Family Caregivers' Conceptions of Trust in Home Health Care Providers

Abstract

Trust is important to family caregivers of older adults receiving home health care (HHC). Caregivers rely extensively on nurses, home health aides, and other providers to manage complex care tasks. The current study examined how family caregivers conceive of trust in HHC providers. Directed content analysis methods were applied to 40 qualitative interviews conducted with caregivers of HHC patients aged ≥65 years. Results indicated that caregivers invested trust in providers who displayed competencies in caring for patients with chronic conditions and functional difficulties, willingness to foster frequent and open communication with room for questions and feedback, confidence in their ability to be present and alert for patients, and fidelity to a variety of tasks contributing to holistic care. Caregivers' conceptions of trust in providers are affected by interpersonal aspects of their interactions with providers as well as the broader systems of care within which they participate. [ Research in Gerontological Nursing, 14 (4), 200–210.]

Barriers and facilitators to family caregiver training during home health care: A multisite qualitative analysis

“…We created a semi‐structured interview guide (Table S1) based on study team expertise, our conceptual framework, 11 and existing literature 4,5,12,16–22 . Interviews were conducted between August and October 2020 during the second surge of the COVID‐19 pandemic, prompting inclusion of questions regarding the pandemic's effect on interactions with caregivers.…”

“…research identified a range of factors as impactful for caregiver participation during HHC: individual factors, including older adult care needs and caregiver experience 4,5,12,16,17 ; interpersonal factors, including rapport between caregiver and clinician [18][19][20] ; and structural factors, including HHC agency resources and staffing. 6,17,21,22 We included these three categories as domains in our framework, which helped guide our data collection and analysis by suggesting initial areas of inquiry and related content code domains.…”

“…We created a semi-structured interview guide (Table S1) based on study team expertise, our conceptual framework, 11 and existing literature. 4,5,12,[16][17][18][19][20][21][22] Interviews were conducted between August and October 2020 during the second surge of the COVID-19 pandemic,…”

Current practices of family caregiver training during home health care: A qualitative study

“…Prior studies examining the role of family caregivers during home health suggest the importance of structural factors (e.g., agency training resources, staffing), interpersonal factors (e.g., communication and trust between caregiver/clinician or caregiver/older adult), and individual factors (e.g., caregiver education level, severity of patient care needs) as meaningful determinants of caregiver interactions with the care team. 3,9,10,[19][20][21][22][23][24][25][26] Based on this existing literature and on our study team's content expertise, we developed a conceptual framework (Figure 1) to guide our study. This framework recognizes the importance of these three categories-structural, interpersonal, and individual-and posits how they may interact to affect family caregiver training during home health.…”

The Need for Stability in Paid Dementia Care: Family Caregiver Perspectives

“…Agencies might do more to facilitate good matches by eliciting bidirectional feedback that allows both people with dementia and/or their family caregivers as well as paid caregivers to assess how care is working. This process would need to explicitly acknowledge that the process of building trusting relationships takes time (Reckrey, Geduldig, et al, 2019; Russell et al, 2021; Woodward et al, 2004).…”