The Predicament of Caring: Work Interferences and Health of Family Caregivers of Persons With Multiple Chronic Conditions

Williams, Allison; Sethi, Bharati

doi:10.1177/2333721420938933

Cited by 5 publications

(3 citation statements)

References 17 publications

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“…Moreover, children should not be disturbed at all since they have work commitments. These findings can be found also in the previous literature, pointing out how both older care recipients and their family carers, consider the government as the main agent responsible for care provision [ 112 , 117 ], since employment negatively impacts the actual possibility and willingness of people to act as caregivers of their loved ones [ 118 ], especially when initiatives for supporting working carers are not well developed [ 119 ]. Our results further highlighted that relations between older people and their families affect the perceived caring role of public services of the former.…”

Section: Discussionsupporting

confidence: 69%

Caring for Frail Older People Living Alone in Italy: Future Housing Solutions and Responsibilities of Family and Public Services, a Qualitative Study

Melchiorre

D’Amen

Lamura

et al. 2022

IJERPH

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When frail older people age alone in place, with increasing functional limitations, they require support in performing daily living activities. In this respect, it is important to assess their preferences in terms of future housing solutions, and their opinions/orientations on the care responsibilities of both family and public services. The present study aimed to explore these aspects in Italy. Qualitative interviews were carried out in 2019 within the “Inclusive ageing in place” (IN-AGE) research project, involving 120 frail older people who lived at home in three Italian regions (Lombardy, Marche, and Calabria). A content analysis was conducted, and some quantifications of interviewees’ statements were provided. The results revealed that the majority of seniors prefer ageing at home, at least with a personal care assistant (PCA), whereas moving to a nursing home is typically deemed as a last option. Moreover, they considered the family to be primarily responsible for taking care of them, even with the support of public services. In addition, some territorial differences emerged. Strengthening an integrated model of long-term care (LTC) for older people, where both formal and informal supports allow frail older people to age at home, seems thus a good overall policy solution to pursue, with interventions based also on the needs and preferences of both seniors and their respective families.

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Section: Discussionsupporting

confidence: 69%

Caring for Frail Older People Living Alone in Italy: Future Housing Solutions and Responsibilities of Family and Public Services, a Qualitative Study

Melchiorre

D’Amen

Lamura

et al. 2022

IJERPH

View full text Add to dashboard Cite

show abstract

“…They are gaggling between their personal career at paid work and their caregiving duties for their loved ones at home or at long-term care home. Since no one can replace them with private responsibilities, most of them have to sacrifice their career if they are employed [35], [36].…”

Section: Also Help Other Elders Who Do Not Have Family Around It's Be...mentioning

confidence: 99%

Informal Caregiving and Its Hidden Cost to National Economy- With a Toronto Case Study

Dong

2022

EJMED

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More than eight million Canadians are providing care for their aging family members, relatives, neighbours, or friends. Due to staff shortage, eldercare facilities are also relying on their residents’ families to fill the gap of the care needs. Caregiving responsibilities have forced many employees to take time-off from work or take early retirement, which is a heavy loss of productivity of Canada’s national economy. This study employed a mixed method strategy, and with both qualitative and quantitative data collection methods: interview, focus group discussion, and a questionnaire survey. It shows that Canadians must take time off from work or to leave jobs for providing care to their loved ones, even when they are residing in a long-term care setting. This seemingly private matter is a very public one in the other side of the coin: family caregivers’ lost time in employment is affecting Canada’s national economy significantly. Government should work with stakeholders to develop a national strategy to tackle the issue. COVID-19 outbreak has revealed long-term care institutions’ struggle with severe staff shortage in Canada.

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“…Further, 56% reported providing care during the pandemic as more emotionally difficult [ 11 ]. Recent studies investigating COVID-19’s impact on caregiving suggest that improving DDCs’ lives and wellbeing will involve targeting policy discussions and increasing support, such as embracing the adoption of carer-friendly workplaces for these populations [ 12 ]. This will be vital in supporting front-line DDCs and reducing negative consequences like illness, work absences, stress, and being a source of contagion to those they are caring for.…”

Section: Introductionmentioning

confidence: 99%

Double-Duty Carers’ Health and Wellbeing during COVID-19: Exploring the Role of Mobility of the Care Economy in Southern Ontario, Canada

Ravensbergen,

Mehta,

Sethi

et al. 2024

IJERPH

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Double-Duty Carers (DDCs) refer to people who work in the healthcare industry while also providing unpaid care to relatives, friends, or neighbours. The expectations placed on DDCs is expected to grow, and these employees already experience a high caring burden. As such it is important to understand how best to support their health and wellbeing. This paper explores DDCs’ wellbeing during the COVID-19 pandemic, focusing an understudied factor: their mobility constraints. Following the Mobility of the Care Economy framework and a qualitative research design, it does so through a thematic analysis of 16 semi-structured interviews with female DDCs in Southern Ontario, Canada. Once data saturation was reached, three mobility pathways during the pandemic were identified, all of which negatively affected DDCs wellbeing. First, some COVID-19 policies (e.g., testing requirements) resulted in increased mobility demands and increased spatiotemporal constraints. Second, the closure of institutions that care for dependents (schools, daycares, day centres) resulted in forced reduced mobility, which increased financial stress. Finally, indirect mobility effects were identified: the reduced mobility of other informal carers increased the workload and emotional strain on DDCs. The paper concludes with a discussion of mobility-related policies that could improve DDC wellbeing.

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The Predicament of Caring: Work Interferences and Health of Family Caregivers of Persons With Multiple Chronic Conditions

Cited by 5 publications

References 17 publications

Caring for Frail Older People Living Alone in Italy: Future Housing Solutions and Responsibilities of Family and Public Services, a Qualitative Study

Caring for Frail Older People Living Alone in Italy: Future Housing Solutions and Responsibilities of Family and Public Services, a Qualitative Study

Informal Caregiving and Its Hidden Cost to National Economy- With a Toronto Case Study

Double-Duty Carers’ Health and Wellbeing during COVID-19: Exploring the Role of Mobility of the Care Economy in Southern Ontario, Canada

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