Factors of importance to the caregiver burden experienced by family caregivers of Parkinson’s disease patients

Caap‐Ahlgren, Marianne; Dehlin, Ove

doi:10.1007/bf03324464

Cited by 94 publications

(104 citation statements)

References 20 publications

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“…Significant stressors identified in this study, specifically the patient's severity of illness, length of disease, and hours of caregiving, were similarly reported in other PD research studies as major stressors for caregivers [14,15,24] . The caregiver study results indicated that the quality of the caregiver-veteran relationship was significantly related to stress levels; this finding was also supported by other researchers [19,20] .…”

Section: Discussionsupporting

confidence: 76%

Stressors identified by caregivers for veterans with Parkinson’s disease

Nelson

Fincher²,

Johnson³

et al. 2014

Clinical Nursing Studies

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Nurses assume that they know the stressors of Parkinson's disease (PD) caregivers but a scarcity of research findings exists. This study was designed to identify those needs and stressors for the purposes of improving support and developing caregiver educational and interventional programs.Caregivers were recruited from a database of 756 U.S. veterans with PD. A caregiver questionnaire was mailed to a random sample of 300 subjects. Non-parametric statistics were used to interpret caregiver characteristics and variable correlations. A logistic regression model provided insight into factors influencing stress.One hundred and fifteen caregivers participated (38.3% response). Their mean age was 66.6 years. Eighty-four percent had been a caregiver between 3-20 years, and 50 percent estimated a PD disease severity above 7 (0-10 scale).We learned that as PD progresses in severity and requires more physical and emotional support, nurses need to attend to caregivers' increased stressors and quality of life.

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Section: Discussionsupporting

confidence: 76%

Stressors identified by caregivers for veterans with Parkinson’s disease

Nelson

Fincher²,

Johnson³

et al. 2014

Clinical Nursing Studies

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“…Because of the significant finding of increased caregiver burden in friends and family members of individuals with Alzheimer's disease [11][12][13], a similar increased burden would be likely in caring for individuals with PD. Supporting this concept, two recent studies demonstrated that caregiver burden in PD is associated with patient functional status, depressive symptoms, time since onset of PD, and other health-related issues [14][15]. Consequently, a sharper focus on the burden experienced by PD caregivers appears warranted.…”

Section: Introductionmentioning

confidence: 99%

Caregiver distress in parkinsonism

Cifu¹,

Carne²,

Brown³

et al. 2006

JRRD

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Abstract-This study examined the frequency and degree of caregiver burden in persons with parkinsonism, a group of disorders with four primary symptoms that include tremor, rigidity, postural instability, and bradykinesia. We assessed associations between perceived caregiver burden and physical, cognitive, and functional impairments using well-established tools for persons with parkinsonism. The 49 individuals with parkinsonism ranged in age from 61 to 87 (mean = 75), while their caregivers (N = 49) ranged in age from 48 to 83 (mean = 70). The caregivers were predominantly either wives (82%) or daughters (6%), with other family members, friends, and/or neighbors (12%) making up the rest. The caregivers reported a relatively high ability for coping (mean scores = 4.6/6). Caregiver burden was significantly negatively associated with activities of daily living and motoric difficulties as measured on the Unified Parkinson's Disease Rating Scale (UPDRS). Likewise, caregiver burden was negatively associated with caregiver self-reported sleep and coping ability. Results did not demonstrate an association on the UPDRS among mentation, behavior, and mood. We found a significant negative correlation for mentation between the Folstein Mini-Mental Status Examination and caregiver burden measures; however, we did not find this association with the Dementia Rating Scale-2. Patient's self-reported pain and caregiver burden were not associated.

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“…Providing care to a family member with PD can have far-reaching effects on the caregiver's social activities, emotional health, and stress (Caap-Ahlgren & Dehlin, 2002;Edwards & Scheetz, 2002). Even though medication is initially effective at controlling patients and allowing them to function normally while making little, if any, physical demands, the caregiver may experience emotional stresses related to uncertainty about the prognosis.…”

Section: Introductionmentioning

confidence: 99%