Families' and Decision Makers' Experiences With Mental Health Care Reform: The Challenge of Collaboration

Lavoie‐Tremblay, Mélanie; Bonin, Jean‐Pierre; Bonneville‐Roussy, Arielle; Briand, Catherine; Perreault, Michel; Piat, Myra; Lesage, Alain; Racine, Hélène; Laroche, Dominique; Cyr, Guylaine

doi:10.1016/j.apnu.2012.04.007

Cited by 14 publications

(18 citation statements)

References 38 publications

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“…The preferences, goals, needs, and expectations of the patients (and social support network) need to be discussed [ 32 – 36 ]. Skills and knowledge play an important role in the level of engagement, as patients with more knowledge and education will be empowered and more likely to engage in decision making [ 37 – 39 ].…”

Section: Resultsmentioning

confidence: 99%

“…In some contexts, the social support network (family, friend, neighbor) must also be acknowledged [ 37 , 40 – 43 ]. The term “social support networks” better describes the informal support that we previously termed “family caregiver.” Social support networks could include family, friends, neighbors, or peers, as identified through our literature review.…”

Section: Resultsmentioning

confidence: 99%

“…Attitudes and characteristics of healthcare providers were reported as playing a role in how and the extent to which patients and their social support networks are engaged in healthcare decision making [ 3 , 37 ]. As with patients, the skills and knowledge of healthcare providers are important, and the provision of education and resources can help healthcare providers engage patients and their families in meaningful partnerships [ 3 , 44 ].…”

Section: Resultsmentioning

confidence: 99%

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Engaging Older Adults in Health Care Decision-Making: A Realist Synthesis

Elliott

McNeil

Ashbourne

et al. 2016

Patient

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BackgroundEngagement in healthcare decision making has been recognized as an important, and often lacking, aspect of care, especially in the care of older adults who are major users of the healthcare system.ObjectiveWe aimed to conduct a review of available knowledge on engagement in healthcare decision making with a focus on older patients and their caregivers.MethodsWe conducted a realist synthesis focusing on strategies for engagement of older patients and their caregivers in healthcare decision making. The synthesis encompassed theoretical frameworks and both peer-reviewed and grey literature. Expert consultations included interviews (n = 2) with academics and group consultations (n = 3) with older adults and their caregivers. Abstracts that reported description, assessment, or evaluation of strategies for engagement of adult patients, families, or caregivers (i.e., that report on actual experiences of engagement) were included.ResultsThe search generated 15,683 articles, 663 of which were pertinent to healthcare decision making. Theoretical and empirical work identified a range of strategies and levels of engagement of older patients and their families in healthcare decision making. The importance of communication emerged as a key recommendation for meaningful engagement among providers and patients and their caregivers. The principles developed in this study should be implemented with consideration of the context in which care is being provided.ConclusionsWe have developed a framework that promotes the engagement of patients and their caregivers as equal partners in healthcare decision making. Future research should implement and test the framework in various clinical settings.Electronic supplementary materialThe online version of this article (doi:10.1007/s40271-016-0168-x) contains supplementary material, which is available to authorized users.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

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Engaging Older Adults in Health Care Decision-Making: A Realist Synthesis

Elliott

McNeil

Ashbourne

et al. 2016

Patient

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“…With little research on nursing's viewpoint on responsibilities toward families in mental health facilities, it is suggested further research be devoted to this issue (van de Bovenkamp & Trappenburg, 2010;Weimand et al, 2011Weimand et al, , 2013. In light of health professionals appearing to lack expertise to collaborate with families (Lavoie-Tremblay et al, 2012;Rowe, 2012), a further recommendation is to identify specific gaps in nursing education regarding ways to include families during hospitalizations (van de Bovenkamp & Trappenburg, 2010). Studies should also address if and how issues such as workload, staffing levels, interpretation of privacy, and confidentiality laws (Jankovic et al, 2011) may prohibit nurses from supporting family members and what factors could improve this relationship (Lavoie-Tremblay et al, 2012).…”

Section: Recommendations For Future Researchmentioning

confidence: 99%

“…In light of health professionals appearing to lack expertise to collaborate with families (Lavoie-Tremblay et al, 2012;Rowe, 2012), a further recommendation is to identify specific gaps in nursing education regarding ways to include families during hospitalizations (van de Bovenkamp & Trappenburg, 2010). Studies should also address if and how issues such as workload, staffing levels, interpretation of privacy, and confidentiality laws (Jankovic et al, 2011) may prohibit nurses from supporting family members and what factors could improve this relationship (Lavoie-Tremblay et al, 2012). Clarke and Winsor (2010) suggest studies could be completed to determine if differing needs exist among families related to the type of family relationship, that is, spouse, child, and so on, nature of the illness involved, and involuntary or first-time hospitalizations.…”

Section: Recommendations For Future Researchmentioning

confidence: 99%

Inpatient Psychiatric Care: Families’ Expectations and Perceptions of Support Received From Health Professionals

Miller

2016

Perspect Psychiatr Care

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Mental Health Disparities, Treatment Engagement, and Attrition Among Racial/Ethnic Minorities with Severe Mental Illness: A Review

Maura

Mamani

2017

J Clin Psychol Med Settings

198

106

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Mounting evidence indicates that there are mental health disparities in the United States that disadvantage racial/ethnic minorities in medical and mental health settings. Less is known, however, about how these findings apply to a particularly vulnerable population, individuals with severe mental illness (SMI). The aim of this paper is to (1) provide a critical review of the literature on racial/ethnic disparities in mental health care among individuals with SMI; (2) identify factors which may contribute to the observed disparities; and (3) generate recommendations on how best to address these disparities. Specifically, this article provides an in-depth review of sociocultural factors that may contribute to differences in treatment engagement and rates of attrition from treatment among racial/ethnic minorities with SMI who present at medical and mental health facilities. This review is followed by a discussion of specific strategies that may promote engagement in mental health services and therefore reduce racial/ethnic disparities in SMI.

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Families' and Decision Makers' Experiences With Mental Health Care Reform: The Challenge of Collaboration

Cited by 14 publications

References 38 publications

Engaging Older Adults in Health Care Decision-Making: A Realist Synthesis

Engaging Older Adults in Health Care Decision-Making: A Realist Synthesis

Inpatient Psychiatric Care: Families’ Expectations and Perceptions of Support Received From Health Professionals

Mental Health Disparities, Treatment Engagement, and Attrition Among Racial/Ethnic Minorities with Severe Mental Illness: A Review

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