Family caregiver strategies to encourage older relatives with dementia to use social services

Takai, Yukari; Yamamoto‐Mitani, Noriko; Okamoto, Yuko; Fukahori, Hiroki; Ko, Ayako; Tanaka, Makoto

doi:10.1111/jan.12155

Cited by 12 publications

(16 citation statements)

References 20 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…When the well-being of people with dementia is entrusted to another person, the sadness and the abandonment the patient feels can lead to feelings of betrayal, guilt, insecurity, and fear among caregivers that can change the level of use of respite services [ 42 , 43 , 46 , 50 , 53 , 55 , 57 , 58 ]. However, when the person with dementia does not feel abandoned and the caregiver is aware that respite is necessary for his or her own health, the decision to seek respite care is simpler [ 48 , 59 , 60 ]. This decision will nevertheless be weighted according to the caregiver’s workload.…”

Section: Resultsmentioning

confidence: 99%

See 1 more Smart Citation

Barriers and enablers in the use of respite interventions by caregivers of people with dementia: an integrative review

Leocadie

Roy²,

Rothan-Tondeur

2018

Arch Public Health

View full text Add to dashboard Cite

BackgroundDue to the increase in the number of people with dementia, relatives often provide in-home care. This care constitutes a cornerstone of the healthcare system, and maintaining these caregivers’ well-being is therefore of paramount importance. Although respite interventions are generally considered an effective support system, they tend to be underutilized. The aim of this integrative literature review is to highlight the factors that promote and impede the use of respite interventions.MethodsSearches were conducted on the PubMed and CINAHL databases for studies of respite interventions from 1980 to 2016, and they yielded 51 articles of relevance.ResultsAnalysis of these articles revealed modifiable and immutable factors that influence the use of respite. The most cited topic categories in the literature were attributes of respite services and workload managed by caregivers, which is characterized by the onset of burden.ConclusionThe factors promoting or impeding the use of respite interventions identified by our analysis highlight the need to adapt respite service attributes and use caregivers’ skills to foster the partnership between healthcare teams and caregivers and to ensure the accompanying dyad’s quality and safety.Electronic supplementary materialThe online version of this article (10.1186/s13690-018-0316-y) contains supplementary material, which is available to authorized users.

show abstract

Section: Resultsmentioning

confidence: 99%

“…Confidence in patient care, recognition of professional abilities, and the legitimacy awarded to care teams promote the use of respite [ 48 , 49 , 51 , 60 , 61 ]. The care staff’s abilities were barriers and promoting factors.…”

Section: Resultsmentioning

confidence: 99%

Barriers and enablers in the use of respite interventions by caregivers of people with dementia: an integrative review

Leocadie

Roy²,

Rothan-Tondeur

2018

Arch Public Health

View full text Add to dashboard Cite

show abstract

“…Family caregivers tried to enhance the motivation of hip‐fractured older persons with cognitive impairment to engage in postoperative rehabilitation. Similarly, Japanese family caregivers used various strategies to encourage older community‐dwelling relatives with dementia to use social services (Takai et al, 2013). Our finding that family caregivers of hip‐fractured persons with cognitive impairment used vigilance as a strategy to resume normal life echoes prior reports that caregivers needed to monitor patients for new signs or symptoms and adverse events, and that caregiving was more complex if the care receiver had impaired cognition (Pinquart & So?rensen, 2003; Sherwood, Given, Doorenbos, & Given, 2004).…”

Section: Discussionmentioning

confidence: 99%

Resuming Normal Life as a Family Caregiver During Drip‐Like Recovery of Older Persons With Cognitive Impairment Recovering From Hip Surgery: A Grounded Theory

Shen

Yang

et al. 2020

J of Nursing Scholarship

View full text Add to dashboard Cite

Contributed equally to this work. AbstractPurpose: This study was undertaken to develop a theoretical framework explaining family caregiving processes for older persons with cognitive impairment recovering from hip fracture surgery. Design and Methods: In this grounded theory study, data were collected in audio-recorded face-to-face interviews with 21 family caregivers. Among these caregivers, 14 cared for hip-fractured persons with cognitive impairment, and seven cared for those without cognitive impairment. Caregivers were interviewed five times after patients' discharge: at 1 week and at 1, 3, 6, and 12 months. Data were analyzed by constant comparative analysis. Findings: The core category explaining the family caregiving process for hip-fractured persons with cognitive impairment was "resuming normal life during drip-like recovery." This category captures the slowness of the recovery process, as slow as dripping water. During the early postoperative period, caregivers attempted to gain control of the postoperative situation, using various maintenance and improvement strategies to deal with the chaos in individuals and the family and to protect hip-fractured persons with cognitive impairment from further harm. The goal of recovery was to get back to their original life. Conclusions: Family caregivers of hip-fractured older persons with cognitive impairment needed to deal with more complex chaotic situations, exerted more efforts to administer safety measures, and required more time to achieve a stable life pattern. Clinical Relevance: Since postoperative recovery was perceived as extremely slow, family caregivers of hip-fractured older persons with cognitive impairment should be patient regarding recovery and be informed before hospital discharge of different strategies to resume normal life during postoperative recovery.

show abstract

“…Many difficulties between dementia patients and their families exist due to insufficient practical management by professional staff, good cooperation between medical and nursing care staff, or community support . ODCC may partly supplement these deficiencies, and play an important role in a community care system that enables people, even those with dementia, to live a full and independent life in their local community.…”

Section: Discussionmentioning

confidence: 99%

A unique telephone support system for dementia patients and their caregivers managed in Japan (Okayama Dementia Call Center, ODCC)

Nakano

Hishikawa

Sakamoto³

et al. 2018

Neurology & Clinical Neurosc

View full text Add to dashboard Cite

Background: Despite a rapidly increasing prevalence of dementia, social support systems for dementia patients and their caregivers are insufficient. Aim: To investigate a telephone support system for dementia patients and their caregivers managed by a local public association, the "Okayama Dementia Call Center (ODCC)." Methods: A total of 1485 phone calls were retrospectively surveyed over 4 years (from June 2011 to May 2014) and were divided into four annual periods. Results: The average consulting time of each of the 1485 phone calls was 20.2 AE 14.7 min. The chief complaint was distress related to dementia symptoms (56.2%), mainly from the children (66.7%) and spouses (17.5%) of dementia patients. With respect to management of ODCC for these clients, the proportion of providing advice has decreased (66.1 to 47.7%) as that of listening time increased (22.7 to 46.1%). Conclusion: The present unique telephone call system (ODCC) may supplement an insufficient social support, and may play an important role in the community care system, enabling people with dementia to live comfortably in their local community.

show abstract

Family caregiver strategies to encourage older relatives with dementia to use social services

Abstract: Nurses should carefully assess caregivers' strategies in their attempts to encourage service use and should provide adequate assistance in accordance with those strategies.

Cited by 12 publications

References 20 publications

Barriers and enablers in the use of respite interventions by caregivers of people with dementia: an integrative review

Barriers and enablers in the use of respite interventions by caregivers of people with dementia: an integrative review

Resuming Normal Life as a Family Caregiver During Drip‐Like Recovery of Older Persons With Cognitive Impairment Recovering From Hip Surgery: A Grounded Theory

A unique telephone support system for dementia patients and their caregivers managed in Japan (Okayama Dementia Call Center, ODCC)

Contact Info

Product

Resources

About