Family appraisal of paediatric acquired brain injury: a social work clinical intervention trial

Hickey, Lyndal; Anderson, Vicki; Hearps, Stephen; Jordan, Brigid

doi:10.1080/17518423.2018.1434697

Cited by 9 publications

(10 citation statements)

References 26 publications

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“…A coordinated model of care that provides psychosocial care both during hospitalisation and postdischarge would reduce the psychological care gap for injured children and their families, particularly in key care transitions such as from hospital to community [30] . The 'Family Forward' intervention reported reductions in trauma and grief responses at six weeks post a child's injury [31] ; however it appears that a longterm social work family case management approach is required to ensure continuity of care, integration of support and early targeted intervention to prevent long-term adverse outcomes.…”

Section: Discussionmentioning

confidence: 99%

Parent perspectives and psychosocial needs 2 years following child critical injury: A qualitative inquiry

Foster

Van

McCloughen

et al. 2020

Injury

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Introduction: To provide effective care and promote wellbeing and positive outcomes for parents and families following paediatric critical injury there is a need to understand parent experiences and psychosocial support needs. This study explores parent experiences two years following their child's critical injury. Methods: This multi-centre study used an interpretive qualitative design. Parent participants were recruited from four paediatric hospitals in Australia. Semi-structured interviews were audio recorded and transcribed verbatim. Qualitative data were thematically analysed and managed using NVivo 11. Results: Twenty-two parents participated. Three themes were identified through analysis: Recovering from child injury; Managing the emotional impact of child injury; Being resilient and finding ways to adapt. Conclusions: A long-term dedicated trauma family support role is required to ensure continuity of care, integration of support and early targeted intervention to prevent long-term adverse outcomes for critically injured children and their families. Early and ongoing psychosocial intervention would help strengthen parental adaptation and address families' psychosocial support needs following child injury.

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Section: Discussionmentioning

confidence: 99%

Parent perspectives and psychosocial needs 2 years following child critical injury: A qualitative inquiry

Foster

Van

McCloughen

et al. 2020

Injury

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“…This study supports the findings from other trials with this population that any social work intervention needs to conduct ongoing family appraisal as issues related to their child's injury arise over time, particularly to improve coordination across care transitions (such as hospital discharge) to ensure continuity of care and integration of support (Kirk et al, 2015). Any intervention should focus on parental need for information, emotional support, and access to community-based services (Jones et al, 2018), and the longer term benefits of social work intervention evaluated (Hickey et al, 2018). Current in-hospital models require redesigning to reduce the ongoing fragmentation of psychosocial care for critically ill children and their families.…”

Section: Discussionmentioning

confidence: 99%

“…However informal feedback provided by families to the TSC was positive with many families saying they were grateful for the care they received while they were in hospital. Other family follow-up research conducted in Australia highlights the difficulties of recruiting this vulnerable population (Foster et al, 2019;Hickey et al, 2018). The role was implemented in a part-time capacity, not enabling early contact with some families.…”

Section: Discussionmentioning

confidence: 99%

Evaluation of a Paediatric Trauma Social Worker Service

Curtis

Van

Foster

et al. 2020

Australian Social Work

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Injury is the leading cause of hospitalisation of children in Australia and can cause ongoing physical and psychological morbidity. Hospital staff provide excellent physical care to injured children, but there is a need for models of care that improve psychosocial care. To address this gap, a trauma support social work service was trialled at an Australian paediatric trauma hospital, to guide families of injured children through the healthcare system from the day of the child's injury to 6 months following discharge. A mixed methods approach was used to evaluate the service and used a range of data sources-trauma registry records, the Trauma Support Coordinator (TSC) journal, staff surveys, and interviews. Findings from this small study suggest the TSC was able to improve the coordination of care, provide information, and meet the emotional needs of families of injured children. Ways to improve the effectiveness and acceptance of the TSC role were also identified. IMPLICATIONS. Injured children should be allocated a dedicated TSC for their entire stay in hospital to provide continuity of care for the child and their family.. Situating the TSC role in the Emergency Department will allow for early contact with families when support is most crucial.. Incorporation of the TSC role into the social work roster will reduce "doubling up" of psychosocial services offered to families.

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“…The secondary outcome and predictor measures and their psychometric properties are listed in tables 1 and 2, respectively. The secondary outcome measures cover the following domains—behavioural attention (inattention and hyperactivity), working memory, social cognition and numeracy—and have been included to assess whether far transfer occurs as a result of the intervention 27 36 37. The predictor measures cover the domains of sleep, intrinsic motivation, family relationships, mental health and social cognition (parent report) 15 17 38–43.…”

Section: Methods and Analysismentioning

confidence: 99%

“…While the AIM21 and the Amat-c22 24 demonstrate some improvements in cognitive measures of attention, a common shortfall has been the lack of transfer to other domains, with little to no improvements seen in academic achievement, behaviour or parent ratings of attention 21. Many of these interventions require extensive time commitments, resulting in poor compliance and high attrition,25 26 and fail to consider the influence of broader psychosocial factors, such as family functioning, when assessing the efficacy of cognitive training 23 27…”

Section: Introductionmentioning

confidence: 99%

Training attention in children with acquired brain injury: a study protocol of a randomised controlled trial of the TALI attention training programme

et al. 2019

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IntroductionChildhood inattention has been linked with poor academic outcomes, and increased lifetime social, occupational and psychiatric morbidity. Children with an acquired brain injury (ABI) are particularly susceptible to attention deficits and may benefit from interventions aimed at enhancing attention. The primary objective of this study is to evaluate the short-term efficacy of the TALI Train programme, compared with a placebo, on the outcome of attention in children with ABI.Methods and analysisThe study is a parallel, double-blind, randomised controlled trial. Participants will consist of 80 children with a diagnosis of ABI aged 4–9 years 11 months. Participants will be randomly allocated to either (1) TALI Train (intervention group), an adaptive game-based attention training programme, or (2) a non-adaptive placebo programme (control group). Both programmes are delivered on a touchscreen tablet, and children complete five 20 min sessions per week for a 5-week period at home. Assessment of selective, sustained and executive attention (primary outcomes), and behavioural attention, working memory, social skills and mathematics ability (secondary outcomes) will occur at baseline, post-training, and at 3-month and 6-month follow-up to assess immediate and long-term efficacy of TALI Train compared with placebo. Assessments will be completed at the Royal Children’s Hospital in Melbourne, Australia. All assessments and analyses will be undertaken by researchers blinded to group membership. Latent growth curve modelling will be employed to examine primary and secondary outcomes.Ethics and disseminationEthics approval has been obtained from the Royal Children’s Hospital Human Research Ethics Committee (HREC) (38132) and the Monash University HREC (17446). Results will be disseminated through peer-reviewed journals, conference presentations, media outlets, the internet and various community/stakeholder activities.Trial registration numberACTRN12619000511134.

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Family appraisal of paediatric acquired brain injury: a social work clinical intervention trial

Cited by 9 publications

References 26 publications

Parent perspectives and psychosocial needs 2 years following child critical injury: A qualitative inquiry

Parent perspectives and psychosocial needs 2 years following child critical injury: A qualitative inquiry

Evaluation of a Paediatric Trauma Social Worker Service

Training attention in children with acquired brain injury: a study protocol of a randomised controlled trial of the TALI attention training programme

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