Factors influencing the transition from pediatric to adult care: A scoping review of the literature to conceptualize a relevant education program

How can we support children, adolescents and young adults in managing chronic health challenges? A scoping review on the effects of patient education interventions

“…One review of the structured, more behaviourally focused programmes for youths with diabetes demonstrate beneficial results on young people's ability to manage their emotions, level of parent–adolescent conflict, adherence to medical treatment and sometimes metabolic control . Two reviews suggest that interventions facilitate a better transfer from paediatric to adult health care . Nevertheless, due to the great variety in interventions and inclusion criteria, a comparison of the results presented in the reviews is not possible.…”

“…Patient education is a key patient engagement intervention for supporting and enabling children, adolescents and young adults to manage their lives with illness challenges . As others have argued, children and adolescents who are living with long‐term health conditions want to gain more knowledge about their illness and its consequences for their everyday life. Many studies also report that young people do not have sufficient knowledge of the transition from child to adult health care …”

“…As others have argued, children and adolescents who are living with long‐term health conditions want to gain more knowledge about their illness and its consequences for their everyday life. Many studies also report that young people do not have sufficient knowledge of the transition from child to adult health care …”

“…Describing and evaluating the content and impact of how patient education interventions can help to pave the way towards more efficient interventions. A few reviews provide evidence that patient education interventions have been beneficial for children and adolescents with asthma, diabetes, cancer, physical disabilities or across diagnoses (general paediatric care) . However, because of the great variety in type of intervention, setting, design and outcome measure of the included studies, it is not possible to conduct comparative analysis of the results that they present.…”

Healthcare system barriers to long-term follow-up for adult survivors of childhood cancer in British Columbia, Canada: a qualitative study

“…In addition, the evidence and resources developed to address these adverse outcomes could inform childhood cancer survivorship efforts. For example, recent reviews of factors that influence the care transition of young adults with chronic illness suggest essential targets for intervention to be self-management skills, trust in adult care, self-efficacy, social support, the patient’s gender and social position, the trust between child and adult carers, and interdisciplinary cooperation [ 46 , 66 , 67 ]. Existing guidelines might also be relevant, such as the 2011 clinical algorithm developed by the American Academy of Pediatrics, the American Academy of Family Physicians, and the American College of Physicians to ensure that high-quality, developmentally appropriate healthcare services are available in an uninterrupted manner, a well-timed transition is specific to each person, and coordination of patient, family, and provider responsibilities enable young adults to optimize their ability to assume adult roles and activities [ 68 ].…”