Family caregivers voice their needs: A photovoice study

Angelo, Jennifer; Egan, Richard

doi:10.1017/s1478951514000522

Cited by 28 publications

(19 citation statements)

References 67 publications

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“…Caregivers are heterogeneous in the intensity of their caregiving commitments, demographic profiles, and labor force patterns ( Lilly, 2011 ; Ryan & Kossek, 2008 ; M. Sinha, 2012 ; Swody & Powell, 2007 ). Given Canada’s aging demographic, a growing concern is caregivers’ ability to remain productively employed and financially stable while providing additional support to their dependents ( Angelo & Egan, 2015 ). Carer-employees (CEs) are people in the workforce who provide care and assistance to individuals living with debilitating physical, mental, or cognitive conditions.…”

Section: Introductionmentioning

confidence: 99%

The Predicament of Caring: Work Interferences and Health of Family Caregivers of Persons With Multiple Chronic Conditions

Williams

Sethi

2020

Gerontology and Geriatric Medicine

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Providing caregiving to family members with multiple chronic conditions (MCCs) can interfere with employment status and have a negative impact on caregivers’ well-being. The qualitative analysis of 13 Canadian employees who were also simultaneously providing unpaid care (carer-employees) identified three themes that highlight work interference, negative impacts on well-being, and workplace culture. The findings call for employers to provide health promotion strategies and a supportive workplace culture that reduce workplace interference while being responsive to the unique needs of carer-employees.

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Section: Introductionmentioning

confidence: 99%

The Predicament of Caring: Work Interferences and Health of Family Caregivers of Persons With Multiple Chronic Conditions

Williams

Sethi

2020

Gerontology and Geriatric Medicine

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“…6 Caregivers in New Zealand have also used Photovoice to explore their needs. 7 Beyond the perspective of caregivers, Photovoice has been used by patients in a variety of challenging clinical settings: chronic pain, 8 mental illness 9 and cancer survivors, 10 though it has not previously been described in the literature engaging patient participation in the setting of palliative care.…”

Section: Introductionmentioning

confidence: 99%

Enhanced patient research participation: a Photovoice study in Blantyre Malawi

Bates¹,

Ardrey

Mphwatiwa

et al. 2018

BMJ Support Palliat Care

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ObjectivesPatient involvement in palliative care research is a desirable if challenging goal. Photovoice is an action research method in which affected communities gather photographs to document and discuss their communities’ strengths and concerns. Engagement with policymakers is a separately stated goal. Photovoice is increasingly used in health-related research but has not been widely described in the palliative care literature. We report on experiences and lessons learnt using Photovoice in Blantyre, Malawi to encourage its wider use in research and practice.MethodsThirteen co-researchers (six patients and seven household carers, mean age 47 years) receiving community-based palliative care, attended nine half-day group sessions over a 4-month period. Co-researchers produced, selected and analysed photographs. On completion of data collection, they conducted an advocacy event, including a photographic exhibition, to which media representatives and community leaders were invited.ResultsProcedures to ensure safety of co-researchers and to obtain consent of individuals identified in the photographs were developed during the planning phase. Co-researchers engaged with the Photovoice process with enthusiasm, although frailty and physical disability (poor sight) limited participation for some older adults. Inclusion of palliative care staff within the research team helped to facilitate open dialogue and clinical review where appropriate.ConclusionsIn this Photovoice study, patients and family members receiving palliative care engaged in an exploration of household well-being using photography, participatory analysis and an advocacy event. With appropriate planning, Photovoice can be adapted to a range of settings to enhance patient participation.

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“…Caregivers experience many challenges when caring for dependent family members, including unmet needs in several areas (22)(23)(24) . Caring for caregivers means promoting their health, that of dependent individuals and also that of the entire family.…”

Section: Discussionmentioning

confidence: 99%

Dar Voz aos Cuidadores: um jogo para o cuidador familiar de um doente dependente

Fernandes

Ângelo

Martins

2018

Rev. esc. enferm. USP

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Objective:To construct and assess a board game created to promote the effective transition of family members into caregivers of dependent individuals. Method: This was a qualitative exploratory and descriptive case study conducted with family caregivers of dependent individuals. Results: The study resulted in the conceptualization, construction, and assessment of the board game. The game proved to be an important family evaluation tool, enabling open communication and interventions in family dynamics. Conclusion:The results showed that the game can help build new family narratives, providing an opportunity for open communication, expression of problems and sharing, representing an important family evaluation and intervention strategy.

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Family caregivers voice their needs: A photovoice study

Cited by 28 publications

References 67 publications

The Predicament of Caring: Work Interferences and Health of Family Caregivers of Persons With Multiple Chronic Conditions

The Predicament of Caring: Work Interferences and Health of Family Caregivers of Persons With Multiple Chronic Conditions

Enhanced patient research participation: a Photovoice study in Blantyre Malawi

Dar Voz aos Cuidadores: um jogo para o cuidador familiar de um doente dependente

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