Failure of hearing screening in high-risk neonates does not increase parental anxiety

Suppiej, Agnese; Cainelli, Elisa; Benedittis, M. De; Rizzardi, Elena; Bisiacchi, Patrizia; Ermani, Mario; Orzan, Eva; Zanardo, Vincenzo

doi:10.3109/14767058.2013.766687

Cited by 8 publications

(4 citation statements)

References 20 publications

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“…This already-complex condition is also influenced by many other variables, such as patient-specific characteristics, potential hypoxic/ischemic cascades triggered by hypoperfusion during cardiac surgery, and pre- and postoperative factors 7 , 8 . Furthermore, the effects of early exposure to stressful environments and dysfunctional parental attitudes associated with a child’s medical illness may be additional risk factors, arguments thoroughly discussed in other medical contexts (for example, see 9 ).…”

Section: Introductionmentioning

confidence: 99%

Detecting neurodevelopmental trajectories in congenital heart diseases with a machine-learning approach

Cainelli

Bisiacchi

Cogo

et al. 2021

Sci Rep

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We aimed to delineate the neuropsychological and psychopathological profiles of children with congenital heart disease (CHD) and look for associations with clinical parameters. We conducted a prospective observational study in children with CHD who underwent cardiac surgery within five years of age. At least 18 months after cardiac surgery, we performed an extensive neuropsychological (intelligence, language, attention, executive function, memory, social skills) and psychopathological assessment, implementing a machine-learning approach for clustering and influencing variable classification. We examined 74 children (37 with CHD and 37 age-matched controls). Group comparisons have shown differences in many domains: intelligence, language, executive skills, and memory. From CHD questionnaires, we identified two clinical subtypes of psychopathological profiles: a small subgroup with high symptoms of psychopathology and a wider subgroup of patients with ADHD-like profiles. No associations with the considered clinical parameters were found. CHD patients are prone to high interindividual variability in neuropsychological and psychological outcomes, depending on many factors that are difficult to control and study. Unfortunately, these dysfunctions are under-recognized by clinicians. Given that brain maturation continues through childhood, providing a significant window for recovery, there is a need for a lifespan approach to optimize the outcome trajectory for patients with CHD.

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Section: Introductionmentioning

confidence: 99%

Detecting neurodevelopmental trajectories in congenital heart diseases with a machine-learning approach

Cainelli

Bisiacchi

Cogo

et al. 2021

Sci Rep

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“…Although the emotional aspect of the findings sound like the measures of previous studies [12,14], the context is quite different particularly in relation to the timing of assessment. Previous studies’ measurements tools were mostly used during or after the screening process [14,24,38]. This study findings will allow for the potential tool to be used from the planning to the implementation phases of UNHS programme.…”

Section: Discussionmentioning

confidence: 82%

Mapping the content of mothers’ knowledge, attitude and practice towards universal newborn hearing screening for development of a KAP survey tool

et al. 2019

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Understanding mother’s knowledge, attitude and practice (KAP) of permanent childhood hearing impairment (PCHI) is essential for the success of universal newborn hearing screening (UNHS) as poor compliance and follow-up remains a global challenge. To determine content area for a questionnaire that measures PCHI-related KAP in rural mothers, we trained moderators who interviewed 145 pregnant women (17 groups) from 5 ante-natal clinics. Interviews were recorded, transcribed, summarised and analysed using thematic framework analysis. Four knowledge themes were identified: 1) PCHI was perceived as the malfunction of hearing leading to disability; 2) a poorly-responsive/communicative child may have PCHI; 3) lifestyle, hereditary and environmental factors are significant causes of PCHI; 4) medical management of PCHI was doubted, with some advocating birth and ancestral rituals. Two themes were identified for attitude: 1) beliefs that PCHI was emotionalised due to the negative lifelong impact on the child and family; 2) UNHS processes were favourable though some preferred other belief systems. Three themes were identified for practice: 1) doctors were the first choice followed by traditional healers; 2) willingness to continue follow-up although challenges exist; 3) minimal family support during consultation. The contextualised KAP of women regarding UNHS processes and PCHI provided content area for the design of a KAP tool.

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“…Some studies did not report validity [9,14,40]. Other studies adapted previous tools [6,11,13], while some studies modified these tools and conducted a pilot study but provided no evidence of validity [15,41]. Nevertheless, it is hoped that the tool developed in this study will help initiate a new line of research which integrates and validates community perspectives of KAP with regard to CHL and NHS.…”

Section: Discussionmentioning

confidence: 97%

“…It is believed that more effective UNHSPs will result from a better understanding of the wider context of the community's knowledge and perspective about ear health. The existing literature however, refers to the maternal knowledge and attitude to UNHSPs which has been obtained from well-established programmes that are part of mainstream health care services [5][6][7][8][9][10][11]. In developing countries research comes predominantly from urban areas, either in immunisation clinics or community settings [12][13][14][15][16].…”

Section: Introductionmentioning

confidence: 99%

Development of a questionnaire to assess mothers’ knowledge, attitudes and practice with regard to childhood hearing loss and Universal Newborn Hearing Screening

Graham¹,

Gina²,

Seeley³

et al. 2023

International Journal of Pediatric Otorhinolaryngology

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Failure of hearing screening in high-risk neonates does not increase parental anxiety

Abstract: Failure of neonatal auditory screening does not affect the anxiety levels of parents of high-risk infants at post discharge from NICU. This finding is a key factor to be considered when evaluating the costs and benefits of tests for universal neonatal hearing screening.

Cited by 8 publications

References 20 publications

Detecting neurodevelopmental trajectories in congenital heart diseases with a machine-learning approach

Detecting neurodevelopmental trajectories in congenital heart diseases with a machine-learning approach

Mapping the content of mothers’ knowledge, attitude and practice towards universal newborn hearing screening for development of a KAP survey tool

Development of a questionnaire to assess mothers’ knowledge, attitudes and practice with regard to childhood hearing loss and Universal Newborn Hearing Screening

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