the development of hospices, once again initiated for adults [9] and subsequently adapted to paediatrics and neonatology [10,11], has provided insights towards the PC model applicable to perinatal medicine.…”

Section: Introductionmentioning

confidence: 99%

The model of palliative care in the perinatal setting: a review of the literature

Martı́n-Ancel²,

et al. 2012

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BackgroundThe notion of Palliative Care (PC) in neonatal and perinatal medicine has largely developed in recent decades. Our aim was to systematically review the literature on this topic, summarise the evolution of care and, based on the available data, suggest a current standard for this type of care.MethodsData sources included Medline, the Cochrane Library, CINAHL, and the bibliographies of the papers retrieved. Articles focusing on neonatal/perinatal hospices or PC were included. A qualitative analysis of the content was performed, and data on the lead author, country, year, type of article or design, and direct and indirect subjects were obtained.ResultsAmong the 1558 articles retrieved, we did not find a single quantitative empirical study. To study the evolution of the model of care, we ultimately included 101 studies, most of which were from the USA. Fifty of these were comments/reflections, and only 30 were classifiable as clinical studies (half of these were case reports). The analysis revealed a gradual conceptual evolution of the model, which includes the notions of family-centered care, comprehensive care (including bereavement) and early and integrative care (also including the antenatal period). A subset of 27 articles that made special mention of antenatal aspects showed a similar distribution. In this subset, the results of the four descriptive clinical studies showed that, in the context of specific programmes, a significant number of couples (between 37 and 87%) opted for PC and to continue with the pregnancy when the foetus has been diagnosed with a lethal illness.ConclusionsDespite the interest that PC has aroused in perinatal medicine, there are no evidence-based empirical studies to indicate the best model of care for this clinical setting. The very notion of PC has evolved to encompass perinatal PC, which includes, among other things, the idea of comprehensive care, and early and integrative care initiated antenatally.

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“…Some Authors define FCC as: “the professional support to the child and its family, through participation, engagement and sharing, in a contest of empowerment and negotiation” [1]. …”

mentioning

confidence: 99%